Literature DB >> 32239966

"Basically, You Had Cancer and Now You Don't": Exploring the Meaning of Being a "Cancer Survivor" Among Adolescents and Young Adult Cancer Survivors.

Katie Darabos1, Jennifer S Ford2.   

Abstract

Purpose: Survivorship experiences among adolescent and young adults (AYA) with cancer are unique and may involve a process of identity construction. This qualitative study explored AYA survivors' felt experience of being a cancer survivor focusing on the meaning of survivorship and whether identifying as a "cancer survivor" is consistent with their self-concept.
Methods: Twenty-six individual semistructured interviews were conducted with AYA (M = 19.6 years; range: 16-24) with a history of cancer diagnosed between the ages of 14 and 18 (M = 15.6 years). Relevant themes in the literature and through clinical practice guided the development and use of the semistructured interview guides.
Results: Thematic content analysis was used to identify cancer-related identities. Three identities emerged: Embracing: acceptance and identification with being a "cancer survivor," cancer is a significant part of their life, Part of the Past: identifies as a "cancer survivor," but does not let cancer define their life or see cancer as a nonissue, and Not Part of my Identity: does not identify with the term "cancer survivor," cancer seemed like a small event.
Conclusion: AYA construct different meanings to the words "cancer survivor." These different meanings might reflect a process of identity construction, for some, the characteristics of cancer seemed integrated into one's self-concept, for others, the thought of being a "cancer survivor" rarely entered how they defined themselves. These findings shed light into how AYA reconcile integrating a cancer experience into their self-concept and emphasize the importance of not one-size-fits-all approach to understanding AYA internalization of being a cancer survivor.

Entities:  

Keywords:  qualitative methods; quality of life; survivorship

Mesh:

Year:  2020        PMID: 32239966      PMCID: PMC7640746          DOI: 10.1089/jayao.2019.0176

Source DB:  PubMed          Journal:  J Adolesc Young Adult Oncol        ISSN: 2156-5333            Impact factor:   2.223


  18 in total

Review 1.  Psychosocial concerns and interventions for cancer survivors.

Authors:  Annette L Stanton
Journal:  J Clin Oncol       Date:  2006-11-10       Impact factor: 44.544

2.  Defining cancer survivorship: a more transparent approach is needed.

Authors:  Nada F Khan; Peter W Rose; Julie Evans
Journal:  J Cancer Surviv       Date:  2011-09-09       Impact factor: 4.442

Review 3.  Emerging issues among adolescent and young adult cancer survivors.

Authors:  Pandora Patterson; Fiona E J McDonald; Brad Zebrack; Sharon Medlow
Journal:  Semin Oncol Nurs       Date:  2014-12-03       Impact factor: 2.315

4.  "I'm a survivor, go study that word and you'll see my name": adolescent and cancer identity work over the first year after diagnosis.

Authors:  Kristin Stegenga; Catherine Fiona Macpherson
Journal:  Cancer Nurs       Date:  2014 Nov-Dec       Impact factor: 2.592

5.  Adolescent cancer survivors: identity paradox and the need to belong.

Authors:  Barbara L Jones; Jessica Parker-Raley; Amanda Barczyk
Journal:  Qual Health Res       Date:  2011-03-29

6.  Cancer-related identities in people diagnosed during late adolescence and young adulthood.

Authors:  Dalnim Cho; Crystal L Park
Journal:  Br J Health Psychol       Date:  2014-06-13

7.  A phoenix rising: who considers herself a "survivor" after a diagnosis of breast cancer?

Authors:  Christina H Jagielski; Sarah T Hawley; Kimberly Corbin; Marisa C Weiss; Jennifer J Griggs
Journal:  J Cancer Surviv       Date:  2012-08-31       Impact factor: 4.442

8.  After prostate cancer: predictors of well-being among long-term prostate cancer survivors.

Authors:  Thomas O Blank; Keith M Bellizzi
Journal:  Cancer       Date:  2006-05-15       Impact factor: 6.860

9.  Preferences for cancer survivorship care among adolescents and young adults who experienced healthcare transitions and their parents.

Authors:  Alexandra M Psihogios; Lisa A Schwartz; Janet A Deatrick; Elizabeth S Ver Hoeve; Lindsay M Anderson; Elicia C Wartman; Dava Szalda
Journal:  J Cancer Surviv       Date:  2019-07-04       Impact factor: 4.442

10.  Self-identity after cancer: "survivor", "victim", "patient", and "person with cancer".

Authors:  Crystal L Park; Ianita Zlateva; Thomas O Blank
Journal:  J Gen Intern Med       Date:  2009-11       Impact factor: 5.128

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  1 in total

1.  The effect of pediatric central nervous system tumors on identity in young adult survivors: a project REACH study.

Authors:  Chantel Cacciotti; Lydia Larocque Chevalier; Cheryl Medeiros-Nancarrow; Christopher Recklitis; Tabitha M Cooney
Journal:  J Cancer Surviv       Date:  2022-01-21       Impact factor: 4.442

  1 in total

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