Literature DB >> 32034515

An exploratory study in breast cancer of factors involved in the use and communication with health professionals of Internet information.

Cristian Ochoa-Arnedo1,2,3, Aida Flix-Valle4,5, Anna Casellas-Grau4, Nuria Casanovas-Aljaro6, Olga Herrero6, Enric C Sumalla4, María Lleras de Frutos4,5, Agustina Sirgo7, Ana Rodríguez4, Gloria Campos4, Yolanda Valverde4, Noémie Travier4,8, Joan Carles Medina4,5,8.   

Abstract

OBJECTIVE: To study the impact of the spontaneous use of Internet on breast cancer patients and on their relationship with health professionals.
METHODS: A mixed methodology was used. Two questionnaires were designed through three focus groups, and then administered to 186 patients and 59 professionals in order to assess: (1) patients' use of Internet for health-related information and (2) the impact of this information on patients' psychological outcomes and on their relationship with professionals.
RESULTS: Patients spent more time looking for illness-related information after diagnosis, using interactive communities more than static information websites. Patients and professionals disagreed about the use of Internet in terms of the knowledge it provides, and its psychological impact. The main barrier reported by patients regarding the sharing of online information with their professionals was the belief that it would damage their relationship.
CONCLUSIONS: Both professionals and patients have a protectionist conception of the therapeutic relationship. This attitude tends to dismiss the positive impact that the use of Internet and the new communication tools may have in cancer patients. New resources should provide an "Internet Prescription" and modes of interaction to facilitate a more open digital communication.

Entities:  

Keywords:  Breast cancer; Internet prescription; Oncology; Therapeutic relationship

Mesh:

Year:  2020        PMID: 32034515     DOI: 10.1007/s00520-020-05335-x

Source DB:  PubMed          Journal:  Support Care Cancer        ISSN: 0941-4355            Impact factor:   3.603


  21 in total

1.  Tangled in the breast cancer web: an evaluation of the usage of web-based information resources by breast cancer patients.

Authors:  Sonia Kim Anh Nguyen; Paris-Ann Ingledew
Journal:  J Cancer Educ       Date:  2013-12       Impact factor: 2.037

Review 2.  Internet-based support programs to alleviate psychosocial and physical symptoms in cancer patients: a literature analysis.

Authors:  Grietje Bouma; Jolien M Admiraal; Elisabeth G E de Vries; Carolien P Schröder; Annemiek M E Walenkamp; Anna K L Reyners
Journal:  Crit Rev Oncol Hematol       Date:  2015-01-31       Impact factor: 6.312

3.  Health-Related Information-Seeking Behaviors and Preferences Among Mexican Patients with Cancer.

Authors:  Enrique Soto-Perez-de-Celis; Viridiana Perez-Montessoro; Patricia Rojo-Castillo; Yanin Chavarri-Guerra
Journal:  J Cancer Educ       Date:  2018-06       Impact factor: 2.037

Review 4.  Addressing the treatment gap: A key challenge for extending evidence-based psychosocial interventions.

Authors:  Alan E Kazdin
Journal:  Behav Res Ther       Date:  2017-01

5.  Perceived Stress in Online Prostate Cancer Community Participants: Examining Relationships with Stigmatization, Social Support Network Preference, and Social Support Seeking.

Authors:  Camella J Rising; Nadine Bol; Amelia Burke-Garcia; Stephen Rains; Kevin B Wright
Journal:  J Health Commun       Date:  2017-04-17

6.  [Information needs and internet use in patients with breast cancer in Spain].

Authors:  Analía Abt Sacks; Susana Pablo Hernando; Pedro Serrano Aguilar; Enrique Fernández Vega; Roberto Martín Fernández
Journal:  Gac Sanit       Date:  2012-09-01       Impact factor: 2.139

7.  The role of posttraumatic stress and posttraumatic growth on online information use in breast cancer survivors.

Authors:  A Casellas-Grau; E C Sumalla; M Lleras; J Vives; A Sirgo; C León; A Rodríguez; G Campos; Y Valverde; J M Borràs; C Ochoa
Journal:  Psychooncology       Date:  2018-05-25       Impact factor: 3.894

8.  Online support groups for head and neck cancer and health-related quality of life.

Authors:  Eamar Algtewi; Janine Owens; Sarah R Baker
Journal:  Qual Life Res       Date:  2017-04-17       Impact factor: 4.147

9.  Thyroid cancer survivors' perceptions of survivorship care follow-up options: a cross-sectional, mixed-methods survey.

Authors:  Jacqueline L Bender; David Wiljer; Anna M Sawka; Richard Tsang; Nour Alkazaz; James D Brierley
Journal:  Support Care Cancer       Date:  2015-11-03       Impact factor: 3.359

10.  Effectiveness, acceptance and satisfaction of guided chat groups in psychosocial aftercare for outpatients with prostate cancer after prostatectomy.

Authors:  Lukas Lange; Juliane Fink; Christiane Bleich; Markus Graefen; Holger Schulz
Journal:  Internet Interv       Date:  2017-06-15
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  3 in total

Review 1.  How technology impacts communication between cancer patients and their health care providers: A systematic literature review.

Authors:  Safa ElKefi; Onur Asan
Journal:  Int J Med Inform       Date:  2021-02-22       Impact factor: 4.046

2.  E-health ecosystem with integrated and stepped psychosocial services for breast cancer survivors: study protocol of a multicentre randomised controlled trial.

Authors:  Cristian Ochoa-Arnedo; Joan Carles Medina; Aida Flix-Valle; Dimitra Anastasiadou
Journal:  BMJ Open       Date:  2021-03-08       Impact factor: 2.692

3.  A Digital Cancer Ecosystem to Deliver Health and Psychosocial Education as Preventive Intervention.

Authors:  Laura Ciria-Suarez; Laura Costas; Aida Flix-Valle; Maria Serra-Blasco; Joan C Medina; Cristian Ochoa-Arnedo
Journal:  Cancers (Basel)       Date:  2022-07-30       Impact factor: 6.575

  3 in total

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