| Literature DB >> 32391247 |
Takondwa C Bakuwa1, Sonti Pilusa2, Gillian Saloojee3.
Abstract
BACKGROUND: Cerebral palsy (CP) is the most common and most complex disabling disorder in children. Newly qualified therapists are expected to manage CP despite feeling inexperienced and inadequately prepared. Short postgraduate practical training courses could potentially help bridge this readiness gap. However, the value of these short courses in addressing the knowledge and experience gap is unknown.Entities:
Keywords: South Africa; cerebral palsy management; continuing professional development; newly qualified therapists; short practical courses
Year: 2020 PMID: 32391247 PMCID: PMC7203206 DOI: 10.4102/ajod.v9i0.610
Source DB: PubMed Journal: Afr J Disabil ISSN: 2223-9170
Profile of participants who attended the course.
| Variable | Number ( | Percentage |
|---|---|---|
| Occupational therapy | 91 | 56 |
| Physiotherapy | 47 | 29 |
| Speech therapy | 25 | 15 |
| < 1 year | 111 | 68 |
| 2 years | 31 | 19 |
| 3 years | 10 | 6 |
| 4 years | 11 | 7 |
| University of Cape Town | 32 | 20 |
| University of KwaZulu-Natal | 32 | 20 |
| University of Stellenbosch | 31 | 19 |
| University of the Free State | 22 | 13 |
| University of Pretoria | 18 | 11 |
| University of the Western Cape | 15 | 9 |
| University of the Witwatersrand | 8 | 5 |
| Sefako Makgatho University | 5 | 3 |
| KwaZulu-Natal | 58 | 36 |
| Eastern Cape | 46 | 28 |
| Mpumalanga | 18 | 11 |
| Gauteng | 15 | 9 |
| Free State | 9 | 6 |
| Northern Cape | 7 | 4 |
| North West | 5 | 3 |
| Western Cape | 3 | 2 |
| Not working yet | 2 | 1 |
| Limpopo | 0 | 0 |
Participants’ expectations of the course.
| Category | Code | Quote | |
|---|---|---|---|
| Course exceeded participants’ expectations | Experiential and practical | 48 | ‘Yes, the course exceeded my expectations! I expected to be taught a bit and have practical sessions but I did not expect such collaboration between lectures and practicals which really emphasized the concepts’. (Participant 22) |
| Interprofessional experience | 37 | ‘Yes, this course exceeded my expectations, since it wasn’t only focused on OT – treatment; I now feel more confident in areas that are more relevant to other professions (e.g. speech therapy) and will be able to treat these aspects since speech therapists are not available in our area’. (Participant 110) | |
| Course met participants’ expectations | Applicable and appropriate | 41 | ‘Yes, the course was very informative and covered a wide range of topics that was applicable to my profession as an occupational therapist. I actually learned about so much more that what I was thought I would’. (Participant 56) |
| Informative and comprehensive | 34 | ‘Yes, it has met my expectations because I have learnt everything I thought I need to know when working with CP children. I learned much more’. (Participant 7) | |
| Well-structured and organised | 14 | ‘Yes. I found the course to be very well organised and run efficiently with very knowledgeable experienced therapists running it. The structure of the course is also impressive. I love the fact that the care givers are being trained on the same information. Brilliant!’ (Participant 58) | |
| Mixed feelings | Practice time not adequate | 1 | ‘In a way yes, in a way no. I came with the hope that I would be able to more effectively treat my CP kiddies. (Which in essence I have learnt a lot), but in the context of my hospital and clinics it hasn’t helped as much as I thought it would. Ideally, I would love to be able to spend 30 min preparing the child’s body but that would practically take too long’. (Participant 11) |
| Course did not meet participants’ expectations | Less relevant to speech therapy | 1 | ‘No. I thought the course was more physio[therapy] and OT oriented. As a speech therapist I mostly did not feel I played a big role or had my expertise maximized; topics covered were mostly related to physio[therapy] and OT’. (Participant 14) |
| Speech therapy topics not covered adequately | 2 | ‘No. I came on the course looking for more information on communication intervention. I thought this would be covered. The information covered in the communication lecture was not sufficient as it was everything that I already knew. I paid a lot of money to come on the course which was aimed on OTs/PTs only’. (Participant 70) |
n, denotes the number of quotes associated with the code. OT, occupational therapy; PTs, physiotherapy or physiotherapists.
