Cristian Ochoa-Arnedo1,2,3, Aida Flix-Valle4,5, Anna Casellas-Grau4, Nuria Casanovas-Aljaro6, Olga Herrero6, Enric C Sumalla4, María Lleras de Frutos4,5, Agustina Sirgo7, Ana Rodríguez4, Gloria Campos4, Yolanda Valverde4, Noémie Travier4,8, Joan Carles Medina4,5,8. 1. Unidad de Psico-Oncología, Institut Català d'Oncologia, Av. Gran Via de l'Hospitalet, 199-203, 08908, L'Hospitalet de Llobregat, Barcelona, Spain. cochoa@iconcologia.net. 2. Universitat de Barcelona, Barcelona, Spain. cochoa@iconcologia.net. 3. Psico-oncologia, Recerca en serveis sanitaris en càncer, Institut d'Investigació Biomèdica de Bellvitge (IDIBELL), Hospitalet del Llobregat, Barcelona, Spain. cochoa@iconcologia.net. 4. Unidad de Psico-Oncología, Institut Català d'Oncologia, Av. Gran Via de l'Hospitalet, 199-203, 08908, L'Hospitalet de Llobregat, Barcelona, Spain. 5. Universitat de Barcelona, Barcelona, Spain. 6. Universitat Ramon Llull de Barcelona, Barcelona, Spain. 7. Hospital Sant Joan de Reus, Tarragona, Spain. 8. Psico-oncologia, Recerca en serveis sanitaris en càncer, Institut d'Investigació Biomèdica de Bellvitge (IDIBELL), Hospitalet del Llobregat, Barcelona, Spain.
Abstract
OBJECTIVE: To study the impact of the spontaneous use of Internet on breast cancer patients and on their relationship with health professionals. METHODS: A mixed methodology was used. Two questionnaires were designed through three focus groups, and then administered to 186 patients and 59 professionals in order to assess: (1) patients' use of Internet for health-related information and (2) the impact of this information on patients' psychological outcomes and on their relationship with professionals. RESULTS: Patients spent more time looking for illness-related information after diagnosis, using interactive communities more than static information websites. Patients and professionals disagreed about the use of Internet in terms of the knowledge it provides, and its psychological impact. The main barrier reported by patients regarding the sharing of online information with their professionals was the belief that it would damage their relationship. CONCLUSIONS: Both professionals and patients have a protectionist conception of the therapeutic relationship. This attitude tends to dismiss the positive impact that the use of Internet and the new communication tools may have in cancer patients. New resources should provide an "Internet Prescription" and modes of interaction to facilitate a more open digital communication.
OBJECTIVE: To study the impact of the spontaneous use of Internet on breast cancerpatients and on their relationship with health professionals. METHODS: A mixed methodology was used. Two questionnaires were designed through three focus groups, and then administered to 186 patients and 59 professionals in order to assess: (1) patients' use of Internet for health-related information and (2) the impact of this information on patients' psychological outcomes and on their relationship with professionals. RESULTS:Patients spent more time looking for illness-related information after diagnosis, using interactive communities more than static information websites. Patients and professionals disagreed about the use of Internet in terms of the knowledge it provides, and its psychological impact. The main barrier reported by patients regarding the sharing of online information with their professionals was the belief that it would damage their relationship. CONCLUSIONS: Both professionals and patients have a protectionist conception of the therapeutic relationship. This attitude tends to dismiss the positive impact that the use of Internet and the new communication tools may have in cancerpatients. New resources should provide an "Internet Prescription" and modes of interaction to facilitate a more open digital communication.
Entities:
Keywords:
Breast cancer; Internet prescription; Oncology; Therapeutic relationship
Authors: Grietje Bouma; Jolien M Admiraal; Elisabeth G E de Vries; Carolien P Schröder; Annemiek M E Walenkamp; Anna K L Reyners Journal: Crit Rev Oncol Hematol Date: 2015-01-31 Impact factor: 6.312
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