| Literature DB >> 32265759 |
Felicity L Brown1,2, May Aoun3, Karine Taha3, Frederik Steen1, Pernille Hansen4, Martha Bird4, Katie S Dawson5, Sarah Watts6, Rabih El Chammay7,8, Marit Sijbrandij9, Aiysha Malik10, Mark J D Jordans1,2.
Abstract
Armed conflict leads to increased risk of emotional distress among children and adolescents, and increased exposure to significant daily stressors such as poverty and community and family violence. Unfortunately, these increased risks usually occur in the context of largely unavailable mental health services. There is growing empirical support that evidence-based treatment techniques can be adapted and delivered by non-specialists with high fidelity and effectiveness. However, in order to improve feasibility, applicability, and outcomes, appropriate cultural and contextual adaptation is essential when delivering in different settings and cultures. This paper reports the adaptation process conducted on a new World Health Organization psychological intervention-Early Adolescent Skills for Emotions (EASE)-for use in the north of Lebanon. Lebanon is a middle-income country that hosts the largest number of refugees per capita globally. We conducted: i) a scoping review of literature on mental health in Lebanon, with a focus on Syrian refugees; ii) a rapid qualitative assessment with adolescents, caregivers, community members, and health professionals; iii) cognitive interviews regarding the applicability of EASE materials; iv) a psychologist review to reach optimal and consistent Arabic translation of key terms; v) "mock sessions" of the intervention with field staff and clinical psychology experts; vi) gathering feedback from the Training of Trainers workshop, and subsequent implementation of practice sessions; and vii) gathering feedback from the Training of Facilitators workshop, and subsequent implementation of practice sessions. Several changes were implemented to the materials-some were Lebanon-specific cultural adaptations, while others were incorporated into original materials as they were considered relevant for all contexts of adversity. Overall, our experience with adaptation of the EASE program in Lebanon is promising and indicates the acceptability and feasibility of a brief, non-specialist delivered intervention for adolescents and caregivers. The study informs the wider field of global mental health in terms of opportunities and challenges of adapting and implementing low-intensity psychological interventions in settings of low resources and high adversity.Entities:
Keywords: adolescents; armed conflict; cultural adaptation; humanitarian emergencies; low- and middle-income countries; psychological intervention
Year: 2020 PMID: 32265759 PMCID: PMC7104812 DOI: 10.3389/fpsyt.2020.00212
Source DB: PubMed Journal: Front Psychiatry ISSN: 1664-0640 Impact factor: 4.157
Figure 1The adaptation process for Early Adolescent Skills for Emotions (EASE) in Lebanon.
Findings From the Rapid Qualitative Assessment in Lebanon.
| Theme | Key findings | Quote |
|---|---|---|
| 1. Emotional abuse, bullying, and physical violence |
Emotional and physical violence were reported by adolescents and adults as very common in the communities. Sexual abuse was also mentioned. Sources of violence could be from teachers at school, within the home, or among children. It was attributed to poor parenting, poverty, and conflict between ethnic groups. | |
| 2. Substance use |
Substance use among adolescents was reported as common, including drinking alcohol, smoking cigarettes, and taking pills. There was limited understanding about the physical and psychological impact of substance use. Perceived causes were boredom, lack of opportunities, poverty, and parenting influences. Perceived effects were an increase in violence, and isolation from family members. | |
| 3. Poverty |
This was perceived to be a major daily stressor. Poverty and lack of education are cyclical: children drop out of school to work and provide for the family. Families unable to provide essentials such as housing, clothing, food etc. Perceived impact was wide-reaching, with connections mentioned between poverty and abuse, criminal activity, substance use, and emotional problems. | |
| 4. Other problems reported |
