Nathan J Wilson1, Yu-Wei Chen2, Natasha Mahoney1,3, Angus Buchanan4, Anne Marks1, Reinie Cordier4,5. 1. School of Nursing and Midwifery, Western Sydney University, Richmond, NSW, Australia. 2. Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, Australia. 3. School of Occupational Therapy, Social Work and Speech Pathology, Curtin University, Perth, WA, Australia. 4. Faculty of Health Sciences, School of Occupational Therapy, Social Work, and Speech Pathology, Curtin University, Perth, WA, Australia. 5. Faculty of Health and Life Sciences, Northumbria University, Newcastle Upon Tyne, UK.
Abstract
BACKGROUND: Experiences of people with intellectual disability are often reported by proxy, excluding the person's own perception. To assist people with intellectual disabilities ability to communicate their own experiences, the current study explored the feasibility, reliability and validity of experience sampling methods (ESMs) for people with intellectual disability. METHOD: After a training session, 19 participants carried a mobile device for 7 consecutive days, answering a survey when prompted 7 times daily. Participants were interviewed at the end of data collection. RESULTS: Excluding incomplete entries, the response rate was 33.8%, varying by living arrangement and employment. Split-half reliability and correlations among logically linked internal experiences demonstrated strong reliability and validity. Illustration of the context of responses supported face validity. Technological and content difficulties were discussed in interviews. CONCLUSIONS: Experience sampling methods is feasible for some people with intellectual disability, providing valid and reliable information. Future research is needed to further improve feasibility.
BACKGROUND: Experiences of people with intellectual disability are often reported by proxy, excluding the person's own perception. To assist people with intellectual disabilities ability to communicate their own experiences, the current study explored the feasibility, reliability and validity of experience sampling methods (ESMs) for people with intellectual disability. METHOD: After a training session, 19 participants carried a mobile device for 7 consecutive days, answering a survey when prompted 7 times daily. Participants were interviewed at the end of data collection. RESULTS: Excluding incomplete entries, the response rate was 33.8%, varying by living arrangement and employment. Split-half reliability and correlations among logically linked internal experiences demonstrated strong reliability and validity. Illustration of the context of responses supported face validity. Technological and content difficulties were discussed in interviews. CONCLUSIONS: Experience sampling methods is feasible for some people with intellectual disability, providing valid and reliable information. Future research is needed to further improve feasibility.
Authors: Maude Schneider; Thomas Vaessen; Esther D A van Duin; Zuzana Kasanova; Wolfgang Viechtbauer; Ulrich Reininghaus; Claudia Vingerhoets; Jan Booij; Ann Swillen; Jacob A S Vorstman; Thérèse van Amelsvoort; Inez Myin-Germeys Journal: J Neurodev Disord Date: 2020-11-13 Impact factor: 4.025