| Literature DB >> 32160990 |
Cyril Hazif-Thomas1, Véronique Lefebvre des Noëttes2.
Abstract
Going back to the delisting of drugs for Alzheimer's disease under the double prism of the jurisprudence of the State Council and from a sidestep of ethics is a requirement about the persistence of still passionate debates: the patients and their families feel abandoned, practitioners in the field distraught, and learned societies alarming the public authorities and their instances without any response to date. How the only drugs available, in responder patients, to slow down the inexorable progression of Alzheimer's disease, can finally be defunded, after three Superior Health Authority reassessments (2007, 2011, 2016) and therefore virtually removed from the therapeutic panel of physicians, while their beneficial effects, although modest on cognition, remained very actual on other symptoms such as apathy or hallucinations? How can this decision not to be understood as a signal of a disengagement from the state? How to maintain the trusting relationships between the patients, their families and caregivers, made of worry and patience?Entities:
Keywords: anti-Alzheimer drugs; care; ethics; legal; patience; vulnerability; worry
Mesh:
Substances:
Year: 2020 PMID: 32160990 DOI: 10.1684/pnv.2020.0843
Source DB: PubMed Journal: Geriatr Psychol Neuropsychiatr Vieil ISSN: 2115-7863