Sharon Wilson1, Surita Mogan1, Kiran Kaur1. 1. Department of Communication, Faculty of Creative Industries, Universiti Tunku Abdul Rahman, Petaling Jaya, Malaysia.
Abstract
AIMS: To examine the pertinent issues discussed by endometriosis patients in Malaysia on MyEndosis Facebook group as an alternative platform for online support. METHODS: Using thematic analysis based on three frameworks, 120 posted messages and comments were examined from MyEndosis Facebook group-a support group for women with endometriosis from January to July 2014. RESULTS: Results showed the issues discussed were (a) personal struggles, (b) medication and treatment, (c) alternative medication, (d) side effects, and (e) medication recommended by doctors. While using this social medium, users found (a) emotional support, (b) esteem support, (c) information support, (d) network support, and (e) tangible assistance in their engagement with others. CONCLUSION: The analysis suggested that users' interactions were structured around information, emotion, and community building, which many doctors and nurses were not aware of. The group was shaped as a social network where peer users share social support, cultivate companionship, and exert social influence.
AIMS: To examine the pertinent issues discussed by endometriosispatients in Malaysia on MyEndosis Facebook group as an alternative platform for online support. METHODS: Using thematic analysis based on three frameworks, 120 posted messages and comments were examined from MyEndosis Facebook group-a support group for women with endometriosis from January to July 2014. RESULTS: Results showed the issues discussed were (a) personal struggles, (b) medication and treatment, (c) alternative medication, (d) side effects, and (e) medication recommended by doctors. While using this social medium, users found (a) emotional support, (b) esteem support, (c) information support, (d) network support, and (e) tangible assistance in their engagement with others. CONCLUSION: The analysis suggested that users' interactions were structured around information, emotion, and community building, which many doctors and nurses were not aware of. The group was shaped as a social network where peer users share social support, cultivate companionship, and exert social influence.
Authors: Julian Matthias Metzler; Dimitrios Rafail Kalaitzopoulos; Laurin Burla; Gabriel Schaer; Patrick Imesch Journal: JMIR Form Res Date: 2022-03-18
Authors: Rola Khamisy-Farah; Leonardo B Furstenau; Jude Dzevela Kong; Jianhong Wu; Nicola Luigi Bragazzi Journal: Int J Environ Res Public Health Date: 2021-05-11 Impact factor: 3.390