| Literature DB >> 32475166 |
Gemma Goodall, Kristin Taraldsen1, J Artur Serrano2.
Abstract
There is a growing interest in using technology to provide meaningful activities for people living with dementia. The aim of this systematic review was to identify and explore the different types of digital technologies used in creating individualized, meaningful activities for people living with dementia. From 1414 articles identified from searches in four databases, 29 articles were included in the review. The inclusion criteria were the study used digital technology to deliver an individually tailored activity to participants with dementia, the process of individualization was described, and findings relating to the mental, physical, social, and/or emotional well-being of the participant were reported. Data extracted from the included studies included participant demographics, aims, methods, and outcomes. The following information on the technology was also extracted: purpose, type, training, facilitation, and the individualization process. A narrative synthesis of the results grouped the various technologies into four main purposes: reminiscence/memory support, behavior management, stimulating engagement, and conversation/communication support. A broad range of technologies were studied, with varying methods of evaluation implemented to assess their effect. Overall, the use of technology in creating individualized, meaningful activities seems to be promising in terms of improving behavior and promoting relationships with others. Furthermore, most studies in this review involved the person with dementia in the individualization process of the technology, indicating that research in this area is adopting a more co-creative and inclusive approach. However, sample sizes of the included studies were small, and there was a lack of standardized outcome measures. Future studies should aim to build a more concrete evidence base by improving the methodological quality of research in this area. Findings from the review indicate that there is also a need for more evidence concerning the feasibility of implementing these technologies into care environments.Entities:
Keywords: dementia; person-centered; psychosocial; systematic review; technology
Year: 2020 PMID: 32475166 PMCID: PMC8132010 DOI: 10.1177/1471301220928168
Source DB: PubMed Journal: Dementia (London) ISSN: 1471-3012
Summary of search terms.
| Search | Terms |
|---|---|
| #1 | dement* OR alzheimer’s |
| #2 | personal OR personalized OR personalised OR person-centred OR person-centered OR person-focused OR individualized OR individualised OR individualistic OR meaningful OR biographical OR autobiographical OR tailored |
| #3 | technology OR virtual OR augmented OR media OR multimedia OR touchscreen OR iPad OR app OR mobile OR ICT OR tablet* |
| #4 | #1 AND #2 AND #3 |
Figure 1.PRISMA flow diagram of study selection process. Adapted with permission from Moher et al.(2009b).
Study characteristics.
| Author | Study design | Participants with dementia | Study aim(s) | Interaction with technology | Measures | Findings | ||
|---|---|---|---|---|---|---|---|---|
| N | Mean age | Type and severitya | ||||||
|
| Case study | 3 | 83.3 | Mild to moderate dementia | Study the role of an individualized multimedia iPad app (Our Story) in the stimulation, preservation and sharing of special memories | Creation of multimedia story over 7 weeks | Interviews, field notes, observations | The app facilitated the elicitation, storage and sharing of special memories. All participants experienced positive feelings of confidence, empowerment and increased self-esteem |
|
| Exploratory feasibility study | 12 | 79.6 | Early to advanced AD (N = 6), MCI (N = 6) | Observe participant responses to personalized multimedia biographies | Production of DVD biographies followed by weekly screenings for 6 months | Observations, interviews | Multimedia biographies stimulated reminiscence, evoked feelings of mostly joy but occasionally sadness, and stimulated social interactions |
