Literature DB >> 32476565

Experiences of Tourette Syndrome Caregivers With Supportive Communication.

Eryn Travis1, Anna Victoria Ortiz Juarez-Paz2.   

Abstract

The experiences of Tourette syndrome (TS) caregivers with supportive communication are examined in this qualitative investigation. TS is a childhood-onset neurodevelopmental disorder marked by a combination of involuntary verbal and motor tics lasting for more than 1 year. Although individuals are impacted the most by TS, the stress for caring for a child with TS takes an emotional and physical toll on the caregiver. Eleven participants shared their experiences with receiving supportive communication by taking part in semi-structured interviews. Data analysis yielded three themes: (a) TS caregivers describe their experiences as a struggle; (b) they seek out specific social support from friends and families; and (c) they frequently receive social support that increases instead of reducing stress.

Entities:  

Keywords:  United States; caregivers; caretaking; children; communication; community and public health; families; grounded theory; lived experience; health; neurological disorders; neurology; qualitative; quality of life; semi-structured interviews; social support

Mesh:

Year:  2020        PMID: 32476565     DOI: 10.1177/1049732320915444

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  2 in total

1.  Yonder: Exercise procrastination, Tourette syndrome, breastfeeding, television deaths, and podcast of the month.

Authors:  Ahmed Rashid
Journal:  Br J Gen Pract       Date:  2020-07-30       Impact factor: 5.386

2.  How do children with Tourette's syndrome and their caregivers live with the disorder? A systematic review of qualitative evidence.

Authors:  Hyo-Weon Suh; Seok-In Yoon; Sunggyu Hong; Hyun Woo Lee; Misun Lee; Jong Woo Kim; Sun-Yong Chung
Journal:  Front Psychiatry       Date:  2022-09-29       Impact factor: 5.435

  2 in total

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