Literature DB >> 32274589

"I'm just a long history of people rejecting referrals" experiences of young people who fell through the gap between child and adult mental health services.

Rebecca Appleton1, Farah Elahi2, Helena Tuomainen2, Alastair Canaway2, Swaran P Singh2.   

Abstract

The paediatric-adult split in mental health care necessitates young people to make a transition between services when they reach the upper end of child and adolescent mental health services (CAMHS). However, we know that this transition is often poor, and not all young people who require ongoing support are able to continue care in adult mental health services (AMHS). These young people are said to have fallen through the gap between services. This research aimed to explore the reasons why young people fall through the gap between CAMHS and AMHS, and what effect this has had on them and their families. Narrative interviews were conducted with 15 young people and 15 parents, representing 19 unique transition stories. Themes were identified collaboratively using thematic analysis. Reasons for falling through the gap were grouped into systemic problems and problems with the quality of care received. Effects of falling through the gap were grouped into separate themes for young people (feeling abandoned; struggling to manage without continued care; problems with medication) and parents (emotional impact of care ending; parents taking an active role in the young person's care). To our knowledge, this is the first qualitative study that has focused only on the experiences of young people who have fallen through the gap between services. This research adds novel findings to existing literature regarding barriers to transition and the effects of discontinuity of care.

Entities:  

Keywords:  AMHS; CAMHS; Narrative research; Qualitative research; Transition

Mesh:

Year:  2020        PMID: 32274589     DOI: 10.1007/s00787-020-01526-3

Source DB:  PubMed          Journal:  Eur Child Adolesc Psychiatry        ISSN: 1018-8827            Impact factor:   4.785


  1 in total

1.  Managing transition with support: experiences of transition from child and adolescent psychiatry to general adult psychiatry narrated by young adults and relatives.

Authors:  Eva Lindgren; Siv Söderberg; Lisa Skär
Journal:  Psychiatry J       Date:  2014-01-20
  1 in total
  7 in total

1.  Perspectives of young people who access support for mental health in primary care: a systematic review of their experiences and needs.

Authors:  Rebecca Appleton; Julia Gauly; Faraz Mughal; Swaran P Singh; Helena Tuomainen
Journal:  Br J Gen Pract       Date:  2022-02-24       Impact factor: 5.386

2.  In transition with attention deficit hyperactivity disorder (ADHD): children's services clinicians' perspectives on the role of information in healthcare transitions for young people with ADHD.

Authors:  Anna Price; Siobhan Mitchell; Astrid Janssens; Helen Eke; Tamsin Ford; Tamsin Newlove-Delgado
Journal:  BMC Psychiatry       Date:  2022-04-09       Impact factor: 3.630

3.  'You're on the waiting list': An interpretive phenomenological analysis of young adults' experiences of waiting lists within mental health services in the UK.

Authors:  Georgia Punton; Alyson L Dodd; Andrew McNeill
Journal:  PLoS One       Date:  2022-03-18       Impact factor: 3.240

4.  Young people who have fallen through the mental health transition gap: a qualitative study on primary care support.

Authors:  Rebecca Appleton; Joelle Loew; Faraz Mughal
Journal:  Br J Gen Pract       Date:  2022-05-26       Impact factor: 6.302

5.  Demographic, clinical, and service-use characteristics related to the clinician's recommendation to transition from child to adult mental health services.

Authors:  S E Gerritsen; L S van Bodegom; G C Dieleman; M M Overbeek; F C Verhulst; D Wolke; D Rizopoulos; R Appleton; T A M J van Amelsvoort; C Bodier Rethore; F Bonnet-Brilhault; I Charvin; D Da Fonseca; N Davidović; K Dodig-Ćurković; A Ferrari; F Fiori; T Franić; C Gatherer; G de Girolamo; N Heaney; G Hendrickx; R Jardri; A Kolozsvari; H Lida-Pulik; K Lievesley; J Madan; M Mastroianni; V Maurice; F McNicholas; R Nacinovich; A Parenti; M Paul; D Purper-Ouakil; L Rivolta; V de Roeck; F Russet; M C Saam; I Sagar-Ouriaghli; P J Santosh; A Sartor; U M E Schulze; P Scocco; G Signorini; S P Singh; J Singh; M Speranza; P Stagi; P Stagni; C Street; P Tah; E Tanase; S Tremmery; A Tuffrey; H Tuomainen; L Walker; A Wilson; A Maras
Journal:  Soc Psychiatry Psychiatr Epidemiol       Date:  2022-02-10       Impact factor: 4.519

6.  Attitudes toward innovative mental health treatment approaches in Germany: E-mental health and home treatment.

Authors:  Lena Lincke; Lisa Ulbrich; Olaf Reis; Elisa Wandinger; Elmar Brähler; Alexander Dück; Michael Kölch
Journal:  Front Psychiatry       Date:  2022-07-15       Impact factor: 5.435

7.  New models of care in general practice for the youth mental health transition boundary.

Authors:  Rebecca Appleton; Faraz Mughal; Domenico Giacco; Helena Tuomainen; Catherine Winsper; Swaran P Singh
Journal:  BJGP Open       Date:  2020-12-15
  7 in total

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