Thomas Maribo1,2, Charlotte Maria Jensen3,4,5, Louise Sofia Madsen3,4, Charlotte Handberg3,6. 1. Department of Public Health, Faculty of Health, Aarhus University, Aarhus, Denmark. Thomas.maribo@rm.dk. 2. DEFACTUM, Central Denmark Region, Aarhus, Denmark. Thomas.maribo@rm.dk. 3. Department of Public Health, Faculty of Health, Aarhus University, Aarhus, Denmark. 4. DEFACTUM, Central Denmark Region, Aarhus, Denmark. 5. The Specialized Hospital for Polio and Accident Victims, Roedovre, Denmark. 6. National Rehabilitation Center for Neuromuscular Diseases, Aarhus, Denmark.
Abstract
STUDY DESIGN: Systematic review of qualitative studies. OBJECTIVE: To synthesise qualitative research exploring the experiences and perspectives of persons with spinal cord injury (SCI), relatives and health professionals concerning goal setting in SCI rehabilitation. METHODS: Five electronic databases were searched. A search strategy was constructed with key concepts identified using PICo (Population, phenomena of Interest and Context). Peer reviewed studies complying with the inclusion criteria were selected. Interpretive Description methodology guided analysis and synthesis of the findings. RESULTS: The search yielded 427 records. Of 12 full text studies assessed for eligibility, four were included describing goal setting in SCI rehabilitation from the perspective of persons with SCI and health professionals. Persons with SCI described a need for goal setting to be related to their everyday life, whereas the health professionals tended to use the hospital setting as their point of reference. Persons with SCI emphasised the importance of being self-directed and taking an active role in goal setting and rehabilitation. No studies presented the perspective of relatives. CONCLUSIONS: This review illuminates the divergence in the understanding of goal setting between persons with SCI and health professionals. Goal setting in SCI rehabilitation often directly reflects physical functioning goals set by the health professionals, which does not prepare persons with SCI for everyday life and emotional issues. There is lack of focus on goals addressing psychosocial components such as family issues and change of roles. A shared process with goal setting relevant to persons with SCI and their everyday life is needed.
STUDY DESIGN: Systematic review of qualitative studies. OBJECTIVE: To synthesise qualitative research exploring the experiences and perspectives of persons with spinal cord injury (SCI), relatives and health professionals concerning goal setting in SCI rehabilitation. METHODS: Five electronic databases were searched. A search strategy was constructed with key concepts identified using PICo (Population, phenomena of Interest and Context). Peer reviewed studies complying with the inclusion criteria were selected. Interpretive Description methodology guided analysis and synthesis of the findings. RESULTS: The search yielded 427 records. Of 12 full text studies assessed for eligibility, four were included describing goal setting in SCI rehabilitation from the perspective of persons with SCI and health professionals. Persons with SCI described a need for goal setting to be related to their everyday life, whereas the health professionals tended to use the hospital setting as their point of reference. Persons with SCI emphasised the importance of being self-directed and taking an active role in goal setting and rehabilitation. No studies presented the perspective of relatives. CONCLUSIONS: This review illuminates the divergence in the understanding of goal setting between persons with SCI and health professionals. Goal setting in SCI rehabilitation often directly reflects physical functioning goals set by the health professionals, which does not prepare persons with SCI for everyday life and emotional issues. There is lack of focus on goals addressing psychosocial components such as family issues and change of roles. A shared process with goal setting relevant to persons with SCI and their everyday life is needed.
Authors: Sander L Hitzig; Gaya Jeyathevan; Farnoosh Farahani; Vanessa K Noonan; Gary Linassi; François Routhier; Arif Jetha; Diana McCauley; S Mohammad Alavinia; Maryam Omidvar; B Catharine Craven Journal: J Spinal Cord Med Date: 2021 Impact factor: 1.985
Authors: Patricia Lampart; Livia Schäppi; Wolf Axel Langewitz; Sara Rubinelli; Diana Sigrist-Nix; Anke Scheel-Sailer Journal: Front Rehabil Sci Date: 2022-08-18
Authors: L Crawford; J Maxwell; H Colquhoun; S Kingsnorth; D Fehlings; S Zarshenas; S McFarland; Nora Fayed Journal: Clin Rehabil Date: 2022-08-25 Impact factor: 2.884