Literature DB >> 32109430

Contraceptive use among women with cystic fibrosis: A pilot study linking reproductive health questions to the Cystic Fibrosis Foundation National Patient Registry.

Emily M Godfrey1, Sheila Mody2, Malaika R Schwartz3, Sonya L Heltshe4, Jennifer L Taylor-Cousar5, Raksha Jain6, Sandra Sufian7, Tatiana Josephy8, Moira L Aitken9.   

Abstract

OBJECTIVES: To examine contraceptive use, pregnancy intention and the association of hormonal contraceptive type with adverse health outcomes among women with cystic fibrosis (CF). STUDY
DESIGN: We recruited 150 women with CF, ages 18-49 from three adult CF programs to complete an online survey regarding their pregnancy and contraceptive use history. Survey findings were merged with retrospective clinical information from the CF Foundation Patient Registry (CFFPR). We used descriptive analyses to report contraceptive method and pregnancy frequencies, and logistic regression to examine the association between contraceptive method type and adverse health outcomes.
RESULTS: Combined hormonal contraceptives were the most commonly used methods (42%), followed by condoms (34%), and long-acting reversible contraceptives methods (27%). Thirty-three percent (n = 50) reported ever being pregnant, half of whom reported having at least one unplanned pregnancy. We found no significant association for mucoid Pseudomonas aeruginosa infection among progestin-only (aOR 1.53, 95% CI 0.07-32.2) and estrogen-containing hormonal contraceptive users (aOR 3.9, 95 % CI 0.20-76.5). Risk of osteoporosis was elevated among women with CF who used depot-medroxyprogesterone acetate compared to non-users (OR 5.36, 95% CI 1.00-29.12).
CONCLUSIONS: Both contraceptive use and unplanned pregnancy among women with CF are common. Associations between hormonal contraceptive use and adverse pulmonary or bone outcomes among women with CF are inconclusive due to the study s small sample size. Larger studies are warranted. IMPLICATIONS: Women with CF should be informed about the risks and benefits of contraceptives in the context of their disease. CFFPR data capturing contraceptive method use may be the most efficient way to elucidate the association of hormonal contraceptives on disease in women with CF.
Copyright © 2020 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Contraception; Cystic fibrosis; Modulators; Pregnancy; Registry; Reproduction

Year:  2020        PMID: 32109430      PMCID: PMC7494372          DOI: 10.1016/j.contraception.2020.02.006

Source DB:  PubMed          Journal:  Contraception        ISSN: 0010-7824            Impact factor:   3.375


  28 in total

1.  Sexual and reproductive health behaviors and experiences reported by young women with cystic fibrosis.

Authors:  Traci M Kazmerski; Gregory S Sawicki; Elizabeth Miller; Kelley A Jones; Kaleab Z Abebe; Lisa K Tuchman; Sigrid Ladores; Ronald C Rubenstein; Scott D Sagel; Daniel J Weiner; Joseph M Pilewski; David M Orenstein; Sonya Borrero
Journal:  J Cyst Fibros       Date:  2017-08-01       Impact factor: 5.482

2.  Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support.

Authors:  Paul A Harris; Robert Taylor; Robert Thielke; Jonathon Payne; Nathaniel Gonzalez; Jose G Conde
Journal:  J Biomed Inform       Date:  2008-09-30       Impact factor: 6.317

3.  Measuring compliance among oral contraceptive users.

Authors:  L Potter; D Oakley; E de Leon-Wong; R Cañamar
Journal:  Fam Plann Perspect       Date:  1996 Jul-Aug

4.  Spirometric reference values from a sample of the general U.S. population.

Authors:  J L Hankinson; J R Odencrantz; K B Fedan
Journal:  Am J Respir Crit Care Med       Date:  1999-01       Impact factor: 21.405

5.  Health insurance and racial disparities in pulmonary hypertension outcomes.

Authors:  Kishan S Parikh; Kathryn A Stackhouse; Stephen A Hart; Thomas M Bashore; Richard A Krasuski
Journal:  Am J Manag Care       Date:  2017-08       Impact factor: 2.229

6.  Effect of estrogen on pseudomonas mucoidy and exacerbations in cystic fibrosis.

Authors:  Sanjay H Chotirmall; Stephen G Smith; Cedric Gunaratnam; Sonya Cosgrove; Borislav D Dimitrov; Shane J O'Neill; Brian J Harvey; Catherine M Greene; Noel G McElvaney
Journal:  N Engl J Med       Date:  2012-05-20       Impact factor: 91.245

7.  Attitudes and Decision Making Related to Pregnancy Among Young Women with Cystic Fibrosis.

Authors:  Traci M Kazmerski; Theresa Gmelin; Breonna Slocum; Sonya Borrero; Elizabeth Miller
Journal:  Matern Child Health J       Date:  2017-04

Review 8.  Contraception in women with cystic fibrosis: a systematic review of the literature.

Authors:  Andrea Hsu Roe; Sarah Traxler; Courtney A Schreiber
Journal:  Contraception       Date:  2015-07-18       Impact factor: 3.375

9.  The Cystic Fibrosis Foundation Patient Registry. Design and Methods of a National Observational Disease Registry.

Authors:  Emily A Knapp; Aliza K Fink; Christopher H Goss; Ase Sewall; Josh Ostrenga; Christopher Dowd; Alexander Elbert; Kristofer M Petren; Bruce C Marshall
Journal:  Ann Am Thorac Soc       Date:  2016-07

10.  Cytochrome P450 3A4 Induction: Lumacaftor versus Ivacaftor Potentially Resulting in Significantly Reduced Plasma Concentration of Ivacaftor.

Authors:  Elena K Schneider
Journal:  Drug Metab Lett       Date:  2018
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  4 in total

1.  A model for building a national, patient-driven database to track contraceptive use in women with rare diseases.

Authors:  Tatiana Josephy; Deena R Loeffler; Molly Pam; Emily M Godfrey
Journal:  J Am Med Inform Assoc       Date:  2022-01-12       Impact factor: 7.942

Review 2.  Optimizing sexual and reproductive health across the lifespan in people with cystic fibrosis.

Authors:  Natalie E West; Traci M Kazmerski; Jennifer L Taylor-Cousar; Vin Tangpricha; Kelsie Pearson; Moira L Aitken; Raksha Jain
Journal:  Pediatr Pulmonol       Date:  2021-10-08

Review 3.  Fertility, Pregnancy and Lactation Considerations for Women with CF in the CFTR Modulator Era.

Authors:  Raksha Jain; Jennifer L Taylor-Cousar
Journal:  J Pers Med       Date:  2021-05-15

4.  Sex Steroids Induce Membrane Stress Responses and Virulence Properties in Pseudomonas aeruginosa.

Authors:  Celine Vidaillac; Valerie Fei Lee Yong; Marie-Stephanie Aschtgen; Jing Qu; Shuowei Yang; Guangfu Xu; Zi Jing Seng; Alexandra C Brown; Md Khadem Ali; Tavleen K Jaggi; Jagadish Sankaran; Yong Hwee Foo; Francesco Righetti; Anu Maashaa Nedumaran; Micheál Mac Aogáin; Dan Roizman; Jean-Alexandre Richard; Thomas R Rogers; Masanori Toyofuku; Dahai Luo; Edmund Loh; Thorsten Wohland; Bertrand Czarny; Jay C Horvat; Philip M Hansbro; Liang Yang; Liang Li; Staffan Normark; Birgitta Henriques Normark; Sanjay H Chotirmall
Journal:  mBio       Date:  2020-09-29       Impact factor: 7.867

  4 in total

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