| Literature DB >> 32352344 |
Anne Hogden1, Camille Paynter2, Karen Hutchinson3.
Abstract
This perspectives paper discusses patient-centered care for people living with motor neuron disease. We identify challenges and offer solutions from the patient-centered care literature for this population in frontline care, service delivery, research and health system organization. Examples from Australian and international motor neuron disease care are used to illustrate interrelated issues for practice and policy.Entities:
Keywords: amyotrophic lateral sclerosis; co-design; guidelines; patient and public involvement; patient engagement; policy; shared decision-making
Mesh:
Year: 2020 PMID: 32352344 DOI: 10.2217/nmt-2019-0031
Source DB: PubMed Journal: Neurodegener Dis Manag ISSN: 1758-2024