Tensions between Lebanese and Syrians were reported as a common problem. While Syrians feel discrimination from Lebanese, the Lebanese respondents are dissatisfied with with the Syrian “newcomers.” Stigmatization was reported, and was experienced based on ethnicity, poverty, and mental health problems, Interestingly, there was little mention of traumatic events stemming from the Syrian conflict—though separation from loved ones and disruption of social support were mentioned. | |
| 5. Community awareness of mental health and coping mechanisms |
Negative coping mechanisms were reportedly: substance use, violence, and normalization of abuse. Positive coping mechanisms were reportedly: talking with friends and parents (especially mothers), seeking assistance, role of good parenting, taking part in activities, and supportive friendships. There was a varied level of mental health awareness. Only few respondents linked problems to mental health. There were varying opinions on seeking assistance and on the benefits of mental health interventions, they were seen as taboo. | |
| 6. Mental health service mapping |
Mental health professionals have good knowledge on what is available, but the majority of community members are not aware of the services available. There was a reported suspicion of the work of non-governmental organizations, in terms of quality and fairness to both Syrians and Lebanese, and some respondents felt that such issues were better dealt with from within the community. | |
| 7. Input on Early Adolescent Skills for Emotions implementation strategies |
The facilitator should come from the region, be well trained, and have a relevant background (e.g. mental health professionals). The role of parents is crucial because participation of the adolescents will depend on the willingness of the parents. Perceived suitable locations for EASE included several community structures such as a house, a park, the stadium, or community centers. In terms of scheduling, almost all participants recommend a time outside school and work hours. |
Adaptations Made in Phase 1 for Early Adolescent Skills for Emotions (EASE) Materials and Implementation in Lebanon (Coded by Bernal Framework).
| Adaptation Principle | Change implemented to EASE | Information/Rationale | Source |
|---|---|---|---|
| Translation into local language |
Ensured consistency in language used for all key strategies, terms like “adolescents” and “youth,” emotional terms. | Consistency will enhance understanding. | Mock |
| Use of local idioms |
Considered table of terms used frequently by Syrian refugees, for discussion with facilitators. Added idiom for suicide “ | Ensures that materials are accessible and easily understood by participants. | Read |
| Technical terms replaced by colloquialisms |
Changed word “client,” to “youth” or “participant” or “caregiver”. Consistency ensured in term “facilitator”—previously was sometimes “helper” or “leader”. “Homework” was changed to “home activities”. Changed “taming feelings” to “managing feelings” to reduce pathologizing. Rephrased “catch” feelings to “notice” or “be aware” of feelings. Changed reference to doctors/scientists to “we know from experience” or “experience shows”. | These terms were identified as most relatable and appropriate in the context, especially given the stigma around mental health interventions. | Mock |
| Therapist-patient matching |
Need to carefully consider whether it is appropriate to have male facilitators with female groups—will pilot and monitor. | Traditions of gender segregation are common. | RQA |
| Cultural competency of therapists |
Facilitators should have experience working in these communities. Sensitivity is needed around the taboo of talking about the family’s problems outside of the home. | It is important that they are well respected, especially given stigma, and reported distrust of NGOs and health services. | RQA |
| Therapist–patient relationship |
Facilitators need to ensure that the tone of interaction between facilitator and caregivers is interactive and inclusive, rather than directive and lecturing. Session content has been edited accordingly. In order to maintain confidentiality and trust, separate facilitators are needed for adolescent and caregiver sessions. | Caregivers enjoyed the opportunity to speak about their concerns. | Mock |
| Use of material with cultural relevance | Several changes were made to the story to increase cultural relevance.
