Literature DB >> 32472490

Health Literacy and Shared Decision-making: Exploring the Relationship to Enable Meaningful Patient Engagement in Healthcare.

Danielle M Muscat1, Heather L Shepherd2, Don Nutbeam3, Lyndal Trevena3, Kirsten J McCaffery4,5.   

Abstract

Research into health literacy and shared decision-making has largely developed along parallel, but distinct lines over the past two decades. There is little evidence that the concepts and related practice have intersected except in the most functional way, for example, to simplify shared decision-making tools by improving readability scores of decision aids. This paper presents an integrated model to strengthen and sustain patient engagement in health care by drawing on the strengths of both concepts. This includes addressing patients' skills and capacities, alongside modifications to written and verbal information. We propose an expanded model of shared decision-making which incorporates health literacy concepts and promotes two-tiered intervention methods to improve the targeting and personalization of communication and support the development of transferable health literacy skills among patients.

Entities:  

Keywords:  communication; health literacy; literacy; model; patient participation; shared decision-making

Mesh:

Year:  2020        PMID: 32472490      PMCID: PMC7878628          DOI: 10.1007/s11606-020-05912-0

Source DB:  PubMed          Journal:  J Gen Intern Med        ISSN: 0884-8734            Impact factor:   5.128


  26 in total

Review 1.  Health literacy and public health: a systematic review and integration of definitions and models.

Authors:  Kristine Sørensen; Stephan Van den Broucke; James Fullam; Gerardine Doyle; Jürgen Pelikan; Zofia Slonska; Helmut Brand
Journal:  BMC Public Health       Date:  2012-01-25       Impact factor: 3.295

2.  The evolving concept of health literacy.

Authors:  Don Nutbeam
Journal:  Soc Sci Med       Date:  2008-10-25       Impact factor: 4.634

3.  Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango).

Authors:  C Charles; A Gafni; T Whelan
Journal:  Soc Sci Med       Date:  1997-03       Impact factor: 4.634

Review 4.  Improving health literacy in community populations: a review of progress.

Authors:  Don Nutbeam; Bronwyn McGill; Pav Premkumar
Journal:  Health Promot Int       Date:  2018-10-01       Impact factor: 2.483

5.  Insights into the concept and measurement of health literacy from a study of shared decision-making in a low literacy population.

Authors:  Sian K Smith; Don Nutbeam; Kirsten J McCaffery
Journal:  J Health Psychol       Date:  2013-05-15

6.  Power imbalance prevents shared decision making.

Authors:  Natalie Joseph-Williams; Adrian Edwards; Glyn Elwyn
Journal:  BMJ       Date:  2014-05-14

7.  The connection between evidence-based medicine and shared decision making.

Authors:  Tammy C Hoffmann; Victor M Montori; Chris Del Mar
Journal:  JAMA       Date:  2014-10-01       Impact factor: 56.272

8.  Developing and pilot testing a comprehensive health literacy communication training for health professionals in three European countries.

Authors:  Marise S Kaper; Jane Sixsmith; Jaap A R Koot; Louise B Meijering; Sacha van Twillert; Cinzia Giammarchi; Roberta Bevilacqua; Margaret M Barry; Priscilla Doyle; Sijmen A Reijneveld; Andrea F de Winter
Journal:  Patient Educ Couns       Date:  2017-07-19

9.  Skills for Shared Decision-Making: Evaluation of a Health Literacy Program for Consumers with Lower Literacy Levels.

Authors:  Danielle M Muscat; Suzanne Morony; Lyndal Trevena; Andrew Hayen; Heather L Shepherd; Sian K Smith; Haryana M Dhillon; Karen Luxford; Don Nutbeam; Kirsten J McCaffery
Journal:  Health Lit Res Pract       Date:  2019-10-03

10.  Evidence on the effectiveness of health literacy interventions in the EU: a systematic review.

Authors:  Boudewijn B Visscher; Bas Steunenberg; Monique Heijmans; Jolien M Hofstede; Walter Devillé; Iris van der Heide; Jany Rademakers
Journal:  BMC Public Health       Date:  2018-12-29       Impact factor: 3.295

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  13 in total

1.  Using the Brief Health Literacy Screen in Chronic Care in French Hospital Settings: Content Validity of Patient and Healthcare Professional Reports.

Authors:  Adèle Perrin; Luiza Siqueira do Prado; Amélie Duché; Anne-Marie Schott; Alexandra L Dima; Julie Haesebaert
Journal:  Int J Environ Res Public Health       Date:  2020-12-25       Impact factor: 3.390

2.  Do health literacy levels of nursing students change throughout the study programme? A cross-sectional study.

Authors:  José Rafael González-López; María de Los Angeles Rodríguez-Gázquez
Journal:  BMJ Open       Date:  2022-01-12       Impact factor: 2.692

3.  Physiotherapy support for self-management of persisting musculoskeletal pain disorders.

Authors:  Ina Diener
Journal:  S Afr J Physiother       Date:  2021-10-29

4.  Adaptation of a Shared Decision-Making Tool for Early Rheumatoid Arthritis Treatment Decisions with Indigenous Patients.

Authors:  Valerie Umaefulam; Terri-Lynn Fox; Glen Hazlewood; Nick Bansback; Claire E H Barber; Cheryl Barnabe
Journal:  Patient       Date:  2021-09-06       Impact factor: 3.883

5.  Views of healthcare consumer representatives on defensive practice: 'We are your biggest advocate and supporter… not the enemy'.

Authors:  Nola M Ries; Briony Johnston; Jesse Jansen
Journal:  Health Expect       Date:  2021-12-03       Impact factor: 3.377

Review 6.  Education on Depression in Mental Health Apps: Systematic Assessment of Characteristics and Adherence to Evidence-Based Guidelines.

Authors:  Laura Martinengo; Anne-Claire Stona; Lorainne Tudor Car; Jimmy Lee; Konstadina Griva; Josip Car
Journal:  J Med Internet Res       Date:  2022-03-09       Impact factor: 7.076

7.  Primary Care Providers' Perceptions of the Acceptability, Appropriateness, and Feasibility of a Mammography Decision Aid for Women Aged 75 and Older.

Authors:  Mara A Schonberg; Mary Beth Hamel; Roger B Davis; Maria Karamourtopoulos; Adlin Pinheiro; Michelle C Hayes; Christina C Wee; Christine Kistler
Journal:  MDM Policy Pract       Date:  2022-01-21

8.  Question prompt lists and endorsement of question-asking support patients to get the information they seek-A longitudinal qualitative study.

Authors:  Marguerite Tracy; Julie Ayre; Olivia Mac; Tessa Copp; Emerita Lyndal Trevena; Heather Shepherd
Journal:  Health Expect       Date:  2022-04-26       Impact factor: 3.318

9.  Enhancing Specific Health Literacy with a Digital Evidence-Based Patient Decision Aid for Hypertension: A Randomized Controlled Trial.

Authors:  Kai Wehkamp; Felicia Beatrice Kiefer; Friedemann Geiger; Fueloep Scheibler; Jens Ulrich Rueffer; Norbert Donner-Banzhoff; Cornelia Betsch
Journal:  Patient Prefer Adherence       Date:  2021-06-14       Impact factor: 2.711

Review 10.  Personalized and Patient-Centered Strategies to Improve Positive Airway Pressure Adherence in Patients with Obstructive Sleep Apnea.

Authors:  Alexa J Watach; Dennis Hwang; Amy M Sawyer
Journal:  Patient Prefer Adherence       Date:  2021-07-12       Impact factor: 2.314

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