Literature DB >> 32268986

Counselling for prenatal anomaly screening-A plea for integration of existential life questions.

Christina Prinds1, Janneke Gitsels-van der Wal2, Neeltje Crombag3, Linda Martin4.   

Abstract

The availability in many countries of new prenatal anomaly screening methods, such as the non-invasive prenatal test (NIPT), and the potential broadening of testing for genetic conditions, creates an ongoing debate about the accompanying existential dilemmas at both societal level and for individual new parents. In many countries, the main goal of counselling for prenatal anomaly screening is to facilitate the reproductive decision-making process of future parents. Therefore, counsellors share information to enable a woman and her partner to think about the pros and cons of participating in screening, try to clarify possible moral dilemmas, and dwell on existential life questions. In line with the CanMEDS framework, healthcare professionals must combine the role of communicator (providing health education) with that of professional (by recognising and responding to existential life questions while facilitating decision-making). This is not easy but it is essential for providing balanced counselling. At present, counselling tends to be sufficient regarding health education, whereas guidance in decision-making, including attention for existential life questions and philosophy of life, offers room for improvement. In this paper, we suggest slowing down and turning the traditional prenatal counselling encounter upside down by starting as a counselling professional instead of a healthcare information sharing communicator and thus making the story of the woman and her partner, within their societal context, the starting point and the basis of the counselling encounter.
Copyright © 2020 Elsevier B.V. All rights reserved.

Entities:  

Keywords:  Counsellor; Decision-making; Existential; Life questions; Prenatal; Screening

Year:  2020        PMID: 32268986     DOI: 10.1016/j.pec.2020.03.025

Source DB:  PubMed          Journal:  Patient Educ Couns        ISSN: 0738-3991


  3 in total

1.  Nationwide implementation of the non-invasive prenatal test: Evaluation of a blended learning program for counselors.

Authors:  Linda Martin; Janneke T Gitsels-van der Wal; Caroline J Bax; Mijntje J Pieters; Jacqueline C I Y Reijerink-Verheij; Robert-Jan Galjaard; Lidewij Henneman
Journal:  PLoS One       Date:  2022-05-02       Impact factor: 3.752

2.  Counselling for prenatal anomaly screening to migrant women in the Netherlands: An interview study of primary care midwives' perceived barriers with client-midwife communication.

Authors:  Isabel Koopmanschap; Linda Martin; Janneke T Gitsels-van der Wal; Jeanine Suurmond
Journal:  Eur J Midwifery       Date:  2022-05-19

3.  False-positives and false-negatives in non-invasive prenatal testing (NIPT): what can we learn from a meta-analyses on > 750,000 tests?

Authors:  Thomas Liehr
Journal:  Mol Cytogenet       Date:  2022-08-19       Impact factor: 1.904

  3 in total

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