| Literature DB >> 32476565 |
Eryn Travis1, Anna Victoria Ortiz Juarez-Paz2.
Abstract
The experiences of Tourette syndrome (TS) caregivers with supportive communication are examined in this qualitative investigation. TS is a childhood-onset neurodevelopmental disorder marked by a combination of involuntary verbal and motor tics lasting for more than 1 year. Although individuals are impacted the most by TS, the stress for caring for a child with TS takes an emotional and physical toll on the caregiver. Eleven participants shared their experiences with receiving supportive communication by taking part in semi-structured interviews. Data analysis yielded three themes: (a) TS caregivers describe their experiences as a struggle; (b) they seek out specific social support from friends and families; and (c) they frequently receive social support that increases instead of reducing stress.Entities:
Keywords: United States; caregivers; caretaking; children; communication; community and public health; families; grounded theory; lived experience; health; neurological disorders; neurology; qualitative; quality of life; semi-structured interviews; social support
Mesh:
Year: 2020 PMID: 32476565 DOI: 10.1177/1049732320915444
Source DB: PubMed Journal: Qual Health Res ISSN: 1049-7323