Neide P Areia1, José N Góngora2, Sofia Major1,3, Vivianne D Oliveira4, Ana P Relvas1,4. 1. Centre for Social Studies, University of Coimbra, Coimbra, Portugal. 2. Faculty of Psychology, University of Salamanca, Salamanca, Spain. 3. Faculty of Social Sciences and Humanities, University of Azores, Azores, Portugal. 4. Faculty of Psychology and Education Sciences, University of Coimbra, Coimbra, Portugal.
Abstract
OBJECTIVE: The terminal phase of cancer represents a major crisis for the family system. Regardless of the caregiving role they undertake, family members are forced to address multiple impacts when facing the approaching death of their terminally ill loved one. International guidelines recognize the importance of integrating the family into a care plan. However, more needs to be known about how to deliver optimal family support. The purpose of this study is to review the current state of the art in family/caregiver-focused interventions of people with terminal cancer in palliative care. METHOD: For this purpose, an overview of the literature's systematic reviews on the topic was conducted to select Randomized Controlled Trials (RCTs) on family/caregiver-focused interventions. RESULTS: Nine interventions were found in the systematic reviews of literature and meta-analysis. These family/caregiver-focused interventions were then thoroughly and critically analyzed. Despite the heterogeneity with regard to their characteristics, the interventions commonly focused on caregiving matters, were brief in duration, and delivered by non-mental health experts. The efficacy of such interventions was seen as modest. SIGNIFICANCE OF RESULTS: Family/caregiver-focused interventions in palliative care remain a matter of concern and more research is needed to identify adequate and effective ways of helping families that face the crisis of terminal illness in the system.
OBJECTIVE: The terminal phase of cancer represents a major crisis for the family system. Regardless of the caregiving role they undertake, family members are forced to address multiple impacts when facing the approaching death of their terminally ill loved one. International guidelines recognize the importance of integrating the family into a care plan. However, more needs to be known about how to deliver optimal family support. The purpose of this study is to review the current state of the art in family/caregiver-focused interventions of people with terminal cancer in palliative care. METHOD: For this purpose, an overview of the literature's systematic reviews on the topic was conducted to select Randomized Controlled Trials (RCTs) on family/caregiver-focused interventions. RESULTS: Nine interventions were found in the systematic reviews of literature and meta-analysis. These family/caregiver-focused interventions were then thoroughly and critically analyzed. Despite the heterogeneity with regard to their characteristics, the interventions commonly focused on caregiving matters, were brief in duration, and delivered by non-mental health experts. The efficacy of such interventions was seen as modest. SIGNIFICANCE OF RESULTS: Family/caregiver-focused interventions in palliative care remain a matter of concern and more research is needed to identify adequate and effective ways of helping families that face the crisis of terminal illness in the system.
Entities:
Keywords:
Caregiver; Family; Intervention; Palliative care; Terminal cancer
Authors: Kenneth Mah; Nadia Swami; Ashley Pope; Craig C Earle; Monika K Krzyzanowska; Rinat Nissim; Sarah Hales; Gary Rodin; Breffni Hannon; Camilla Zimmermann Journal: Support Care Cancer Date: 2022-01-26 Impact factor: 3.359