Character was annoyed by his sister joining with his friends—this was changed as not culturally appropriate. Male character doing household chores was adapted to ensure that this could be sweeping outside/around the house, not just indoors. Examples of bullying, anger, and aggression were included as they were highly relevant. Difficult problem of mother being sick, was removed (was potentially intense and upsetting for children experiencing grief) and replaced with problem of family moving house. Replaced asking doctor for help with neighbour/friend/family member. Asking doctor for help is not culturally relevant. Rule setting exercise asks adolescents not to discuss topics such as war, however this was removed as it is very common. | Some aspects of the story were not culturally appropriate. | |
| Use of idioms/symbols |
A story about a rabbit hole was removed as not relatable. A detective story that was used to illustrate problem solving was replaced with an interactive maze activity. Children experience hitting dead-ends, and needing to go back and try a different route. Reference to “bright happy” colors was removed. | Some adolescents may not related to these, some adolescents may not associate only “bright” colors with being happy. | Mock |
| Incorporation of local practices into treatment |
In rule setting exercise, removed reference to adolescents pointing to each other’s mistakes. Caregiver sessions reworded to acknowledge that physical discipline is common, and suggest positive discipline alternatives that caregivers can try. More instructions added on ending the program with a celebratory activity. | Encouraging adolescents to point out others’ mistakes is not appropriate in this context. | Mock |
| Addition of therapy modules to address cultural factors |
Training added on how to respond (not intervene) when issues of grief, abuse, or substance use arise (how to respond appropriately, providing facilitators with referral information and capacity to recognize issues). Content in session 1 was reduced to allow children time to get comfortable. | Grief, abuse, and substance use are common. They are not addressed anywhere specifically in the manual. | Mock |
| Addressing stressors | Incorporated anger/externalizing problems and aggression throughout. For example:
Tired cycle for behavior activation was previously focused on the inactivity associated with depression. This was adapted to the “vicious cycle” (in Arabic—”vicious spiral”), with examples provided for cycles of anxiety and anger/aggression. More focus was added to doing things that are important to you, rather than inactivity. Calming my body strategy suggested for use with anger. Examples of social problems such as anger/aggression or bullying added for problem solving strategy and story. When discussing understanding feelings, added rationale that adolescents sometimes feel bad inside and act out as a result—for both children and caregivers. Examples for caregivers were amended to include mention of externalizing problems. | Physical violence, anger, aggression, and bullying are common problems. | Mock |
| Client derived goals |
For the strategy “changing my actions”—facilitators need to be trained on how to help select appropriate activities in this context and setting and how to follow up with each child to make it suitable. Since adolescents are likely to have many problems, a step of prioritization of problems was added, and adolescents are taught to consider problems that adhere to the “3 S’s”—solvable, small, and specific. More varied examples were included in materials, to support use of the strategy. | Poverty and crowded living spaces are pervasive, and children may already be working, therefore suitable enjoyable or meaningful activities may vary. | RQA |
| Clarifying goals |
Varied coping strategies were added when discussing helpful and unhelpful coping. Facilitators should be trained to incorporate relevant strategies for specific group. When caregivers are considering adolescent strengths, they should be encouraged to think more broadly than just strengths related to coping strategies. | Coping strategies may vary in the context. Need to consider and encourage broader coping strategies. | RQA |
| Adaptation of training and supervision methods |
Detailed training needed for facilitators, to provide explanation and examples of how to discuss strategies with children. Facilitators will need training on how to handle disclosures of abuse. Facilitators will need more training on parenting strategies, to deliver parenting sessions well and to be able to answer questions. They will also need training on how to manage talkative parents. | Facilitators will be non-specialist and will therefore need more detailed training. | Mock |
| Client engagement adaptations |
For child sessions—more interactive methods were added to ensure engagement and attention (e.g. role plays, drawing), and allow interactive group exercises. Explanations for children and caregivers should be simplified as much as possible, and focus on key points only. If the caregiver groups are mixed gender, facilitators should ensure this is considered when making pairs for activities. Caregiver sessions were edited to be more interactive and draw on participant experience, rather than didactic presentations. | In this context, adolescents often do not have space to play and do not attend school. Externalizing problems are also common. Therefore keeping sessions active will increase engagement. | RQA |
| Structural adaptations | Scheduling needs to be around school activities, and prayer times. | ||
| Adaptation to techniques used to deliver treatment |
