Literature DB >> 32342743

Data Sharing in the Context of Health-Related Citizen Science.

Mary A Majumder1, Amy L McGuire1.   

Abstract

As citizen science expands, questions arise regarding the applicability of norms and policies created in the context of conventional science. This article focuses on data sharing in the conduct of health-related citizen science, asking whether citizen scientists have obligations to share data and publish findings on par with the obligations of professional scientists. We conclude that there are good reasons for supporting citizen scientists in sharing data and publishing findings, and we applaud recent efforts to facilitate data sharing. At the same time, we believe it is problematic to treat data sharing and publication as ethical requirements for citizen scientists, especially where there is the potential for burden and harm without compensating benefit.

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Year:  2020        PMID: 32342743     DOI: 10.1177/1073110520917044

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN: 1073-1105            Impact factor:   1.604


  2 in total

Review 1.  Emerging digital technologies in cancer treatment, prevention, and control.

Authors:  Bradford W Hesse; Dominika Kwasnicka; David K Ahern
Journal:  Transl Behav Med       Date:  2021-11-30       Impact factor: 3.626

2.  Development of Privacy Features on Anecdata.org, a Free Citizen Science Platform for Collecting Datasets for Climate Change and Related Projects.

Authors:  Cait Bailey; Anna Farrell; Turam Purty; Ashley Taylor; Jane Disney
Journal:  Front Clim       Date:  2021-04-30
  2 in total

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