|
| Mixed-methods study | 10 | 84.3 | Late moderate dementia, mean FAST score 5.2 | Compare effects of personalized and generic multimedia videos on engagement | Video screenings over 6 weeks | OME, language patterns from transcriptions using predefined codes | Slight preference for looking at personalized videos first. Generic videos produced wider range of conversational topics and phrasal patterns. |
|
| Randomized, single-blinded cross-over study | 11 | 86 | Mild to severe dementia. Mean MMSE 16.2 | Assess the effects of a personalized multimedia system (Memory Box) on agitation, depression and anxiety | Use of multimedia system for 4 weeks | CMAI; CSDD; RAID, interviews | Significant reduction in depression and anxiety scores. No significant change in agitation scores |
|
| Case study | 1 | 80 | AD, FAST Stage 4 | Assess whether a slideshow of daily life moment pictures captured by a smart phone can support autobiographical memory | Use of smart phone for 4 weeks. DVD of recent events viewed once a week | Recent events memory recall test (non-standardized) and satisfaction questionnaire | DVD of daily life pictures helped the participant recall recent events significantly better |
|
| Case study | 1 | 52 | AD | Explore the effects of a personalized digital device application (GoTalk NOW) on communication | Use of device over 2 weeks | Video recordings, interview | Application use increases interactive and communicative actions |
|
| Case study | 1 | 74 | Mild AD | To test a personalized digital memory book (myBook) for usability, functionality, reminiscence, and cognition | Weekly sessions over 8 weeks | Observations, evaluation form (non-standardized) | The participant felt the tool enhanced reminiscence. Observations indicated improvement in social interaction and communication |
|
| Mixed-methods feasibility and acceptability study | 4 | Range 69–80 | AD/Vascular/Parkinson’s Dementia | Explore the feasibility and acceptability of using an iPad Simulated Presence Therapy intervention | iPad simulated presence therapy over 2 weeks | Video ethnography, observations, semi-structured interviews with hospital staff | Four themes: (a) positive responses, (b) person-centered care, (c) video content, and (d) technical skills. |
|
| Explorative multiple case study | 7 | Range 72–81 | Alzheimer’s disease | Explore the process of acceptance and integration of a digital photograph diary as a tool for remembrance of and conversations about daily life events | Use of digital photograph diary over 22 weeks | Interviews, observations, field notes, MMSE, PGCMS, Free recall memory index, recognition memory index | The digital photograph diary contributed to increased communication, promoted relationships, and was perceived as a stimulating joint activity |
|
| Explorative study | 7 | 77 | Alzheimer’s disease, Mean MMSE 22 | Explore how sense of self and identity are manifested in narrations about recent events enabled by a digital photograph diary | Use of digital photograph diary over 3 months | Audio recorded communication sessions, observations, field notes | Two themes from discourse analysis: manifestations of sense of self and sense of self in relation to others. Digital photography diary supported communication |
|
| Qualitative study | 7 | 77 | Dementia (N = 4), MCI (N = 3) | Test the usability, feasibility and adoption of a touchscreen computer intervention (The Companion) | Use of touchscreen computer intervention over an average of 31 days | Goal attainment, observations, interview | The Companion facilitated meaningful and positive engagement |
|
| Field trial | 4 | – | – | Measure the impact of a personalized assistive robot on emotional engagement | Use of assistive robot over 6 months | Video recordings of interaction, activity data, emotional responses, quality of robot experience survey | The robot had positive impact on emotional well-being and provided sensory enrichment and social connectivity. |
