Literature DB >> 32431410

Reasonable Parental and Medical Obligations in Pediatric Extraordinary Therapy.

Michal Pruski1,2, Nathan K Gamble3.   

Abstract

The English cases of Charlie Gard and Alfie Evans involved a conflict between the desires of their parents to preserve their children's lives and judgments of their medical teams in pursuit of clinically appropriate therapy. The treatment the children required was clearly extraordinary, including a wide array of advanced life-sustaining technological support. The cases exemplify a clash of worldviews rooted in different philosophies of life and medical care. The article highlights the differing perspectives on parental authority in medical care in England, Canada, and the United States. Furthermore, it proposes a solution that accommodates for both reasonable parental desires and professional medical opinion. This is achieved by looking at concepts of extraordinary therapy, best interest, reasonable parenthood and medical objections. Summary: In cases where a child's treatment involves extraordinary therapy, there is often a conflict of opinion between the medical team and the parents with regard to the best course of action. The assumption should be that responsible, caring parents make reasonable and acceptable decisions for the good of their children. Rather than focusing on making a hypothetical best interest judgment, courts should in the first instance side with the parents. Only when parents act unreasonably or malevolently should their wishes be overridden. This should not affect the medics' right to conscientiously object towards carrying out procedures that they deem to be medically unnecessary or harmful. © Catholic Medical Association 2019.

Entities:  

Keywords:  Care of dying minors; End-of-life care; Family; Minors/parental consent; Right to healthcare; Rights of conscience

Year:  2019        PMID: 32431410      PMCID: PMC6699046          DOI: 10.1177/0024363919849258

Source DB:  PubMed          Journal:  Linacre Q        ISSN: 0024-3639


  7 in total

1.  Gillick v West Norfolk and Wisbech Area Health Authority.

Authors: 
Journal:  All Engl Law Rep       Date:  1984 Nov 19-Dec 20 (date of decision)

2.  Address of John Paul II to the participants at the International Congress on "Life-sustaining treatments and the vegetative state: scientific advances and ethical dilemmas".

Authors:  Pope John Paul II
Journal:  Dolentium Hominum       Date:  2004

3.  Who Knows Best (Interests)? The Case of Charlie Gard.

Authors:  Emma Cave; Emma Nottingham
Journal:  Med Law Rev       Date:  2018-08-01       Impact factor: 1.267

4.  Mistakes and missed opportunities regarding cosmetic surgery and conscientious objection.

Authors:  Toni C Saad
Journal:  J Med Ethics       Date:  2017-04-24       Impact factor: 2.903

5.  Medico-legal issues for intensivists caring for children in a District General Hospital.

Authors:  Sian Griffiths; Christopher Danbury
Journal:  J Intensive Care Soc       Date:  2015-01-27

6.  Medical Assistance in Dying at a paediatric hospital.

Authors:  Carey DeMichelis; Randi Zlotnik Shaul; Adam Rapoport
Journal:  J Med Ethics       Date:  2018-09-21       Impact factor: 2.903

7.  Charlie Gard and the weight of parental rights to seek experimental treatment.

Authors:  Giles Birchley
Journal:  J Med Ethics       Date:  2018-05-17       Impact factor: 5.926

  7 in total
  2 in total

Review 1.  Should parents be asked to consent for life-saving paediatric interventions?

Authors:  Nathan K Gamble; Michal Pruski
Journal:  J Intensive Care Soc       Date:  2020-10-29

Review 2.  What does the best interests principle of the convention on the rights of the child mean for paediatric healthcare?

Authors:  Julian W März
Journal:  Eur J Pediatr       Date:  2022-09-09       Impact factor: 3.860

  2 in total

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