Literature DB >> 32498657

Measuring Health-Related Quality of Life in Pediatric Neurology.

Monica E Lemmon1,2,3, Hanna E Huffstetler2, Bryce B Reeve1,3,4.   

Abstract

Health-related quality of life (HRQOL) is central to how clinicians and parents make choices about medical care for pediatric neurology patients. To provide parents with the information they need to make these decisions and plan for the future, it is necessary for parents and clinicians to understand how HRQOL is defined and measured in the setting of pediatric neurodevelopmental impairment. We review challenges that exist in measuring HRQOL in pediatric neurology, examine existing measures, and outline key principles to guide selection and interpretation of HRQOL measures in children with neurologic conditions.

Entities:  

Keywords:  health-related quality of life; neurology; pediatrics

Year:  2020        PMID： 32498657      PMCID： PMC7415579          DOI： 10.1177/0883073820923809

Source DB:  PubMed          Journal:  J Child Neurol        ISSN： 0883-0738            Impact factor:   1.987


  60 in total

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Authors:  Lidwine B Mokkink; Caroline B Terwee; Donald L Patrick; Jordi Alonso; Paul W Stratford; Dirk L Knol; Lex M Bouter; Henrica C W de Vet
Journal:  J Clin Epidemiol       Date:  2010-07       Impact factor: 6.437

2.  The disability paradox: high quality of life against all odds.

Authors:  G L Albrecht; P J Devlieger
Journal:  Soc Sci Med       Date:  1999-04       Impact factor: 4.634

3.  The PedsQL in pediatric cerebral palsy: reliability, validity, and sensitivity of the Generic Core Scales and Cerebral Palsy Module.

Authors:  James W Varni; Tasha M Burwinkle; Susan J Berrin; Sandra A Sherman; Kanela Artavia; Vanessa L Malcarne; Henry G Chambers
Journal:  Dev Med Child Neurol       Date:  2006-06       Impact factor: 5.449

4.  Preliminary Validation of the PROMIS Parent-Proxy Peer Relationships Measure in Children with Autism Spectrum Disorder: A DBPNet Study.

Authors:  Marisa Toomey; Justin Schwartz; Michele Laverdiere; Carole A Tucker; Katherine Bevans; Christopher B Forrest; Nathan J Blum
Journal:  J Dev Behav Pediatr       Date:  2016 Nov/Dec       Impact factor: 2.225

5.  Quality-of-life measures in children with neurological conditions: pediatric Neuro-QOL.

Authors:  Jin-Shei Lai; Cindy Nowinski; David Victorson; Rita Bode; Tracy Podrabsky; Natalie McKinney; Don Straube; Gregory L Holmes; Craig M McDonald; Erik Henricson; R Ted Abresch; Claudia S Moy; David Cella
Journal:  Neurorehabil Neural Repair       Date:  2011-07-25       Impact factor: 3.919

6.  Functional outcome following stroke in children.

Authors:  Anne L Gordon; Vijeya Ganesan; Anthony Towell; Fenella J Kirkham
Journal:  J Child Neurol       Date:  2002-06       Impact factor: 1.987

7.  Quality of life and resuscitation decisions in elderly patients.

Authors:  T J Starr; R A Pearlman; R F Uhlmann
Journal:  J Gen Intern Med       Date:  1986 Nov-Dec       Impact factor: 5.128

8.  Validation of the PedsQL Epilepsy Module: A pediatric epilepsy-specific health-related quality of life measure.

Authors:  Avani C Modi; Katherine F Junger; Constance A Mara; Tanja Kellermann; Lauren Barrett; Janelle Wagner; Grace A Mucci; Laurie Bailey; Dace Almane; Shanna M Guilfoyle; Lauryn Urso; Brooke Hater; Heather Hustzi; Gigi Smith; Bruce Herrmann; M Scott Perry; Mary Zupanc; James W Varni
Journal:  Epilepsia       Date:  2017-09-13       Impact factor: 5.864

9.  Subjective quality of life: its relationship with clinician-rated and patient-rated psychopathology. The South-Verona Outcome Project 6.

Authors:  Antonio Lasalvia; Mirella Ruggeri; Nazario Santolini
Journal:  Psychother Psychosom       Date:  2002 Sep-Oct       Impact factor: 17.659

10.  Health-related quality of life of children and adolescents with mental disorders.

Authors:  Katharina Weitkamp; Judith K Daniels; Georg Romer; Silke Wiegand-Grefe
Journal:  Health Qual Life Outcomes       Date:  2013-07-31       Impact factor: 3.186
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  1 in total

1.  French-language adaptation of the 16D and 17D Quality of Life measures and score description in two Canadian pediatric samples.

Authors:  Émélie Rondeau; Leandra Desjardins; Caroline Laverdière; Daniel Sinnett; Élie Haddad; Serge Sultan
Journal:  Health Psychol Behav Med       Date:  2021-07-06
  1 in total

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