|
| Longitudinal field trial | 5 | – | – | Evaluate the impact of a personalized assistive robot in the context of home-based dementia care | Use of assistive robot over 3–6 months | Observational videos, interactional data, quality of robot experience survey | Positive experience with the robot, improvement in sensory enrichment |
|
| Quasi-experimental feasibility study | 30 | 79 | Early to moderate dementia | Measure the effect of technology-enabled reminiscence iPad app (InspireD) on mutuality, quality of carer and patient relationship and subjective well-being | Use of the iPad app over 12 weeks | Mutuality Scale, QCPR, WHO-5 | Significant increases in mutuality, quality of carer and patient relationship, and subjective well-being |
|
| Pre/post-test single case study | 1 | 84 | AD, moderate | Assess whether a biographical ambient display (Biography Theatre) improves autobiographical memory and sense of identity | Use of ambient display over 1 month | GDS-30; GAS, AES-I; SIP-AD; TST; AMI; MMSE; IQCODE; custom interviews and questionnaires | Improvement in apathy and positive self-identity. No improvement in autobiographical memory, anxiety, depression and general cognition |
|
| Case study | 3 | 82 | Lewy body disease, AD, dementia non-specific, moderate to advanced | To explore the use of a personalized iPad app (Memory Keeper) with regard to barriers, facilitators, benefits and incorporation into care. | Use of app over 6-month trial period | Field notes, focus groups and individual interview | Five themes: experienced and expected benefits of Memory Keeper; engagement of the person with dementia and their response to memory keeper; recruitment, media collection, set-up training and handover; use of memory keeper in long term care setting |
|
| Case study | 1 | 70 | AD, MMSE 17 | Study the effect of an ambient display system (AnswerBoard) and mobile app (AnswerPad) on behavioral symptoms | Use of system over 16 weeks | NPI-Q; AES, caregiver diary, interviews | Use of systems had a positive effect in reducing challenging behaviors |
|
| Field study | 2 | N1 = “Over 70”, N2 = 73 | AD, MMSE scores 17 and 21 | Study the effectiveness of assisted cognition system (AnswerBoard/AnswerPad) to support occupational therapy interventions | Use of system over 16 weeks | NPI-Q; AES | Use of systems had a positive effect in reducing challenging behaviors |
|
| Single-system ABA withdraw design | 1 | 83 | Vascular dementia, severe PAS = 21 | To evaluate the effect of video-simulated presence for decreasing resistance to care | Video simulated presence for 14 days | Observations, adapted Positive Response Schedule | Significant reduction in resistance to care with the use of video simulated presence |
|
| Multi-site case study | 7 | – | Early stage dementia | Assess how digital storytelling affects quality of life in terms of relationships and self-identity | Seven-session workshop over 6 weeks | Observational field notes, audio recorded workshop sessions and interviews | Overall enjoyment of sessions, ability to share stories, enhance relationships, increase in communication and interaction |
|
| Formative evaluation | 5 | – | Early to severe dementia | Evaluate the use of a personalized music platform (Music ePartner) | Single time use of music platform | Observations, interview | Observed positive effects on memory recall, mood, and social interaction |
|
| Case study | 1 | 87 | Early-stage dementia | Explore whether SenseCam images can encourage meaningful discussions about recent memories and help maintain sense of identity | Use of SenseCam for 7 weeks. Viewing of images twice a week | Interview, observations, field notes, psychometric tests (not specified) | No change in psychometric measures, confusions about source of images, did not stimulate discussions |
|
| Qualitative study | 15 | 78 | – | To explore the impact of a personalized reminiscence program facilitated through an iPad app (InspireD) | Use of iPad app over 12 weeks | Semi-structured interviews | Six themes: usability, revisiting the past; home use; impact on the person with dementia; gains and abilities; impact on relationships |
