Sabine Adriana Johanna Josepha Op 't Hoog1, Maaike Dautzenberg2, Anne Maria Eskes3, Hester Vermeulen4, Lilian Christina Maria Vloet5. 1. Department of Intensive Care, Elisabeth Tweesteden Hospital, Tilburg, the Netherlands; Research Department of Emergency and Critical Care, HAN University of Applied Science, Nijmegen, the Netherlands. Electronic address: s.opthoog@etz.nl. 2. Research Department Innovation of Care, HAN University of Applied Sciences, Nijmegen, the Netherlands. 3. Department of Surgery, Amsterdam UMC, University of Amsterdam, University of Amsterdam, Amsterdam, the Netherlands; Menzies Health Institute Queensland and School of Nursing and Midwifery, Griffith University, Gold Coast, Australia. 4. Radboud University Medical Center, Radboud Institute for Health Sciences IQ Healthcare, the Netherlands. 5. Research Department of Emergency and Critical Care, HAN University of Applied Science, Nijmegen, the Netherlands; Radboud University Medical Center, Radboud Institute for Health Sciences IQ Healthcare, the Netherlands.
Abstract
BACKGROUND: Relatives of intensive care unit (ICU) patients play an important role as caregivers and can experience emotional distress, also referred to as post-intensive care syndrome-family. A deeper understanding of what relatives go through and what they need may provide input on how to strengthen family-centred care and, in the end, contribute to the reduction of symptoms of post-intensive care syndrome-family. METHOD: This is a qualitative descriptive study with semistructured face-to-face interviews after ICU transfers. FINDINGS: A total of 13 relatives of ICU patients participated. Relatives of ICU patients expressed five types of experiences after transfer from the ICU to the general ward: (1) relief, (2) uncertainty, (3) need to be acknowledged in becoming a caregiver, (4) sharing expectations, and (5) need for continuity in care. Relatives experience major uncertainties and prefer to be more actively involved in care and care decisions. CONCLUSION: Relatives of ICU patients experience gaps in care during the transition from the ICU to a general ward. Nurses can play a crucial role in the need for continuity of care by proactively involving relatives during the care pathway of ICU patients.
BACKGROUND: Relatives of intensive care unit (ICU) patients play an important role as caregivers and can experience emotional distress, also referred to as post-intensive care syndrome-family. A deeper understanding of what relatives go through and what they need may provide input on how to strengthen family-centred care and, in the end, contribute to the reduction of symptoms of post-intensive care syndrome-family. METHOD: This is a qualitative descriptive study with semistructured face-to-face interviews after ICU transfers. FINDINGS: A total of 13 relatives of ICU patients participated. Relatives of ICU patients expressed five types of experiences after transfer from the ICU to the general ward: (1) relief, (2) uncertainty, (3) need to be acknowledged in becoming a caregiver, (4) sharing expectations, and (5) need for continuity in care. Relatives experience major uncertainties and prefer to be more actively involved in care and care decisions. CONCLUSION: Relatives of ICU patients experience gaps in care during the transition from the ICU to a general ward. Nurses can play a crucial role in the need for continuity of care by proactively involving relatives during the care pathway of ICU patients.
Authors: Bram Hengeveld; Jolanda M Maaskant; Robert Lindeboom; Andrea P Marshall; Hester Vermeulen; Anne M Eskes Journal: J Adv Nurs Date: 2020-12-13 Impact factor: 3.187
Authors: Brianna K Rosgen; Kara M Plotnikoff; Karla D Krewulak; Anmol Shahid; Laura Hernandez; Bonnie G Sept; Jeanna Morrissey; Kristin Robertson; Nancy Fraser; Daniel J Niven; Sharon E Straus; Jeanna Parsons Leigh; Henry T Stelfox; Kirsten M Fiest Journal: BMC Health Serv Res Date: 2022-01-02 Impact factor: 2.655