Literature DB >> 32198234

Measure what we want: a taxonomy of short generic person-reported outcome and experience measures (PROMs and PREMs).

Tim Benson1,2.   

Abstract

INTRODUCTION: Health and care systems are complex and multifaceted, but most person-reported outcome and experience measures (PROMs and PREMs) address just one aspect. Multiple aspects need measuring to understand how what we do impacts patients, staff and services, and how these are affected by external factors. This needs survey tools that measure what people want, are valid, sensitive, quick and easy to use, and suitable for people with multiple conditions.
METHODS: We have developed a coherent family of short generic PROMs and PREMs that can be used in combination in a pick-and-mix way. Each measure has evolved iteratively over several years, based on literature review, user inputs and field testing. Each has has a common format with four items with four response options and is designed for digital data collection with standardised analytics and data visualisation tools. We focused on brevity and low reading age.
RESULTS: The results are presented in tabular format and as a taxonomy. The taxonomy is categorised by respondent type (patient or staff) and measure type. PROMs have subdomains: quality of life, individual care and community; PREMs have subdomains: service provided, provider culture and innovation. We show 22 patient-reported measures and 17 staff-reported measures. Previously published measures have been validated. Others are described for the first time. DISCUSSION AND
CONCLUSIONS: This family of measures is broad in scope but is not claimed to be comprehensive. Measures share a common look and feel, which enables common methods of data collection, reporting and data visualisation. They are used in service evaluation, quality improvement and as key performance indicators. The taxonomy helps to organise the whole, explain what each measure does and identify gaps and overlaps. © Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.

Entities:  

Keywords:  attitude of health personnel; diffusion of innovation; patient satisfaction; patient-reported outcome measures; surveys

Year:  2020        PMID: 32198234     DOI: 10.1136/bmjoq-2019-000789

Source DB:  PubMed          Journal:  BMJ Open Qual        ISSN: 2399-6641


  6 in total

1.  Patient-reported outcome measures (PROMs) after laparoscopic cholecystectomy: systematic review.

Authors:  Conor Melly; Gearoid McGeehan; Niall O'Connor; Alison Johnston; Gary Bass; Shahin Mohseni; Claire Donohoe; Magda Bucholc; Michael Sugrue
Journal:  BJS Open       Date:  2022-05-02

2.  Analysis of real-world data on growth hormone therapy adherence using a connected injection device.

Authors:  Ekaterina Koledova; Vincenzo Tornincasa; Paula van Dommelen
Journal:  BMC Med Inform Decis Mak       Date:  2020-07-29       Impact factor: 2.796

3.  Development of social contact and loneliness measures with validation in social prescribing.

Authors:  Tim Benson; Helen Seers; Nicola Webb; Philippa McMahon
Journal:  BMJ Open Qual       Date:  2021-05

4.  Readiness for five digital technologies in general practice: perceptions of staff in one part of southern England.

Authors:  Matthew Hammerton; Tim Benson; Andrew Sibley
Journal:  BMJ Open Qual       Date:  2022-06

5.  Building from Patient Experiences to Deliver Patient-Focused Healthcare Systems in Collaboration with Patients: A Call to Action.

Authors:  Karlin Schroeder; Neil Bertelsen; Jessica Scott; Katherine Deane; Laura Dormer; Devika Nair; Jim Elliott; Sarah Krug; Ify Sargeant; Hayley Chapman; Nicholas Brooke
Journal:  Ther Innov Regul Sci       Date:  2022-07-19       Impact factor: 1.337

6.  Person-specific outcome measure (PSO) for use in primary and community care.

Authors:  Tim Benson
Journal:  BMJ Open Qual       Date:  2021-04
  6 in total

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