Literature DB >> 32152023

View From the Canoe: Co-Designing Research Pacific Style.

Rose Lamont1, Tana Fishman2,3,4, Pauline Fuimaono Sanders3, Malakai 'Ofanoa5, Felicity Goodyear-Smith6.   

Abstract

In 2016, Rose Lamont and Tana Fishman were the first patient-clinician dyad from outside North America to attend the North American Primary Care Research Group (NAPCRG) Patient and Clinician Engagement Program workshop. They returned to New Zealand inspired and formed the Pacific People's Health Advisory Group and a Pacific practice-based research network (PBRN). They are guided by the principles of co-design, and the Samoan research framework fa'afaletui, which emphasizes a collective approach and importance of reciprocity and relationships. Their collective inquiry aims to reduce health inequalities experienced by Pacific people in South Auckland. Their community group members and PBRN are generating research questions being answered by university-based graduate students. When they embarked, they knew not the direction in which they headed. With guidance, their community members and clinicians have led the way. By giving everyone a say in where they are going and how they get there, they are modeling what they wish to achieve-an egalitarian approach which decreases disparities for Pacific people.
© 2020 Annals of Family Medicine, Inc.

Entities:  

Keywords:  New Zealand; Pacific people; co-design; community-based participatory research; patient and clinician engagement; practice-based research network; primary care

Mesh:

Year:  2020        PMID: 32152023      PMCID: PMC7062480          DOI: 10.1370/afm.2497

Source DB:  PubMed          Journal:  Ann Fam Med        ISSN: 1544-1709            Impact factor:   5.166


  6 in total

1.  The North American Primary Care Research Group's Patient and Clinician Engagement Program (PaCE): Demystifying patient engagement through a dyad model.

Authors:  Jessica Sand; Maret Felzien; Ray Haeme; Hazel Tapp; Diane Derkowski; John M Westfall
Journal:  Fam Pract       Date:  2017-06-01       Impact factor: 2.267

2.  Practice-based research is community engagement.

Authors:  John M Westfall; Lyle J Fagnan; Margaret Handley; Jon Salsberg; Paul McGinnis; Linda K Zittleman; Ann C Macaulay
Journal:  J Am Board Fam Med       Date:  2009 Jul-Aug       Impact factor: 2.657

3.  Travelling companions: a story told by a patient and her doctor.

Authors:  Rose Lamont; Tana Fishman; Felicity Goodyear-Smith
Journal:  Br J Gen Pract       Date:  2018-06       Impact factor: 5.386

4.  Gout in Aotearoa New Zealand: the equity crisis continues in plain sight.

Authors:  Nicola Dalbeth; Tony Dowell; Catherine Gerard; Peter Gow; Gary Jackson; Carl Shuker; Leanne Te Karu
Journal:  N Z Med J       Date:  2018-11-09

5.  Practice-Based Research Networks: Strategic Opportunities to Advance Implementation Research for Health Equity.

Authors:  John M Westfall; Rebecca Roper; Anne Gaglioti; Donald E Nease
Journal:  Ethn Dis       Date:  2019-02-21       Impact factor: 1.847

Review 6.  Uncovering the benefits of participatory research: implications of a realist review for health research and practice.

Authors:  Justin Jagosh; Ann C Macaulay; Pierre Pluye; Jon Salsberg; Paula L Bush; Jim Henderson; Erin Sirett; Geoff Wong; Margaret Cargo; Carol P Herbert; Sarena D Seifer; Lawrence W Green; Trisha Greenhalgh
Journal:  Milbank Q       Date:  2012-06       Impact factor: 4.911

  6 in total
  3 in total

1.  Co-designing an intervention to prevent rheumatic fever in Pacific People in South Auckland: a study protocol.

Authors:  Siobhan Tu'akoi; Malakai Ofanoa; Samuela Ofanoa; Hinamaha Lutui; Maryann Heather; Rawiri McKree Jansen; Bert van der Werf; Felicity Goodyear-Smith
Journal:  Int J Equity Health       Date:  2022-07-21

2.  Flourishing together: research protocol for developing methods to better include disabled people's knowledge in health policy development.

Authors:  Rachelle A Martin; Angelo P Baker; Kirsten Smiler; Lesley Middleton; Jean Hay-Smith; Nicola Kayes; Catherine Grace; Te Ao Marama Apiata; Joanne L Nunnerley; Anna E Brown
Journal:  BMC Health Serv Res       Date:  2022-10-17       Impact factor: 2.908

3.  Design and implementation of a Pacific intervention to increase uptake of urate-lowering therapy for gout: a study protocol.

Authors:  Malakai Ofanoa; Samuela Malakai Ofanoa; Maryann Heather; Siobhan Tu'akoi; Hinamaha Lutui; Nicola Dalbeth; Corina Grey; Bert van der Werf; Felicity Goodyear-Smith
Journal:  Int J Equity Health       Date:  2021-12-23
  3 in total

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