Literature DB >> 32474392

"I know best:" women caring for kin with dementia.

Ester Carolina Apesoa-Varano1.   

Abstract

The dementia care literature in the home is vast, particularly in the health sciences where the focus remains on intervention to address carer emotional distress and burden. The sociological literature on dementia care has primarily utilized the illness disruption and (bio)medicalization models to show how meaning and practices are negotiated in the non-expert setting. Instead, I apply a feminist labor process perspective to examine the question of why women dementia kin carers resist relinquishing care responsibilities to others. This qualitative grounded theory study is based on seven waves of interviews (total = 98) conducted over approximately five years with 15 Latina dementia kin carers recruited through clinic and community sites in Northern California. Findings show how Latina kin carers exercise a degree of control and autonomy over the care process because they have developed tacit knowledge and skills to craft quality care of kin. In facing the dilemma of ceding care to others they perceive as unprepared, they reject available help. This study reveals how carers maintain quality care with dignity and comfort for the care recipient and themselves.
Copyright © 2020 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Alzheimer''s disease and dementia; Kin carers/caregivers; Knowledge and skills; Latinas; Qualitative/Gounded Theory; Relinquishing care; United States; Wave in-depth interviews

Mesh:

Year:  2020        PMID: 32474392      PMCID: PMC7415189          DOI: 10.1016/j.socscimed.2020.113026

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  24 in total

1.  Locations of remorse and homelands of resilience: notes on grief and sense of loss of place of Latino and Irish-American caregivers of demented elders.

Authors:  A Ortiz; J Simmons; W L Hinton
Journal:  Cult Med Psychiatry       Date:  1999-12

Review 2.  Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis.

Authors:  Martin Pinquart; Silvia Sörensen
Journal:  Psychol Aging       Date:  2003-06

3.  Well-being, appraisal, and coping in Latina and Caucasian female dementia caregivers: findings from the REACH study.

Authors:  D W Coon; M Rubert; N Solano; B Mausbach; H Kraemer; T Arguëlles; W E Haley; L W Thompson; D Gallagher-Thompson
Journal:  Aging Ment Health       Date:  2004-07       Impact factor: 3.658

4.  Geriatric ideology: the myth of the myth of senility.

Authors:  J S Goodwin
Journal:  J Am Geriatr Soc       Date:  1991-06       Impact factor: 5.562

5.  Ethnic differences in social network help-seeking strategies among Latino and Euro-Aamerican dementia caregivers.

Authors:  R Valle; A M Yamada; C Barrio
Journal:  Aging Ment Health       Date:  2004-11       Impact factor: 3.658

6.  Family caregiving and emotional strain: associations with quality of life in a large national sample of middle-aged and older adults.

Authors:  David L Roth; Martinique Perkins; Virginia G Wadley; Ella M Temple; William E Haley
Journal:  Qual Life Res       Date:  2009-05-07       Impact factor: 4.147

7.  Medication takeovers: Covert druggings and behavioral control in Alzheimer's.

Authors:  Brandon Berry; Ester Carolina Apesoa-Varano
Journal:  Soc Sci Med       Date:  2017-07-06       Impact factor: 4.634

8.  Lay knowledge, social movements and the use of medicines: Personal reflections.

Authors:  Nicky Britten; Kath Maguire
Journal:  Health (London)       Date:  2015-11-30

9.  Patient and caregiver characteristics associated with depression in caregivers of patients with dementia.

Authors:  Kenneth E Covinsky; Robert Newcomer; Patrick Fox; Joan Wood; Laura Sands; Kyle Dane; Kristine Yaffe
Journal:  J Gen Intern Med       Date:  2003-12       Impact factor: 5.128

Review 10.  Systematic review of information and support interventions for caregivers of people with dementia.

Authors:  Carl A Thompson; Karen Spilsbury; Jill Hall; Yvonne Birks; Colin Barnes; Joy Adamson
Journal:  BMC Geriatr       Date:  2007-07-27       Impact factor: 3.921

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