Literature DB >> 32141370

Walking on Eggshells: Parents' First Year After Their Adolescent Completes Their Cancer Treatment [Formula: see text].

Amy J Walker1, Frances M Lewis1, Abby R Rosenberg1,2.   

Abstract

Background: Despite an awareness that parents experience distress and heightened uncertainty at the end of their adolescent's treatment for cancer, little is known about the specific challenges and concerns parents hold for their adolescent survivors or how they manage these challenges. This study described challenges parents experience in the first year after their adolescent's cancer treatment and what parents did to manage those challenges. Method: Single occasion semistructured interviews were conducted with parents and were transcribed verbatim. Data were coded using inductive content analysis methods adapted from grounded theory.
Results: Participants were 30 parents of adolescent survivors (13-18 years) who were in the first year following treatment completion. The core construct, "Walking on Eggshells," explained the processes and experiences parents faced once treatment was complete. Two additional domains captured how parents managed posttreatment challenges ("Doing What We Can") and the ways parents helped their adolescents adjust ("Balancing").
Conclusion: Study results suggest that services and materials are needed to help parents know common struggles that arise after treatment and ways to mitigate the severity of distress parents experience.

Entities:  

Keywords:  adolescents; cancer; supportive care

Year:  2020        PMID: 32141370      PMCID: PMC7312346          DOI: 10.1177/1043454220909788

Source DB:  PubMed          Journal:  J Pediatr Oncol Nurs        ISSN: 1043-4542            Impact factor:   1.636


  13 in total

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Authors:  A I Meleis; L M Sawyer; E O Im; D K Hilfinger Messias; K Schumacher
Journal:  ANS Adv Nurs Sci       Date:  2000-09       Impact factor: 1.824

2.  Informed consent for pediatric leukemia research: clinician perspectives.

Authors:  C Simon; M Eder; P Raiz; S Zyzanski; R Pentz; E D Kodish
Journal:  Cancer       Date:  2001-08-01       Impact factor: 6.860

3.  The return to the community after cancer treatment: from safety to reality check.

Authors:  Alicia Rivero-Vergne; Reinaldo Berrios; Ivonne Romero
Journal:  J Psychosoc Oncol       Date:  2011

4.  'The end of treatment is not the end': parents' experiences of their child's transition from treatment for childhood cancer.

Authors:  Sian E McKenzie; Christine Curle
Journal:  Psychooncology       Date:  2011-03-10       Impact factor: 3.894

5.  Emotional functioning of parents of children with cancer: the first five years of continuous remission after the end of treatment.

Authors:  Heleen Maurice-Stam; Frans J Oort; Bob F Last; Martha A Grootenhuis
Journal:  Psychooncology       Date:  2008-05       Impact factor: 3.894

Review 6.  Psychosocial Follow-Up in Survivorship as a Standard of Care in Pediatric Oncology.

Authors:  E Anne Lown; Farya Phillips; Lisa A Schwartz; Abby R Rosenberg; Barbara Jones
Journal:  Pediatr Blood Cancer       Date:  2015-12       Impact factor: 3.167

7.  Assessment of end-of-treatment transition needs for pediatric cancer and hematopoietic stem cell transplant patients and their families.

Authors:  Jeffrey S Karst; Jennifer A Hoag; Sherilynn F Chan; Debra J Schmidt; Lynnette J Anderson; Nicole E Englebert; Eva C Igler; Kristin M Bingen
Journal:  Pediatr Blood Cancer       Date:  2018-04-26       Impact factor: 3.167

8.  A narrative analysis of the stories of mothers who have parented a child with Hodgkin lymphoma who is currently in early survivorship.

Authors:  Jennifer Darcy
Journal:  J Clin Nurs       Date:  2018-10-22       Impact factor: 3.036

9.  Balancing our lives: a study of the married couple's experience with breast cancer recurrence.

Authors:  F M Lewis; L W Deal
Journal:  Oncol Nurs Forum       Date:  1995-07       Impact factor: 2.172

10.  Parental preparedness for late effects and long-term quality of life in survivors of childhood cancer.

Authors:  Katie A Greenzang; Angel M Cronin; Jennifer W Mack
Journal:  Cancer       Date:  2016-05-24       Impact factor: 6.860

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