Literature DB >> 32160760

Expert stakeholders' perspectives on a Data-to-Care strategy for improving care among HIV-positive individuals incarcerated in jails.

Mara Buchbinder1, Colleen Blue2, Eric Juengst1, Lauren Brinkley-Rubinstein3, Stuart Rennie1, David L Rosen4.   

Abstract

Data-to-Care (D2C) uses surveillance data (e.g., laboratory, Medicaid billing) to identify out-of-care HIV-positive persons to re-link them to care. Most US states are implementing D2C, yet few studies have explored stakeholders' perspectives on D2C, and none have addressed these perspectives in the context of D2C in jail. This article reports findings from qualitative, semi-structured interviews conducted with expert stakeholders regarding their perspectives on the ethical challenges of utilizing D2C to understand and improve continuity of care among individuals incarcerated in jails. Participants included 47 professionals with expertise in ethics and privacy, public health and HIV care, the criminal justice system, and community advocacy. While participants expressed a great deal of support for extending D2C to jails, they also identified many possible risks. Stakeholders discussed many issues specific to D2C in jails, such as heightened stigma in the jail setting, the need for training of jail staff and additional non-medical community-based resources, and the high priority of this vulnerable population. Many experts suggested that the actual likelihood of benefits and harms would depend on contextual details. Implementation of D2C in jails may require novel strategies to minimize risk of disclosing out-of-care patients' HIV status.

Entities:  

Keywords:  Data to Care; HIV medical care; HIV surveillance; incarceration; linkage and retention in care; qualitative research

Mesh:

Year:  2020        PMID: 32160760      PMCID: PMC7483404          DOI: 10.1080/09540121.2020.1737641

Source DB:  PubMed          Journal:  AIDS Care        ISSN: 0954-0121


  17 in total

1.  Public goods, private data: HIV and the history, ethics, and uses of identifiable public health information.

Authors:  Amy L Fairchild; Lance Gable; Lawrence O Gostin; Ronald Bayer; Patricia Sweeney; Robert S Janssen
Journal:  Public Health Rep       Date:  2007       Impact factor: 2.792

2.  A Cluster Randomized Evaluation of a Health Department Data to Care Intervention Designed to Increase Engagement in HIV Care and Antiretroviral Use.

Authors:  Julia C Dombrowski; James P Hughes; Susan E Buskin; Amy Bennett; David Katz; Mark Fleming; Angela Nunez; Matthew R Golden
Journal:  Sex Transm Dis       Date:  2018-06       Impact factor: 2.830

3.  Implementing data-to-care initiatives for HIV in New York state: assessing the value of community health centers identifying persons out of care for health department follow-up.

Authors:  Rachel Hart-Malloy; Shakara Brown; Kathleen Bogucki; James Tesoriero
Journal:  AIDS Care       Date:  2017-08-09

4.  Cross-site Monitoring and Evaluation of the Care and Prevention in the United States Demonstration Project, 2012-2016: Selected Process and Short-term Outcomes.

Authors:  Mesfin S Mulatu; Tamika Hoyte; Kim M Williams; Raekiela D Taylor; Thomas Painter; Pilgrim Spikes; Cynthia Prather; William L Jeffries; Kirk Henny; Tanjina Shabu
Journal:  Public Health Rep       Date:  2018 Nov/Dec       Impact factor: 2.792

5.  Implementing a Data to Care Strategy to Improve Health Outcomes for People With HIV: A Report From the Care and Prevention in the United States Demonstration Project.

Authors:  Patricia Sweeney; Tamika Hoyte; Mesfin S Mulatu; Jacquelyn Bickham; Antoine D Brantley; Curt Hicks; Shanell L McGoy; Melissa Morrison; Anne Rhodes; Lauren Yerkes; Samuel Burgess; Jessica Fridge; Deborah Wendell
Journal:  Public Health Rep       Date:  2018 Nov/Dec       Impact factor: 2.792

6.  Potential Impact of Integrating HIV Surveillance and Clinic Data on Retention-in-Care Estimates and Re-Engagement Efforts.

Authors:  Eva A Enns; Cavan S Reilly; Beth A Virnig; Karen Baker; Nicholas Vogenthaler; Keith Henry
Journal:  AIDS Patient Care STDS       Date:  2016-09       Impact factor: 5.078

7.  The Effect of Patient Navigation on the Likelihood of Engagement in Clinical Care for HIV-Infected Individuals Leaving Jail.

Authors:  Janet J Myers; Mi-Suk Kang Dufour; Kimberly A Koester; Mark Morewitz; Rebecca Packard; Kate Monico Klein; Milton Estes; Brie Williams; Alissa Riker; Jacqueline Tulsky
Journal:  Am J Public Health       Date:  2018-01-18       Impact factor: 9.308

8.  Implementation of the North Carolina HIV Bridge Counseling Program to Facilitate Linkage and Reengagement in Care for Individuals Infected with HIV/AIDS.

Authors:  H Swygard; Arlene C Seña; V Mobley; J Clymore; L Sampson; K Glenn; J E Keller; J Donovan; M B Berger; A Durr; E Klein; K A Sullivan; E B Quinlivan
Journal:  N C Med J       Date:  2018 Jul-Aug

9.  Defining Care Patterns and Outcomes Among Persons Living with HIV in Washington, DC: Linkage of Clinical Cohort and Surveillance Data.

Authors:  Amanda D Castel; Arpi Terzian; Jenevieve Opoku; Lindsey Powers Happ; Naji Younes; Michael Kharfen; Alan Greenberg
Journal:  JMIR Public Health Surveill       Date:  2018-03-16

10.  Retention in HIV care during the 3 years following release from incarceration: A cohort study.

Authors:  Kelsey B Loeliger; Jaimie P Meyer; Mayur M Desai; Maria M Ciarleglio; Colleen Gallagher; Frederick L Altice
Journal:  PLoS Med       Date:  2018-10-09       Impact factor: 11.069

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  3 in total

1.  Jail-Based Data-to-Care to Improve Continuity of HIV Care: Perspectives and Experiences from Previously Incarcerated Individuals.

Authors:  Mara H Buchbinder; Colleen Blue; Mersedes E Brown; Steve Bradley-Bull; David L Rosen
Journal:  AIDS Res Hum Retroviruses       Date:  2021-04-30       Impact factor: 1.723

2.  Practical and Ethical Concerns in Implementing Enhanced Surveillance Methods to Improve Continuity of HIV Care: Qualitative Expert Stakeholder Study.

Authors:  Mara Buchbinder; Colleen Blue; Stuart Rennie; Eric Juengst; Lauren Brinkley-Rubinstein; David L Rosen
Journal:  JMIR Public Health Surveill       Date:  2020-09-04

3.  Access to HIV care in jails: Perspectives from people living with HIV in North Carolina.

Authors:  Colleen Blue; Mara Buchbinder; Mersedes E Brown; Steve Bradley-Bull; David L Rosen
Journal:  PLoS One       Date:  2022-01-24       Impact factor: 3.240

  3 in total

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