Literature DB >> 32208091

Ethical Advocacy Across the Autism Spectrum: Beyond Partial Representation.

Matthew S McCoy1, Emily Y Liu1, Amy S F Lutz1, Dominic Sisti1.   

Abstract

Recent debates within the autism advocacy community have raised difficult questions about who can credibly act as a representative of a particular population and what responsibilities that role entails. We attempt to answer these questions by defending a set of evaluative criteria that can be used to assess the legitimacy of advocacy organizations and other nonelectoral representatives. With these criteria in hand, we identify a form of misrepresentation common but not unique to autism advocacy, which we refer to as partial representation. Partial representation occurs when an actor claims to represent a particular group of people but appropriately engages with only a subset of that group. After highlighting symbolic and substantive harms associated with partial representation, we propose several strategies for overcoming it.

Entities:  

Keywords:  ASD; Autism; disability; representation

Mesh:

Year:  2020        PMID: 32208091     DOI: 10.1080/15265161.2020.1730482

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN: 1526-5161            Impact factor:   11.229


  2 in total

1.  Representation in participatory health care decision-making: Reflections on an Application-Oriented Model.

Authors:  Tim Holetzek; Christine Holmberg
Journal:  Health Expect       Date:  2022-03-27       Impact factor: 3.318

2.  The role of advocacy and empowerment in shaping service development for families raising children with developmental disabilities.

Authors:  Zsofia Szlamka; Bethlehem Tekola; Rosa Hoekstra; Charlotte Hanlon
Journal:  Health Expect       Date:  2022-05-29       Impact factor: 3.318

  2 in total

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