Literature DB >> 32493524

A national spinal muscular atrophy registry for real world evidence.

Victoria Hodgkinson, Maryam Oskoui, Joshua Lounsberry, Saïd M'Dahoma, Emily Butler, Craig Campbell, Alex MacKenzie, Hugh McMillan, Louise Simard, Jiri Vajsar, Bernard Brais, Kristine Chapman, Nicolas Chrestian, Meghan Crone, Peter Dobrowolski, Susan Dojeiji, James J Dowling, Nicolas Dupré, Angela Genge, Hernan Gonorazky, Simona Hasal, Aaron Izenberg, Wendy Johnston, Edward Leung, Hanns Lochmüller, Jean K Mah, Alier Marerro, Rami Massie R, Laura McAdam, Anna McCormick, Michel Melanson, Michelle M Mezei, Cam-Tu E Nguyen, Colleen O'Connell, Erin O'Ferrall, Gerald Pfeffer, Cecile Phan, Stephanie Plamondon, Chantal Poulin, Xavier Rodrigue, Kerri Schellenberg, Kathy Selby, Jordan Sheriko, Christen Shoesmith, Garth Smith, Monique Taillon, Sean Taylor, Jodi Warman, Scott Worley, Lawrence Korngut.   

Abstract

Entities:  

Year:  2020        PMID： 32493524     DOI： 10.1017/cjn.2020.111

Source DB:  PubMed          Journal:  Can J Neurol Sci        ISSN： 0317-1671            Impact factor:   2.104


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  2 in total

1.  Burden of Spinal Muscular Atrophy (SMA) on Patients and Caregivers in Canada.

Authors:  H J McMillan; B Gerber; T Cowling; W Khuu; M Mayer; J W Wu; B Maturi; K Klein-Panneton; C Cabalteja; H Lochmüller
Journal:  J Neuromuscul Dis       Date:  2021

2.  A Canadian Adult Spinal Muscular Atrophy Outcome Measures Toolkit: Results of a National Consensus using a Modified Delphi Method.

Authors:  Jeremy Slayter; Victoria Hodgkinson; Josh Lounsberry; Bernard Brais; Kristine Chapman; Angela Genge; Aaron Izenberg; Wendy Johnston; Hanns Lochmüller; Erin O'Ferrall; Gerald Pfeffer; Stephanie Plamondon; Xavier Rodrigue; Kerri Schellenberg; Christen Shoesmith; Christine Stables; Monique Taillon; Jodi Warman-Chardon; Lawrence Korngut; Colleen O'Connell
Journal:  J Neuromuscul Dis       Date:  2021
  2 in total

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