Jong Cheol Jeong1, Kenji Yuzawa2, Sunil Shroff3, Romina Danguilan4, Tai Yeon Koo5, Khin Thida Thwin6, Od-Erdene Lkhaakhuu7, Jaeseok Yang5, Myoung Soo Kim8, Curie Ahn9, Han Ro10. 1. Department of Internal Medicine, Seoul National University Bundang Hospital, Seongnam, Republic of Korea. 2. Department of Transplant Surgery, Mito Medical Center, Mito, Japan. 3. Registry of Indian Society of Organ Transplantation, Chennai, India. 4. Dialysis Center, National Kidney and Transplant Institute, Philippines. 5. Transplantation Center, Seoul National University Hospital, Seoul, Republic of Korea. 6. Department of Renal Medicine, University of Medicine, Yangon, Myanmar. 7. Organ Transplantation Center, First Central Hospital of Mongolia, Ulanbaatar, Mongolia. 8. Department of Transplant Surgery, Severance Hospital, Yonsei University College of Medicine, Seoul, Republic of Korea. 9. Department of Internal Medicine, Seoul National University Hospital, Seoul National University College of Medicine, Seoul, Republic of Korea. 10. Department of Internal Medicine, Gachon University Gil Medical Center, Incheon, Republic of Korea. Electronic address: godad@gilhospital.com.
Abstract
INTRODUCTION: In the Asian region, no international organ transplantation registry exists. Individual centers maintain their own database, or some countries developed a national registration system. To promote collaboration among Asian transplantation societies, the Asian Society of Transplantation (AST) has developed an international transplantation registry for the Asian countries that has been named as the Asian Society Transplant Registry (ASTREG). METHODS: In 2017, the AST council formed a registry committee to develop 2 kinds of databases: ASTREG-N (nationwide level), which collects yearly aggregated data of participating countries, and ASTREG-H (hospital level), which collects the data of transplant recipients and donors from individual centers. RESULTS: ASTREG-N collects each country's aggregate data of solid-organ transplantation, such as the total number of transplantations and deceased donors. ASTREG-H collects 5 transplant domains, namely recipient baseline characteristics, immunosuppression, post-transplant event, annual post-transplant evaluation, and donor traits. For the ASTREG-H project, South Korea, Philippines, Mongolia, and Myanmar are the current participants. A web-based secure data entry platform with real-time data visualization and automated data verification systems is currently available. Any participating centers can run this platform as their own data collection system. CONCLUSION: The ASTREG is a collaborative project that will be the representative solid-organ transplantation database in the Asian region. It can aid in the harmonization of transplantation data in the Asian region.
INTRODUCTION: In the Asian region, no international organ transplantation registry exists. Individual centers maintain their own database, or some countries developed a national registration system. To promote collaboration among Asian transplantation societies, the Asian Society of Transplantation (AST) has developed an international transplantation registry for the Asian countries that has been named as the Asian Society Transplant Registry (ASTREG). METHODS: In 2017, the AST council formed a registry committee to develop 2 kinds of databases: ASTREG-N (nationwide level), which collects yearly aggregated data of participating countries, and ASTREG-H (hospital level), which collects the data of transplant recipients and donors from individual centers. RESULTS:ASTREG-N collects each country's aggregate data of solid-organ transplantation, such as the total number of transplantations and deceased donors. ASTREG-H collects 5 transplant domains, namely recipient baseline characteristics, immunosuppression, post-transplant event, annual post-transplant evaluation, and donor traits. For the ASTREG-H project, South Korea, Philippines, Mongolia, and Myanmar are the current participants. A web-based secure data entry platform with real-time data visualization and automated data verification systems is currently available. Any participating centers can run this platform as their own data collection system. CONCLUSION: The ASTREG is a collaborative project that will be the representative solid-organ transplantation database in the Asian region. It can aid in the harmonization of transplantation data in the Asian region.