Boateng Kubi1, Zachary O Enumah1, Kimberley T Lee2, Karen M Freund3, Thomas J Smith4, Lisa A Cooper5, Jill T Owczarzak6, Fabian M Johnston7. 1. Department of Surgery, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA. 2. Department of Oncology, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA. 3. Department of Medicine, Tufts University School of Medicine, Boston, Massachusetts, USA. 4. Palliative Care Program, Sidney Kimmel Comprehensive Cancer Center, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA. 5. Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA; Department of Health, Behavior and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA. 6. Department of Health, Behavior and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA. 7. Department of Surgery, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA. Electronic address: fjohnst4@jhmi.edu.
Abstract
CONTEXT: Opportunities for the use of palliative care services are missed in African American (AA) communities, despite Level I evidence demonstrating their benefits. OBJECTIVES: Single-institution and stakeholder-engaged study to design an intervention to increase palliative care use in AA communities. METHODS: Two-phased qualitative research design guided by the Behavior Change Wheel and Theoretical Domains Framework models. In Phase 1, focus group sessions were conducted to identify barriers and facilitators of palliative care use and the viability of community health workers (CHWs) as a solution. After applying the Behavior Change Wheel and Theoretical Domains Framework to data gathered from Phase 1, Phase 2 consisted of a stakeholder meeting to select intervention content and prioritize modes of delivery. RESULTS: A total of 15 stakeholders participated in our study. Target behaviors identified were for patients to gain knowledge about benefits of palliative care, physicians to begin palliative care discussions earlier in treatment, and to improve patient-physician interpersonal communication. The intervention was designed to improve patient capability, physician capability, patient motivation, physician motivation, and increase patient opportunities to use palliative care services. Strategies to change patient and physician behaviors were all facilitated by CHWs and included creation and dissemination of brochures about palliative care to patients, empowerment and activation of patients to initiate goals-of-care discussions, outreach to community churches, and expanding patient social support. CONCLUSION: Use of a theory-based approach to facilitate the implementation of a multi-component strategy provided a comprehensive means of identifying relevant barriers and enablers of CHWs as an agent to increase palliative care use in AA communities.
CONTEXT: Opportunities for the use of palliative care services are missed in African American (AA) communities, despite Level I evidence demonstrating their benefits. OBJECTIVES: Single-institution and stakeholder-engaged study to design an intervention to increase palliative care use in AA communities. METHODS: Two-phased qualitative research design guided by the Behavior Change Wheel and Theoretical Domains Framework models. In Phase 1, focus group sessions were conducted to identify barriers and facilitators of palliative care use and the viability of community health workers (CHWs) as a solution. After applying the Behavior Change Wheel and Theoretical Domains Framework to data gathered from Phase 1, Phase 2 consisted of a stakeholder meeting to select intervention content and prioritize modes of delivery. RESULTS: A total of 15 stakeholders participated in our study. Target behaviors identified were for patients to gain knowledge about benefits of palliative care, physicians to begin palliative care discussions earlier in treatment, and to improve patient-physician interpersonal communication. The intervention was designed to improve patient capability, physician capability, patient motivation, physician motivation, and increase patient opportunities to use palliative care services. Strategies to change patient and physician behaviors were all facilitated by CHWs and included creation and dissemination of brochures about palliative care to patients, empowerment and activation of patients to initiate goals-of-care discussions, outreach to community churches, and expanding patient social support. CONCLUSION: Use of a theory-based approach to facilitate the implementation of a multi-component strategy provided a comprehensive means of identifying relevant barriers and enablers of CHWs as an agent to increase palliative care use in AA communities.
Authors: Faiz Gani; Zachary O Enumah; Alison M Conca-Cheng; Joseph K Canner; Fabian M Johnston Journal: J Palliat Med Date: 2017-11-03 Impact factor: 2.947
Authors: Barbara A Head; Tara J Schapmire; Lori Earnshaw; John Chenault; Mark Pfeifer; Susan Sawning; Monica A Shaw Journal: Adv Med Educ Pract Date: 2016-02-24
Authors: Kim L Larson; Holly F Mathews; Janet P Moye; Marianne R Congema; Sarah J Hoffman; Karla M Murrieta; Lee Ann Johnson Journal: Glob Qual Nurs Res Date: 2021-03-23
Authors: Ramy Sedhom; Richard Nudotor; Karen M Freund; Thomas J Smith; Lisa A Cooper; Jill T Owczarzak; Fabian M Johnston Journal: JCO Oncol Pract Date: 2021-01-21
Authors: Margaret Quinn Rosenzweig; Andrew D Althouse; Lindsay Sabik; Robert Arnold; Edward Chu; Thomas J Smith; Kenneth Smith; Douglas White; Yael Schenker Journal: Health Equity Date: 2021-01-19