Sessions should end with praise for attendance and acknowledgement of effort. Adaptations made to the story book to increase links between sessions and improve the flow of the story. Revision of homework activities to make them simpler, and to increase acceptability of concept for adolescents and caregivers. Need to mention as additional common problems: lack of privacy, caregiver not understanding the importance. Materials revised to ensure that instructions are very clear for facilitators, and more supporting materials (such as posters, and examples) are included Adolescents provided with visual summary of all strategies they have learned | This should be added to end the sessions positively. | |
| Increase accessibility and ensure feasibility |
Edits were made to reducing resources needed during sessions—such as balloons, colored pencils, and costumes. For exercises requiring colored pencils, alternative options were provided, in case children did not have them at home. The quality time strategy was adjusted to suit large families, and crowded spaces—acknowledging that quality time may not be one-on-one, and may only be brief. Examples were added of incorporating quality time into daily activities, and facilitator training was added for facilitators about barriers to quality time. Mixed groups of Syrian and Lebanese children should be encouraged, rather than separate groups, as separating groups may further perpetuate inter-group tensions. Facilitators should be trained to manage any tension that may occur in group. Careful community awareness and sensitization activities should be conducted, to reduce stigma, overcome negative perspectives on NGO services, and ensure accurate expectations. Centre should be accessible, and transportation support should be provided to caregivers and adolescents. Childcare should be provided at caregiver sessions. | Poverty is pervasive and families are often large, and living in crowded spaces. One-on-one quality time for lengthy periods is unlikely to be possible. | Mock |
| Ensure acceptability |
Sections around discussing suicide with youth were carefully worded to ensure caregivers understand that suicide will not be a topic of discussion in the adolescent sessions. When discussing caregiver self-care, references to maintaining a good diet were edited to specify “food is available.” Section encouraging caregivers to watch for warning signs in children in future, was reworded to reduce pathologizing. | Parents may be worried about us talking to children about suicide, when suicide is raised in parent session. Parents say that it’s acceptable to talk about, but worry that might be danger for children. Suicide is a sensitive topic as it is taboo, therefore there needs to be a good link to starting the discussion on suicide. | Mock |
| Specific adaptation relating to conflict-affected setting |
Facilitators must be briefed and in contact with security team of organization at all times, and an incident reporting procedure should be in place. | Vulnerable areas in Lebanon are unpredictable in terms of security concerns. | Mock |
Mock, mock sessions; RQA, rapid qualitative assessment; CI, cognitive interviewing; Lit, scoping literature review; Read, read through.
Feedback gathered from Training of Facilitators and Training of Trainers practice cycles and recommendations for further adaptations to Early Adolescent Skills for Emotions materials and implementation in Lebanon.
| Implementation considerations | ||
|---|---|---|
| Topic | Information | Recommendation for implementation in this setting |
| Literacy |
Caregiver and adolescent low education and low literacy were common challenges. Facilitators often had to offer adaptations as required for literacy challenges (e.g. options of drawing). |
While the original manual was developed with literacy in mind, further adaptations could be made to address low literacy and education in both child and caregiver sessions—such as adaptations to exercises to reduce reliance on literacy, and simplification of content. |
| More interaction and active learning |
Adolescents did not have many opportunities for active play outside sessisons, and often had interrupted schooling. Adolescents and facilitators indicated a preference for more active tasks in the adolescent sessions, and adolescents particularly enjoyed activities that included drawing and coloring. Caregivers and facilitators also indicated a preference for more group discussion and active learning opportunities in caregiver sessions rather than didactic low literacy were common challenges presentations. Caregivers appeared to take a passive role in the sessions, rather than actively engaging as the key agents of change in their families. |
It will be important to increase varied methods of active and interactive exercises to enhance interest and further active-participation of adolescents and caregivers, such as more opportunities for role-play, drawing, and enhancing engagement in the storybook. In this context, there should be a greater emphasis on using energisers, to maintain engagement. |
| Addressing suicide |
There was some concern when caregivers were introduced to the concept of talking to children about suicide—it was felt that this would introduce a new idea to children and lead them to consider suicide. Further, in this culture, suicide is forbidden, and talking about it at all is a taboo. |
This topic should be introduced to caregivers in more depth, prior to the commencement, and during the early stages, of the program. Caregivers should be informed about the rationale for talking to children about suicide, and provided with explanations to dispel myths around suicide. Caregivers should be reassured clearly that the EASE sessions do not involve talking with children about the topic of suicide, besides mentioning that if it arises as a concern for a particular child, it will be followed up for their safety, and that it’s covered in the confidentiality explanation for children. |
| Confidentiality |
It became apparent that there was a misunderstanding about the concept of confidentiality. While children were asked to agree to maintain confidentiality of the details shared by their peers within the sessions, and were informed that facilitators would not discuss any details of what they had shared with their caregivers (except when a safety concern arose), children relayed to parents that they had been instructed not to tell parents anything about the session content. Some parents raised concern about this. |
