Stefaan Six1, Roel Van Overmeire2, Johan Bilsen2, Steven Laureys3, Jan Poelaert4, Peter Theuns2, Reginald Deschepper2. 1. Department of Public Health, Mental Health and Wellbeing Research Group, Vrije Universiteit Brussel, Brussel, Belgium; Cyclotron Research Centre and Neurology Department, Coma Science Group, University and University Hospital of Liège, Liège, Belgium. Electronic address: stefaan.six@vub.be. 2. Department of Public Health, Mental Health and Wellbeing Research Group, Vrije Universiteit Brussel, Brussel, Belgium. 3. Cyclotron Research Centre and Neurology Department, Coma Science Group, University and University Hospital of Liège, Liège, Belgium. 4. Department of Anesthesiology & Perioperative Medicine, Vrije Universiteit Brussel, Brussel, Belgium.
Abstract
CONTEXT: Assessing consciousness and pain during continuous sedation until death (CSD) by behavior-based observational scales alone has recently been put into question. Instead, the use of monitoring technology has been suggested to make more objective and reliable assessments. Insights into which factors influence attitudes toward using these monitoring devices in a context of CSD is a first step in formulating recommendations to inform future practice. OBJECTIVES: The aim of this study was to find out what influences professional caregivers' and family members' (FMs) attitudes regarding the use of monitors during CSD. METHODS: We conducted semistructured face-to-face interviews with 20 professional caregivers and 15 FMs, who cared for a patient or had an FM, respectively, who took part in a study using monitoring devices. Recruitment took place in an academic hospital, a locoregional hospital, and two nursing homes, all located in Belgium. Two researchers independently analyzed the data, using grounded theory to inductively develop a model that represents the emerging attitude toward use of monitors during CSD. RESULTS: Our model shows that the emerging attitudes toward using monitors during CSD is determined by view on CSD, desire for peace of mind, emotional valence attached to using monitors, and the realization that the sole use of behavior-based observational measures could be unreliable in a CSD context. We identified several facilitators and barriers to inform future implementation strategies. CONCLUSION: Most participants had no objections, and all participants found the use of monitoring devices during CSD feasible and acceptable. We identified a number of facilitators and barriers and suggested that being aware that care can be improved, good communication, shared decision making, and continuing professional education can overcome the identified barriers. We suggest future research would focus on developing implementation strategies and guidelines for introducing objective monitoring devices in diverse palliative care settings.
CONTEXT: Assessing consciousness and pain during continuous sedation until death (CSD) by behavior-based observational scales alone has recently been put into question. Instead, the use of monitoring technology has been suggested to make more objective and reliable assessments. Insights into which factors influence attitudes toward using these monitoring devices in a context of CSD is a first step in formulating recommendations to inform future practice. OBJECTIVES: The aim of this study was to find out what influences professional caregivers' and family members' (FMs) attitudes regarding the use of monitors during CSD. METHODS: We conducted semistructured face-to-face interviews with 20 professional caregivers and 15 FMs, who cared for a patient or had an FM, respectively, who took part in a study using monitoring devices. Recruitment took place in an academic hospital, a locoregional hospital, and two nursing homes, all located in Belgium. Two researchers independently analyzed the data, using grounded theory to inductively develop a model that represents the emerging attitude toward use of monitors during CSD. RESULTS: Our model shows that the emerging attitudes toward using monitors during CSD is determined by view on CSD, desire for peace of mind, emotional valence attached to using monitors, and the realization that the sole use of behavior-based observational measures could be unreliable in a CSD context. We identified several facilitators and barriers to inform future implementation strategies. CONCLUSION: Most participants had no objections, and all participants found the use of monitoring devices during CSD feasible and acceptable. We identified a number of facilitators and barriers and suggested that being aware that care can be improved, good communication, shared decision making, and continuing professional education can overcome the identified barriers. We suggest future research would focus on developing implementation strategies and guidelines for introducing objective monitoring devices in diverse palliative care settings.
Authors: Anna-Maria Krooupa; Patrick Stone; Stephen McKeever; Kathy Seddon; Sarah Davis; Elizabeth L Sampson; Adrian Tookman; Jonathan Martin; Vinnie Nambisan; Bella Vivat Journal: BMC Palliat Care Date: 2022-05-24 Impact factor: 3.113
Authors: Stefaan Six; Jan Poelaert; Steven Laureys; Olivier Maîresse; Peter Theuns; Johan Bilsen; Reginald Deschepper Journal: Pain Ther Date: 2022-03-12