Participants’ self-perceived change in level of knowledge about cerebral palsy.
| Category | Number | Score before course | Score after course | Score difference | ||||
|---|---|---|---|---|---|---|---|---|
| Mean | s.d | Mean | s.d | Mean | s.d | |||
| Assessment | 130 | 9.33 | 4.28 | 23.98 | 2.99 | 14.65 | 4.71 | 0.00 |
| Treatment | 130 | 5.55 | 2.88 | 16.16 | 2.12 | 10.61 | 3.28 | 0.00 |
| Play and communication | 131 | 17.58 | 9.59 | 41.92 | 4.79 | 24.32 | 8.81 | 0.00 |
| Management | 129 | 9.19 | 4.41 | 22.94 | 3.19 | 13.75 | 4.59 | 0.00 |
| Cerebral visual impairment | 131 | 3.95 | 3.40 | 15.69 | 2.39 | 11.75 | 3.79 | 0.00 |
s.d., standard deviation.
Participants’ self-perceived change in attitude and perception towards children with cerebral palsy.
| Category | Code | Quote | |
|---|---|---|---|
| Before I used to… | Now I will… | ||
| Confidence in CP management | ‘Feel overwhelmed and incompetent as soon as a child with CP came. I used to doubt myself and felt was not doing enough’. (Participant 2) | ‘Be confident with CP and just remember that a child with CP is just a child’. (Participant 2) | |
| ‘Worry about seeing a child with CP and feel nervous and unconfident when treating them’. (Participant 113) | ‘Be calm and collected and have purposeful treatment using the principles of handling that I have learnt in this course!’. (Participant 113) | ||
| Positive reception of children with CP | ‘Be scared of children with CP and therefore cringe when they were referred. I always felt like I should know more but I didn’t’. (Participant 38) | ‘Enthusiastically wait to discover what the child wants me to learn about him or her and how I can help them’. (Participant 38) | |
| ‘Go into panic mode every time I saw a child with CP. Assessment and treatment were nightmares for me’. (Participant 42) | ‘Feel excited when a CP kid arrives for therapy …confidently greet and smile at the child and caregiver’. (Participant 42) | ||
| Empathy for caregiver | ‘Jump to conclusions about what the caregivers were doing right/wrong and tell them what to do instead of looking at the whole picture and understanding why the caregiver does things the way that she does’. (Participant 93) | ‘Use knowledge, the mom’s experience and the child’s potential to achieve functional, realistic goals … and also put myself in the shoes of those who have to care for this child and take into account the immense challenges they face. With understanding I hope to be a better therapist’. (Participant 93) | |
| ‘Judge moms and carers, even previous therapists for not doing things right without caring’. (Participant 60) | ‘Be patient and supportive to parents and listen to them more’. (Participant 60) | ||
| Seeing possibilities in a child | ‘…[ | ‘…[ | |
| ‘Simply do passive treatments, underestimate potential, do poor groups, teach irrelevant stuff and never touch Cerebral Visual Impairment’. (Participant 31) | ‘Look forward to treat CP, talk a lot more with the children and give them time to respond. Now I know there are endless possibilities’. (Participant 31) | ||
| Understanding the child’s needs | ‘Start to treat the child before knowing exactly all the problems and difficulties the child has, positioning of children wasn’t effective and passive stretching’. (Participant 37) | ‘Assess and observe the child before treating, position [ | |
| ‘Box all children with CP and think that all children with CP have somewhat cognitive involvement and would not have a good choice making concept’. (Participant 13) | ‘…[ | ||
CP, cerebral palsy.
Participants’ self-perceived change in clinical practice intention regarding cerebral palsy management.