|
| Dyad case studies | 3 | – | – | To understand how digital communication support may be used in interaction with people with dementia | Single time use of digital communication app | Video recordings | CIRCA and CIRCUS support conversation topics, personal photographs in CIRCUS are more engaging |
|
| Single-blind randomized trial | 51 | 73.7 | Mild Alzheimer’s disease | To assess the effects of wearable camera memory aid (SenseCam) on well-being compared to paper memory training program (Memo+) and written diary (control) | Use of SenseCam for 6 weeks. Images reviewed twice a week | GDS-30, IAFAI, WHOQOL-OLD | Significant reduction in depression with SenseCam and Memo+ compared to diary control condition |
|
| Multiple case study | 6 | 82.2 | Mild to moderate dementia, CDR scores of 1 (N = 5) and 2 (N = 1) | To compare the use of a multimedia digital life storybook vs. conventional life storybook | Digital storybooks created over 7–10 weeks, DVD then given to participants for regular viewing | QOL-AD; AMI-E; GDS-12R; QCPR; Semi-structured interview | Five out of six participants showed improvement in quality of life and autobiographical memory after having the digital storybook for 4 weeks |
|
| Case study | 11 | – | Moderate to severe | To explore whether a personalized digital app (Ticket to Talk) can support communication between people with dementia and younger people | Use of digital app over 4 weeks across 6 visits | Interviews, workshop discussions | Three themes: promoting and managing reminiscence; starting and maintaining conversation; redistributing agency |
|
| Within-subject longitudinal study | 6 | 72 | AD, mild to moderate, Addenbrooke’s Cognitive Examination mean 70.8 | To compare the effects of using a wearable camera vs. a written diary to aid retrospective recall of significant personal events | Use of wearable camera for 3.5 months | Memory recall tests, interview | Recall significantly more details of events in the camera condition for five out of six participants compared to the written diary condition |
|
| ABCA design | 15 | 77.3 | AD, Mean MMSE 14.3 | To assess whether personalized photo video obtain more attention compared to generic TV shows | Single event of viewing photo videos | Video recorded responses measured in terms of concentration and distraction scores | 80% of participants showed more attention to personalized reminiscence photo video than other TV shows. Higher concentration scores for moderate and severe dementia participants |
Note: Symbol “–” indicates not specified. AD: Alzheimer’s Disease; MCI: Mild cognitive impairment; FAST: Functional Assessment Staging Tool; OME: Observational measure of engagement; CMAI: Cohen-Mansfield Agitation Inventory; CSDD: Cornell Scale for Depression in Dementia; RAID: Rating Anxiety in Dementia; MMSE: Mini-mental state examination; PGCMS: Philadelphia Geriatric Center Morale Scale; QCPR: Quality of the Caregiver Relationship questionnaire; WHO-5: World Health Organization Five Well-being Index; GDS-30: Geriatric Depression Scale-30; GAS: Goldberg Anxiety Scale; AES-I: Apathy Evaluation Scale-Informant; SIP-AD: Self-Image Profile-Adults; TST: Twenty Statements Test; AMI: Autobiographical Memory Interview; IQCODE; Informant Questionnaire of Cognitive Decline in the Elderly; NPI-Q; Neuropsychiatric Inventory Questionnaire; AES: Apathy Evaluation Scale; PAS: Psychogeriatric Assessment scales; IAFAI; Adults and Older Adults Functional Assessment Inventory; WHOQOL-OLD: World Health Organization Quality of Life-OLD module; CDR: Clinical Dementia Rating scale; QOL-AD: Quality of life Alzheimer’s disease scale; AMI-E: Autobiographical Memory Interview extended version; GDS-12R: Geriatric Depression Scale (Residential).
aType and severity as reported in the study.
Overview of technology, individualization, and facilitation.
