Literature DB >> 32034653

Survey of NCHDs in Ireland to assess their views and opinions in relation to participation in health research and the impact of new Irish data protection regulations.

Rachel Wallace1, Elaine Greene2.   

Abstract

BACKGROUND: Since August 2018, Irish health research is regulated by the European General Data Protection Act (GDPR) 2016 with the (Irish) Data Protection Act and Health Research Regulations (HRR) 2018. The Irish application of GDPR has been criticised by consultants and academics as overly restrictive; however, Non-consultant Hospital Doctor's (NCHD's) perspectives have not been explored. OBJECTIVES/AIMS: This project aimed to collect the views of NCHDs in Ireland in relation to health research and the impact of GDPR and HRR. Internationally barriers to engagement with health research have been identified; however, to our knowledge, no previous studies have been conducted in Ireland.
METHODS: Agreeable Irish specialty colleges and faculties distributed an online survey to their NCHDs. Social media platforms were also used to promote the survey. All data collected was anonymised.
RESULTS: A total of 192 NCHDs completed the survey; respondents included doctors from 13 specialties, with representation from each NCHD grade. Ninety-nine percent had previously participated in research, and 87% acknowledged the importance for doctors to be involved in research. Forty-four percent of NCHDs stated they would consider travelling abroad to complete research. Eighty-six percent agreed training relating to the new regulations would be useful; however, only 25% had received training.
CONCLUSIONS: Our results confirm that NCHDs in Ireland are enthusiastic about engaging in research. The majority acknowledge the value of research in career development. Engaging in research abroad could be further explored as a factor impacting emigration. Our findings show that NCHDs in Ireland are concerned about the impact of GDPR and HRR and are seeking further training.

Keywords:  Data Protection; GDPR; Health Research; NCHD; Trainee; Training

Year:  2020        PMID: 32034653     DOI: 10.1007/s11845-020-02185-8

Source DB:  PubMed          Journal:  Ir J Med Sci        ISSN: 0021-1265            Impact factor:   1.568


  2 in total

1.  What GDPR and the Health Research Regulations (HRRs) mean for Ireland: "explicit consent"-a legal analysis.

Authors:  Mary Kirwan; Blanaid Mee; Niamh Clarke; Aoife Tanaka; Lino Manaloto; Emma Halpin; Una Gibbons; Ann Cullen; Sarah McGarrigle; Elisabeth M Connolly; Kathleen Bennett; Eoin Gaffney; Ciaran Flanagan; Laura Tier; Richard Flavin; Noel G McElvaney
Journal:  Ir J Med Sci       Date:  2020-07-30       Impact factor: 1.568

2.  What GDPR and the Health Research Regulations (HRRs) mean for Ireland: a research perspective.

Authors:  Blanaid Mee; Mary Kirwan; Niamh Clarke; Aoife Tanaka; Lino Manaloto; Emma Halpin; Una Gibbons; Ann Cullen; Sarah McGarrigle; Elisabeth M Connolly; Kathleen Bennett; Eoin Gaffney; Ciaran Flanagan; Laura Tier; Richard Flavin; Noel G McElvaney
Journal:  Ir J Med Sci       Date:  2020-07-29       Impact factor: 1.568

  2 in total

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