| Subcategory | Code | Quote | |
|---|---|---|---|
| Before I used to… | Now I will… | ||
| Thorough assessment and classification | ‘Speed through the assessment and not spend time observing the child before getting hands on’. (Participant 6) | ‘Slow down [ | |
| ‘Just quickly assess the child and not classify them accordingly and mostly not classify them at all’. (Participant 119) | ‘Use the classification systems to help understand my child and plan treatment better and also assess the child more thoroughly and note associated impairments’. (Participant 119) | ||
| Holistic approach | ‘Rush assessment and only concentrate on physio issues more, talk to parent/carers as if I always knew more based on training’. (Participant 102) | ‘Assess my patient in a more holistic and organised manner with a more methodical guideline and communicate with the speech therapist and occupational therapist more’. (Participant 102) | |
| ‘Have a speech therapy approach, using treatment techniques that fall in my scope of practice and mainly manage CP at impairment level’. (Participant 97) | ‘Look at all aspects that affect the child’s life and treat them in a holistic manner. I will work in an MDT and communicate more with the OT and PT’. (Participant 97) | ||
| Individualised therapy | ‘To think that all children with CP have somewhat cognitive involvement and would not have a good choice making concept’. (Participant 22) | ‘Adapt treatment to the child and offer more choice making and opportunities for the child to communicate’. (Participant 22) | |
| ‘Box all children with CP and give the same advice to all moms’. (Participant 66) | ‘Use knowledge, the mom’s experience and the child’s potential to achieve functional, realistic goals. Watch, wait and wonder in order to really see what a child can do’. (Participant 66) | ||
| Goal directedness | ‘I did not know how to comprehensively assess a child with CP in order to be able to determine priority treatment goals’. (Participant 84) | ‘Use knowledge, the mom’s experience and the child’s potential to achieve functional, realistic goals’. (Participant 84) | |
| ‘Have difficulty setting appropriate goals. I had no direction in treatment and certainly did not consider the fact that CP was a way of life’. (Participant 24) | ‘Thoroughly assess each child and determine their classification. Based on that, determine sufficiently handling principles and set up goals with the parents. Plan treatment so that it can become a way of life and be continued every day at home for the rest of the lives, thus focus on caregiver involvement’. (Participant 24) | ||
| Child engagement | ‘…[ | ‘I will give the child opportunity…and allow the CP children to play and engage with the environment (increase play)’. (Participant 16) | |
| ‘Only speak to the mom and rarely the child. I used to think that all children with CP have somewhat cognitive involvement and would not have a good choice making concept’. (Participant 20) | ‘Adapt treatment to the child and offer more choice making and opportunities for the child to communicate’. (Participant 20) | ||
| Creative use and making of assistive devices | ‘Have no idea what to suggest to moms for them to use home as equipment as they are in such poor settings’. (Participant 14) | ‘…[ | |
| ‘…[ | ‘I will definitely recommend it to my friends and make my own resources based on the information attained’. (Participant 20) | ||
| Empowerment through education | ‘Underestimate what children with CP can do and not always focus enough on parent education’. (Participant 86) | ‘Treat CP as a way of life – ADL!! … let the caregiver interact with the child and run groups and so educate and empower caregiver’. (Participant 86) | |
| ‘Not want to recommend anything to a Mom since I felt they handled their child best’. (Participant 45) | ‘Really see potential in these kiddies, make parent education a large part of my treatment program’. (Participant 45) | ||
| Collaboration with the mother | ‘Feel hopeless and useless in my attempts to help mothers and could not assist in feeding’. (Participant 66) | ‘Involve the mothers and carers more, ask their advice and include them more in decision-making so as to be able to handle CP in the best way possible, using the parent as the biggest team member in therapy’. (Participant 66) | |
| ‘Never involve the moms and not train them better to understand their child and manage well at home’. (Participant 118) | ‘Organise groups and attempt carer to carer training for continuation of groups in areas where we struggle to reach’. (Participant 118) | ||
| Improve record-keeping | ‘Not have a good guideline for treatment and assessment. I would just use drips and drabs of information and apply it randomly’. (Participant 6) | ‘Try standardise our CP assessment forms and work out an efficient CP database so [ | |
| Efficient use of available resources | ‘Have no idea what to suggest to moms for them to use home as equipment as they are in such poor settings’. (Participant 39) | ‘…[ | |
| ‘Just think there are no toys and resources and equipment’. (Participant 20) | ‘Do better group therapies to maximise use of the little time and equipment available’. (Participant 20) | ||
| Home rehabilitation | ‘Forget about the future and focus on a thing that cannot be necessarily changed’. (Participant 82) | ‘Look more holistically, include caregiver much more and empower them. I will think about the future and 24-hour management’. (Participant 82) | |
| ‘Briefly assess highest functional level and find missing component, treat the impairment like a robot without thinking about handling, future, communication or effectiveness of what I was doing in relation to reality for that patient, i.e. only coming to therapy once a month’. (Participant 91) | ‘Organise groups and attempt carer to carer training for continuation of groups in areas where we struggle to reach’. (Participant 91) | ||
| Social environment to inform intervention | ‘… [ | ‘…[ | |
CP, cerebral palsy; OT, occupational therapist; ADL, activities of daily living; MDT, multi-disciplinary team; PT, physiotherapy.