| Purpose | Type | Study | Name | Media contents and services | Individualization process | Setting | Training | Facilitation |
|---|---|---|---|---|---|---|---|---|
| Reminiscence or memory support | Lifelogging: wearable camera devices |
| – | Photos taken on smartphone lanyard | Photos taken of everyday life at 5-minute intervals. Photos then saved to DVD | Home | Given to people with dementia and caregiver by researchers | People with dementia uses smartphone independently, then watches DVD of photos with caregiver |
| SenseCam/digital photograph diary | Photos taken by wearable camera, captions with geolocation | Wearable camera (SenseCam) takes photos of daily events. Photos then uploaded onto touchscreen computer (Digital photograph diary) | Home | Given to people with dementia and family member by researchers | People with dementia uses device, family uploads photos. They review photos together | |||
|
| SenseCam | Photos taken by wearable camera | Wearable camera takes photos of daily events. Photos then reviewed on computer | Home | Given to people with dementia and family by researchers Given to people with dementia by researchers | People with dementia uses device, images reviewed with therapist | ||
|
| Hospital/clinic | People with dementia uses device, images reviewed with neuropsychologist | ||||||
|
| – | People with dementia uses device, researcher or spouse uploads photos | ||||||
| Digital app |
| Our Story | Photos taken on iPad and found online, text captions, audio narration | Story captured in “conversational style” with people with dementia. People with dementia find own photos. | Home/club for people with dementia | Given to people with dementia by authors | Independent use by people with dementia (with researcher support if needed) | |
|
| myBook | Daily routine reminders, family photos, games | Caregivers supplied information and photos to authors | Home | Given to people with dementia and caregiver by authors | People with dementia and caregiver use together | ||
|
| InspireD | Photos, videos, music | People with dementia and family upload media contents with help of reminiscence trainer | Home | Given to people with dementia and family by IT assistant (+ reminiscence training) | People with dementia and family use together | ||
|
| People with dementia and family upload media contents to app | – | ||||||
|
| Music ePartner | Music with text captions and photos | Questionnaire filled in by people with dementia/caregiver and given to authors | Day center | Given to people with dementia and caregiver by researcher | People with dementia and caregiver use together | ||
| Multimedia biography (DVD/video-based) |
| – | Photos, video, voice-over narration, music | Student collaboration with people with dementia and family using workbook | Home | People with dementia and family use together | ||
|
| – | Photos, voice recordings, music, animation | People with dementia, Family and researcher | Community club | Given to people with dementia and family by authors | People with dementia and family use together guided by workshop facilitator | ||
|
| – | Photos, music, narration, video | Participatory design—people with dementia and Family, researcher as co-editor | Care home | Digital life book played on TV in people with dementia’s room | |||
|
| – | Photos, narration, music | Caregivers provided photos to researchers | Hospital | People with dementia watched by him/herself | |||
| Touchscreen device |
| Biography theatre | Photos, music, video, narration | Authors worked with people with dementia and family | Home | – | Independent use by people with dementia | |
| Stimulate engagement | Social robot | – | Music, photo, social connectivity, games | Real-time individualization by robot capturing emotional responses | Home | – | Use by people with dementia and family | |
| PowerPoint |
| – | Photos, music, video | Students used photos provided by family | Memory care unit | – | Facilitated by student volunteer | |
| Digital app |
| Memory Keeper | Family photos, music, video, book covers, themed images | Researcher collaboration with people with dementia and family | Long-term care facility | Given to family by researchers | People with dementia and family member use together | |
| Behavior management | Multimedia touchscreen device |
| Memory Box | Movies, music, photos, video messages from family, family photos | Researcher collaboration with people with dementia and family | Nursing home | 2.5 hours training given to people with dementia, staff, family by researchers | Main use by people with dementia, support from family and staff carers |
|
| The Companion | Photos, captions, music, reminders, messages | Life story interview with people with dementia and family | Home | Given to people with dementia and caregiver by expert in assistive technology | Use by people with dementia and family | ||
| AnswerBoard/AnswerPad | Reminders, personalized games | Researcher collaboration with caregiver | Home | – | Use by people with dementia with therapist | |||
| Tablet with video only |
| – | Video from family | Researcher collaboration with family | Hospital | – | Used by professional carer | |
|
| – | Video from family | Family pre-recorded messages | Care home | Given by researchers | Used by professional carer | ||
| Communication/conversation support | Digital app |
| GoTalk NOW | Photos, video, text captions, digitized and synthetic speech | Collaboration between people with dementia and speech therapist over 3 days | Home | Given to people with dementia and family member by researchers | Used by people with dementia and family |
|
| CIRCUS | Photos, films, music, videos | Upload function on app | Home | Given by researchers to caregivers only | Used by people with dementia and professional caregiver | ||
|
| Ticket to Talk | Photos, sounds, videos | Young person creates user profile with help from family. App provides prompts to invite young person to find out more about the people with dementia’s life | Home/care home | – | Used by young person, people with dementia and family/carer |
Note: Symbol “–” indicates not specified.