Literature DB >> 32075871

A Process-Based Approach to Responding to Parents or Guardians Who Hope for a Miracle.

Trevor M Bibler1,2, Devan Stahl3, Sophia Fantus4, Alex Lion5, Kyle B Brothers6.   

Abstract

When parents or guardians hope for a miracle for their child who is critically ill, ethical and professional challenges can arise. Often, although not always, the parent or guardian's hope for a miracle entails a request for continued life-sustaining interventions. Striking a balance between the pediatrician's conception of good medicine and the parent or guardian's authority requires a response that is sensitive, practical, and ethically sound. In this article, we recommend 3 cumulative steps that promote such a response. First, we recommend ways of exploring essential issues through open inquiry, interdisciplinary dialogue, and self-reflection. As part of this exploration, pediatricians will discover that parents or guardians often have unique ideas about what a miracle might be for their child. The second step includes analyzing this diversity and seeking understanding. We classify the hope for a miracle into 3 distinct categories: integrated, seeking, and adaptive. After the pediatrician has categorized the parent or guardian's hope, they can consider specific recommendations. We detail context-specific responses for each kind of hope. By attending to these nuances, not only will the parent or guardian's perspective be heard but also the pediatrician's recommendation can strike a balance between advocating for their conception of good medicine and respecting the parent or guardian's beliefs.
Copyright © 2020 by the American Academy of Pediatrics.

Entities:  

Year:  2020        PMID: 32075871     DOI: 10.1542/peds.2019-2319

Source DB:  PubMed          Journal:  Pediatrics        ISSN: 0031-4005            Impact factor:   7.124


  2 in total

Review 1.  Praying for a Miracle Part II: Idiosyncrasies of Spirituality and Its Relations With Religious Expressions in Health.

Authors:  Marta Helena de Freitas; Miriam Martins Leal; Emmanuel Ifeka Nwora
Journal:  Front Psychol       Date:  2022-06-27

Review 2.  Praying for a Miracle: Negative or Positive Impacts on Health Care?

Authors:  Miriam Martins Leal; Emmanuel Ifeka Nwora; Gislane Ferreira de Melo; Marta Helena Freitas
Journal:  Front Psychol       Date:  2022-04-21
  2 in total

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