Elements identified by participants as essential components of the course.
| Subcategory | Code | Quote |
|---|---|---|
| Practical application of theory | ‘The structure of the course – being able to hear the theory, see photos of case examples, work with a mother and child and then discuss therapy sessions – helped me think through problems. CP as a way of life really brought everything together for me’. (Participant 18) | |
| ‘Getting hands-on experience working with a child and CP and to start developing handling techniques’. (Participant 11) | ||
| Working with an actual child | ‘The large amount of clinical practicals and continuous involvement with the same child really allowed me to learn better’. (Participant 106) | |
| ‘Having hands-on time with actual children with CP and building relationships with the child and mother really helped me a lot’. (Participant 92) | ||
| Involvement of a caregiver | ‘I loved having a variety of aspects covered during the course, the videos, and having the caregivers and mothers with us during the sessions’. (Participant 80) | |
| ‘I really enjoyed the fact that the mothers/caregivers were also trained at the same time and thus did not just receive information from us but from a trained caregiver’. (Participant 23) | ||
| Constant feedback | ‘Practical experience; well-organised theory notes for reference, lots of feedback from all participants and experience with a variety of different children, diagnoses and levels of functioning stood out for me’. (Participant 61) | |
| ‘The group discussions and feedback on everything, the individual practical groups on each topic covered, the supervision and freedom to ask questions made the course a great experience’. (Participant 87) | ||
| Demonstrations by experts | ‘All the standardised classification tools, the hip surveillance information and hands-on practical demonstrations; so helpful to watch and learn from skilled specialised therapists’. (Participant 54) | |
| ‘Practical experience/sessions and handling. Theory on subtypes, hands-on approach of supervisors when helping during the prac sessions. I learned a lot being able to watch how Gillian/Lindy handled the child’. (Participant 48) | ||
| Sharing amongst peers | ‘The process of working with a child throughout the course as this was like a crash course in what the assessment and treatment planning phases in a CP child would likely involve. The sharing between participants allowed for exposure to a variety of CP children’. (Participant 33) | |
| ‘Working with participants from other disciplines really allowed exchange of knowledge and skills, I appreciated more things that I never used to pay attention to’. (Participant 7) | ||
| Comfortable environment | ‘The openness and freedom to engage with the Malamulele members and ask questions… It was also really helpful to have a facilitator and someone to ask questions. It was very nice how we didn’t feel any question was stupid’. (Participant 60) | |
| ‘It was amazing to learn from the team and share ideas in a comfortable environment and get feedback and guidance’. (Participant 19) | ||
| Presenters perceived as experts in the field | ‘All the standardised classification tools, the hip surveillance information and hands-on practical demonstrations; so helpful to watch and learn from skilled specialised therapists’. (Participant 54) | |
| ‘I loved the practice sessions. It was amazing to apply the theory and to also learn from the experts in the Malamulele therapy team! To be able to share ideas in a comfort environment and get feedback and guidance’. (Participant 11) | ||
| Mixed therapists allowed peer learning and sharing | ‘…I liked that we had mixed therapists to have range of ideas and skills, holistic approach and education. Theory, then practical, then feedback. It was amazing to learn from the team and share ideas’. (Participant 82) | |
| ‘It was helpful to work with other disciplines, along with using the different methods of learning: pracs, videos, lectures, group discussions’. (Participant 72) | ||
| The different disciplines gave holistic view | ‘I found the holistic view of the course most useful. Instead of just learning about speech therapy-related assessment and treatment, I was exposed to positioning, fine and gross motor assessment and management relating to OTs and PTs which are still relevant, if I were handling a CP child of my own’. (Participant 12) | |
| ‘…I liked that we had mixed therapists to have range of ideas and skills, holistic approach and education’. (Participant 4) | ||
