Literature DB >> 32114610

Defining a "Good Death" in the Pediatric Intensive Care Unit.

Elizabeth G Broden1, Janet Deatrick2, Connie Ulrich3, Martha A Q Curley4.   

Abstract

BACKGROUND: Societal attitudes about end-of-life events are at odds with how, where, and when children die. In addition, parents' ideas about what constitutes a "good death" in a pediatric intensive care unit vary widely.
OBJECTIVE: To synthesize parents' perspectives on end-of-life care in the pediatric intensive care unit in order to define the characteristics of a good death in this setting from the perspectives of parents.
METHODS: A concept analysis was conducted of parents' views of a good death in the pediatric intensive care unit. Empirical studies of parents who had experienced their child's death in the inpatient setting were identified through database searches.
RESULTS: The concept analysis allowed the definition of antecedents, attributes, and consequences of a good death. Empirical referents and exemplar cases of care of a dying child in the pediatric intensive care unit serve to further operationalize the concept.
CONCLUSIONS: Conceptual knowledge of what constitutes a good death from a parent's perspective may allow pediatric nurses to care for dying children in a way that promotes parents' coping with bereavement and continued bonds and memories of the deceased child. The proposed conceptual model synthesizes characteristics of a good death into actionable attributes to guide bedside nursing care of the dying child. ©2020 American Association of Critical-Care Nurses.

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Year:  2020        PMID: 32114610     DOI: 10.4037/ajcc2020466

Source DB:  PubMed          Journal:  Am J Crit Care        ISSN: 1062-3264            Impact factor:   2.228


  5 in total

1.  A "Good Death" for Children with Cardiac Disease.

Authors:  Katie M Moynihan; Sonja I Ziniel; Emily Johnston; Emily Morell; Kenneth Pituch; Elizabeth D Blume
Journal:  Pediatr Cardiol       Date:  2021-12-02       Impact factor: 1.655

Review 2.  Is this as good as it gets? Implications of an asymptotic mortality decline and approaching the nadir in pediatric intensive care.

Authors:  Katie M Moynihan; Efrat Lelkes; Raman Krishna Kumar; Danielle D DeCourcey
Journal:  Eur J Pediatr       Date:  2021-10-01       Impact factor: 3.183

3.  "I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either": Comparing Bereaved Parents' Narratives With Nursing End-of-Life Assessments in the Pediatric Intensive Care Unit.

Authors:  Elizabeth G Broden; Pamela S Hinds; Allison V Werner-Lin; Martha A Q Curley
Journal:  J Hosp Palliat Nurs       Date:  2022-06-06       Impact factor: 2.131

4.  Shifting and intersecting needs: Parents' experiences during and following the withdrawal of life sustaining treatments in the paediatric intensive care unit.

Authors:  Elizabeth G Broden; Allison Werner-Lin; Martha A Q Curley; Pamela S Hinds
Journal:  Intensive Crit Care Nurs       Date:  2022-02-24       Impact factor: 4.235

5.  Alone, the hardest part.

Authors:  Martha A Q Curley; Elizabeth G Broden; Elaine C Meyer
Journal:  Intensive Care Med       Date:  2020-06-08       Impact factor: 17.440

  5 in total

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