Damien Brennan1, Darren McCausland2, Mary Ann O'Donovan3, Jessica Eustace-Cook4, Philip McCallion5, Mary McCarron6. 1. School of Nursing and Midwifery, Trinity College, The University of Dublin, Dublin, Ireland. 2. Trinity Centre for Ageing and Intellectual Disability, Trinity College, The University of Dublin, Dublin, Ireland. 3. Intellectual Disability and Inclusion, School of Education, Trinity College, The University of Dublin, Dublin, Ireland. 4. Librarian (Library), Trinity College, The University of Dublin, Dublin, Ireland. 5. Temple School of Social Work, College of Public Health, Temple University, Philadelphia, PA, USA. 6. Ageing & Intellectual Disability, School of Nursing & Midwifery, Trinity College, The University of Dublin, Dublin, Ireland.
Abstract
BACKGROUND: People with intellectual disabilities are living longer, with family homes and family caregivers increasingly identified as a key support to this ageing population of people with intellectual disabilities. METHOD: This systematic review sets out existing evidence from empirically evaluated intervention studies of future care planning for adults with intellectual disability by family carers. RESULTS: This systematic review identified a scarcity of systematic approaches to future care planning for adults with intellectual disabilities and their family carers. However, evidence from the review suggests positive outcomes for families once they engage in a future planning process. CONCLUSIONS: Contemporary social policy orientation, which emphasizes reliance on families to provide care, along with an ageing population of people with intellectual disabilities, and diminishing caring capacity within family networks, suggests an urgent need for a more expansive research base that evaluates approaches to supporting adults with intellectual disabilities and their family carers to plan for their futures.
BACKGROUND:People with intellectual disabilities are living longer, with family homes and family caregivers increasingly identified as a key support to this ageing population of people with intellectual disabilities. METHOD: This systematic review sets out existing evidence from empirically evaluated intervention studies of future care planning for adults with intellectual disability by family carers. RESULTS: This systematic review identified a scarcity of systematic approaches to future care planning for adults with intellectual disabilities and their family carers. However, evidence from the review suggests positive outcomes for families once they engage in a future planning process. CONCLUSIONS: Contemporary social policy orientation, which emphasizes reliance on families to provide care, along with an ageing population of people with intellectual disabilities, and diminishing caring capacity within family networks, suggests an urgent need for a more expansive research base that evaluates approaches to supporting adults with intellectual disabilities and their family carers to plan for their futures.
Authors: Vanessa E Chicas; Caren Steinway; Jack Chen; Matthew C Schwartz; Charmaine Wright; Michelle Cornacchia; Thomas W Davis; John C Berens; Ilka Riddle; Jason F Woodward; Sophia Jan Journal: J Appl Res Intellect Disabil Date: 2022-03-11