Literature DB >> 32352344

How can we improve patient-centered care of motor neuron disease?

Anne Hogden1, Camille Paynter2, Karen Hutchinson3.   

Abstract

This perspectives paper discusses patient-centered care for people living with motor neuron disease. We identify challenges and offer solutions from the patient-centered care literature for this population in frontline care, service delivery, research and health system organization. Examples from Australian and international motor neuron disease care are used to illustrate interrelated issues for practice and policy.

Entities:  

Keywords:  amyotrophic lateral sclerosis; co-design; guidelines; patient and public involvement; patient engagement; policy; shared decision-making

Mesh:

Year:  2020        PMID: 32352344     DOI: 10.2217/nmt-2019-0031

Source DB:  PubMed          Journal:  Neurodegener Dis Manag        ISSN: 1758-2024


  1 in total

1.  Why and how the work of Motor Neurone Disease Associations matters before and during bereavement: a consumer perspective.

Authors:  Samar M Aoun; Paul A Cafarella; Anne Hogden; Geoff Thomas; Leanne Jiang; Robert Edis
Journal:  Palliat Care Soc Pract       Date:  2021-04-22
  1 in total

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