| Classification of CP | ‘I learned the importance of assessing and classifying a child with CP the correct way and also learned how to do this; it is great to now be able to use this to guide my treatment to ensure better functionality’. (Participant 3) | |
| ‘I appreciated learning how to classify a child with CP, make equipment especially for your child, feeding and learning about the sensory stimulation box. Seeing all the different videos of the various classifications. All the practical demonstrations’. (Participant 27) | ||
| Cerebral visual impairment | ‘I did not have any practical exposure at my university in CP. Before the course I thought CVI stood for Cerebral Vascular Infarct. The course was informative and since it was rural based, it will make the skills that I have learnt very useful and applicable to us in the rural setting’. (Participant 44) | |
| ‘I really liked gaining skills which I previously thought had to remain in specific disciplines, e.g., CVI, feeding and sensory stimulation’. (Participant 54) | ||
| Preparation of the child | ‘I found the loosening and preparation techniques useful as I didn’t know them before’. (Participant 71) | |
| ‘I have learnt methods of preparation which will make it easier for me to cast for splints, also the importance of the bond between mother and child’. (Participant 111) | ||
| The concept of looking at CP as a way of life | ‘I found it eye-opening to realise that CP is a way of life and everyday activity is a part of treatment and management’. (Participant 12) | |
| ‘Looking at CP as a way of life really brought everything together for me’. (Participant 31) | ||
| Assistive devices and equipment | ‘The practical techniques in feeding and different communication tools and the making of low-cost equipment and toys’. (Participant 9) | |
| ‘Learning about classifications of CP… making assistive devices from cardboard Wow! The practicals on devices were useful’. (Participant 66) | ||
| Postural management | ‘I found the information on postural management and handling most useful as our skills at university did not cover this well but it was good to recap on everything’. (Participant 11) | |
| ‘I loved postural management and handling of the children. It changed my view on the condition’. (Participant 82) | ||
| Communication and feeding | ‘All the topics that were covered were very useful to me. But especially the communication, feeding, posture and vision. I could relate to them easily’. (Participant 67) | |
| ‘I loved everything, mostly the fact that we were taught how to communicate with children and to be able to classify them accordingly’. (Participant 8) | ||
| Physical handling | ‘… [P]hysical handling of CP children, warm up, how to take therapy to a home environment and incorporating CP as a “way of life,” stretching, massage, learning how to do trunk and limbs, observing Kabi’s session on play and learning about seating and how to use objects like buckets and basins to position children’. (Participant 41) | |
| ‘Lectures on diagnosing CP and the subtypes, the principles of handling which is the first and foremost treatment and efficient intervention. Realising the uniqueness of every child and not to be too quick in putting the child in a clinical box’. (Participant 21) |
CVI, cerebral vascular infarct; CP, cerebral palsy; PT, physiotherapy or physiotherapist OT, occupational therapy; prac, practical.
| Topic | After the training course |
|---|---|
| Understanding what CP is | 1 2 3 4 5 6 7 8 9 10 |
| How to assess a child with CP | 1 2 3 4 5 6 7 8 9 10 |
| How to set goals in treatment | 1 2 3 4 5 6 7 8 9 10 |
| How to classify a child with CP | 1 2 3 4 5 6 7 8 9 10 |
| How to treat a child who is stiff | 1 2 3 4 5 6 7 8 9 10 |
| How to treat a child who moves too much (dyskinetic) | 1 2 3 4 5 6 7 8 9 10 |
| How to make equipment for child with CP | 1 2 3 4 5 6 7 8 9 10 |
| How to play with a child with CP | 1 2 3 4 5 6 7 8 9 10 |
| Knowing what kind of toys are best for a child with CP | 1 2 3 4 5 6 7 8 9 10 |
| Understanding parents’ feelings | 1 2 3 4 5 6 7 8 9 10 |
| How to design a home programme | 1 2 3 4 5 6 7 8 9 10 |
| What to do on a home visit | 1 2 3 4 5 6 7 8 9 10 |
| Knowing how to recognise that a child has CVI | 1 2 3 4 5 6 7 8 9 10 |
| Ideas for how I can help a child with CVI | 1 2 3 4 5 6 7 8 9 10 |
| Understanding what is communication | 1 2 3 4 5 6 7 8 9 10 |
| Understanding the different ways children with CP may communicate | 1 2 3 4 5 6 7 8 9 10 |
| Ideas to help children with to understand and talk better | 1 2 3 4 5 6 7 8 9 10 |
CP, cerebral palsy; CVI, cerebral vascular infarct.