Yu-Tzu Wu1,2, Sharon M Nelis1, Catherine Quinn1,3, Anthony Martyr1, Ian R Jones4, Christina R Victor5, Martin Knapp6, Catherine Henderson6, John V Hindle1, Roy W Jones7, Michael D Kopelman2, Robin G Morris2, James A Pickett8, Jennifer M Rusted9, Jeanette M Thom10, Rachael Litherland11, Fiona E Matthews12, Linda Clare1. 1. REACH: The Centre for Research in Ageing and Cognitive Health, University of Exeter Medical School and College of Life and Environment Sciences, Exeter, UK. 2. Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK. 3. Centre of Applied Dementia Studies, University of Bradford, Bradford, UK. 4. Wales Institute for Social and Economic Research, Data and Methods, Cardiff University, Cardiff, UK. 5. College of Health and Life Sciences, Brunel University London, Uxbridge, UK. 6. Personal Social Services Research Unit, London School of Economics and Political Science, London, UK. 7. Research Institute for the Care of Older People (RICE), Bath, UK. 8. Alzheimer's Society, London, UK. 9. School of Psychology, University of Sussex, Brighton, UK. 10. School of Medical Sciences, University of New South Wales, Sydney, NSW, Australia. 11. Innovations in Dementia, Exeter, UK. 12. Institute for Health and Society, Newcastle University, Newcastle upon Tyne, UK.
Abstract
BACKGROUND: a large number of studies have explored factors related to self- and informant ratings of quality of life in people with dementia, but many studies have had relatively small sample sizes and mainly focused on health conditions and dementia symptoms. The aim of this study is to compare self- and informant-rated quality of life, life satisfaction and well-being, and investigate the relationships of the two different rating methods with various social, psychological and health factors, using a large cohort study of community-dwelling people with dementia and carers in Great Britain. METHODS: this study included 1,283 dyads of people with mild-to-moderate dementia and their primary carers in the Improving the experience of Dementia and Enhancing Active Life study. Multivariate modelling was used to investigate associations of self- and informant-rated quality of life, life satisfaction and well-being with factors in five domains: psychological characteristics and health; social location; capitals, assets and resources; physical fitness and health; and managing everyday life with dementia. RESULTS: people with dementia rated their quality of life, life satisfaction and well-being more highly than did the informants. Despite these differences, the two approaches had similar relationships with social, psychological and physical health factors in the five domains. CONCLUSION: although self- and informant ratings differ, they display similar results when focusing on factors associated with quality of life, life satisfaction and well-being. Either self- or informant ratings may offer a reasonable source of information about people with dementia in terms of understanding associated factors.
BACKGROUND: a large number of studies have explored factors related to self- and informant ratings of quality of life in people with dementia, but many studies have had relatively small sample sizes and mainly focused on health conditions and dementia symptoms. The aim of this study is to compare self- and informant-rated quality of life, life satisfaction and well-being, and investigate the relationships of the two different rating methods with various social, psychological and health factors, using a large cohort study of community-dwelling people with dementia and carers in Great Britain. METHODS: this study included 1,283 dyads of people with mild-to-moderate dementia and their primary carers in the Improving the experience of Dementia and Enhancing Active Life study. Multivariate modelling was used to investigate associations of self- and informant-rated quality of life, life satisfaction and well-being with factors in five domains: psychological characteristics and health; social location; capitals, assets and resources; physical fitness and health; and managing everyday life with dementia. RESULTS:people with dementia rated their quality of life, life satisfaction and well-being more highly than did the informants. Despite these differences, the two approaches had similar relationships with social, psychological and physical health factors in the five domains. CONCLUSION: although self- and informant ratings differ, they display similar results when focusing on factors associated with quality of life, life satisfaction and well-being. Either self- or informant ratings may offer a reasonable source of information about people with dementia in terms of understanding associated factors.
Authors: Serena Sabatini; Holly Q Bennett; Anthony Martyr; Rachel Collins; Laura D Gamble; Fiona E Matthews; Claire Pentecost; Eleanor Dawson; Anna Hunt; Sophie Parker; Louise Allan; Alistair Burns; Rachael Litherland; Catherine Quinn; Linda Clare Journal: Front Psychiatry Date: 2022-03-09 Impact factor: 4.157
Authors: Linda Clare; Laura D Gamble; Anthony Martyr; Catherine Quinn; Rachael Litherland; Robin G Morris; Ian R Jones; Fiona E Matthews Journal: Psychol Aging Date: 2021-12-09