In settings where prior experience with health and mental health services is limited, it is important to explain confidentiality clearly, and ensure adequate understanding from children and caregivers. |
| Referrals |
Families were reporting a multitude of other needs, including health, education, food, shelter, and cash assistance. |
In settings where other basic needs are often unmet, a list of options for support should be provided to families at the commencement of the program to facilitate access. For Lebanon, there is an existing list of hotlines that families that can call for information on access to services in various sectors. |
| Group management and behavior management |
Adolescents needed more support to work in pairs or groups; given that they may not have attended any school, or limited school, these skills were not always well developed. At times there were significant behavioral issues within the groups (for example leaving the classroom, and bullying). |
In this setting, facilitators should provide further guidance and support for adolescents in pair and group work and not assume that this is a pre-existing skill set. Adequate time should be spent on establishing group rules and expectations. Facilitators should be well trained in behavior management in group settings. Clear guidance is needed regarding situations where a child displays severe challenging behaviors. |
| Simplification of manual |
The format of the manual was challenging to follow. Facilitators recommended that the Arabic translation could be improved |
The manual should be as simple to read and use as possible. Arabic translation could be simplified. |
| Poor attendance |
Low attendance rates were observed. There were challenges where children or caregivers had missed a session and attended a later one, because limited time was available to cover the missed material. Some caregivers reported that transportation to sessions was still challenging even when provided with a reimbursement for costs, as they did not always have money available for their trip. |
Participants should be briefly informed of what the main activities were when they missed a session, and time will be needed for this. Appropriate scheduling of group sessions is essential, and considerations must be made for competing activities such as school, prayer, common employment times, and other recreational programs. Strategies need to be in place to remind and encourage both caregivers and adolescents to attend, including phone calls prior to each session. Transportation support should be arranged for caregivers. |
| Session length |
Caregivers reported that 2 h (plus travel time) was too long to be away from home. Facilitators reported that the initial child sessions were too long. Participants were often eager to return home or back to other activities. Facilitators reported that the content was not able to be completed adequately in the time allowed—Sessions were sometimes ended early or were not completed. |
It is recommended that briefer sessions, with reduced content, be scheduled in this setting where caregivers have many competing responsibilities. |
| Comfort around discussion of emotions |
There was discomfort around discussing emotions with others, and shyness about discussing issues, especially during earlier sessions. Facilitators requested an introductory session for adolescents. |
Rather than adding an additional session (which would increase resources required) it is recommended that adequate time is provided during the first session to allow children to “warm up,” either |
| Homework challenges |
Adolescents and parents had trouble completing homework. |
The instructions for homework tasks should be as simple as possible, and the importance of adequate review and troubleshooting of homework at the start of each session should be emphasized to facilitators. To facilitate home practice involving identification of emotions, a poster which displays a range of feelings, can be provided to children to take home. |
| Requests for celebration |
Facilitators, trainers, adolescents, and caregivers requested a celebration session at the end of the program, in line with common practice in this setting. Caregivers requested incentives for adolescents to participate. Adolescents were very excited by certificates. |
A small celebration could be added to the final session, with a small refreshment, and certificate presentation to mark the completion of the program. To maintain motivation, the certificate could be mentioned to adolescents at the beginning of program. |
| Group compositions |
Separation of groups by gender is beneficial to promote comfort and openness. Siblings and relatives should be separated where it is possible to prevent reticence when discussing personal details. The presence of a male facilitator in the female group was accepted. |
It is important to consider group composition in terms of gender matching of participants and facilitators, and family members. |
| Delivery of specific strategies |
Adolescents had difficulty with the following aspects of discrete strategies: identifying strengths, often naming skills instead identifying a range of emotions, and recalling emotions across a full day managing dizzy feelings, and focusing for long periods during breathing exercises personally relating to the vicious cycle breaking specific tasks down into smaller steps for behavioral activation remembering to seek adult support in problem solving strategy |
It is important that facilitators are skilled in using prompts and questions to support adolescents and caregivers with common challenges, are able to describe strategies in alternative ways, and able to provide a multitude of examples. |