Katie Darabos1, Jennifer S Ford2. 1. Department of Behavioral Oncology, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA. 2. Hunter College and The Graduate Center, City University of New York, New York, New York, USA.
Abstract
Purpose: Survivorship experiences among adolescent and young adults (AYA) with cancer are unique and may involve a process of identity construction. This qualitative study explored AYA survivors' felt experience of being a cancer survivor focusing on the meaning of survivorship and whether identifying as a "cancer survivor" is consistent with their self-concept. Methods: Twenty-six individual semistructured interviews were conducted with AYA (M = 19.6 years; range: 16-24) with a history of cancer diagnosed between the ages of 14 and 18 (M = 15.6 years). Relevant themes in the literature and through clinical practice guided the development and use of the semistructured interview guides. Results: Thematic content analysis was used to identify cancer-related identities. Three identities emerged: Embracing: acceptance and identification with being a "cancer survivor," cancer is a significant part of their life, Part of the Past: identifies as a "cancer survivor," but does not let cancer define their life or see cancer as a nonissue, and Not Part of my Identity: does not identify with the term "cancer survivor," cancer seemed like a small event. Conclusion: AYA construct different meanings to the words "cancer survivor." These different meanings might reflect a process of identity construction, for some, the characteristics of cancer seemed integrated into one's self-concept, for others, the thought of being a "cancer survivor" rarely entered how they defined themselves. These findings shed light into how AYA reconcile integrating a cancer experience into their self-concept and emphasize the importance of not one-size-fits-all approach to understanding AYA internalization of being a cancer survivor.
Purpose: Survivorship experiences among adolescent and young adults (AYA) with cancer are unique and may involve a process of identity construction. This qualitative study explored AYA survivors' felt experience of being a cancer survivor focusing on the meaning of survivorship and whether identifying as a "cancer survivor" is consistent with their self-concept. Methods: Twenty-six individual semistructured interviews were conducted with AYA (M = 19.6 years; range: 16-24) with a history of cancer diagnosed between the ages of 14 and 18 (M = 15.6 years). Relevant themes in the literature and through clinical practice guided the development and use of the semistructured interview guides. Results: Thematic content analysis was used to identify cancer-related identities. Three identities emerged: Embracing: acceptance and identification with being a "cancer survivor," cancer is a significant part of their life, Part of the Past: identifies as a "cancer survivor," but does not let cancer define their life or see cancer as a nonissue, and Not Part of my Identity: does not identify with the term "cancer survivor," cancer seemed like a small event. Conclusion: AYA construct different meanings to the words "cancer survivor." These different meanings might reflect a process of identity construction, for some, the characteristics of cancer seemed integrated into one's self-concept, for others, the thought of being a "cancer survivor" rarely entered how they defined themselves. These findings shed light into how AYA reconcile integrating a cancer experience into their self-concept and emphasize the importance of not one-size-fits-all approach to understanding AYA internalization of being a cancer survivor.
Entities:
Keywords:
qualitative methods; quality of life; survivorship
Authors: Christina H Jagielski; Sarah T Hawley; Kimberly Corbin; Marisa C Weiss; Jennifer J Griggs Journal: J Cancer Surviv Date: 2012-08-31 Impact factor: 4.442
Authors: Alexandra M Psihogios; Lisa A Schwartz; Janet A Deatrick; Elizabeth S Ver Hoeve; Lindsay M Anderson; Elicia C Wartman; Dava Szalda Journal: J Cancer Surviv Date: 2019-07-04 Impact factor: 4.442