Literature DB >> 32025008

Genomics: data sharing needs an international code of conduct.

Mark Phillips, Fruzsina Molnár-Gábor, Jan O Korbel, Adrian Thorogood, Yann Joly, Don Chalmers, David Townend, Bartha M Knoppers.   

Abstract

Keywords:  Cancer; Databases; Genomics; Research data

Mesh：

Year:  2020        PMID： 32025008     DOI： 10.1038/d41586-020-00082-9

Source DB:  PubMed          Journal:  Nature        ISSN： 0028-0836            Impact factor:   49.962


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  10 in total

1.  Lessons learned and recommendations for data coordination in collaborative research: The CSER consortium experience.

Authors:  Kathleen D Muenzen; Laura M Amendola; Tia L Kauffman; Kathleen F Mittendorf; Jeannette T Bensen; Flavia Chen; Richard Green; Bradford C Powell; Mark Kvale; Frank Angelo; Laura Farnan; Stephanie M Fullerton; Jill O Robinson; Tianran Li; Priyanka Murali; James M J Lawlor; Jeffrey Ou; Lucia A Hindorff; Gail P Jarvik; David R Crosslin
Journal:  HGG Adv       Date:  2022-05-20

2.  Pan-cancer analysis of whole genomes.

Authors: 
Journal:  Nature       Date:  2020-02-05       Impact factor: 49.962

3.  The Elements of Data Sharing.

Authors:  Zhang Zhang; Shuhui Song; Jun Yu; Wenming Zhao; Jingfa Xiao; Yiming Bao
Journal:  Genomics Proteomics Bioinformatics       Date:  2020-04-28       Impact factor: 7.691

4.  Genomic data sharing in Europe is stumbling-Could a code of conduct prevent its fall?

Authors:  Fruzsina Molnár-Gábor; Jan O Korbel
Journal:  EMBO Mol Med       Date:  2020-02-18       Impact factor: 12.137

5.  Italian public's views on sharing genetic information and medical information: findings from the 'Your DNA, Your Say' study.

Authors:  Virginia Romano; Richard Milne; Deborah Mascalzoni
Journal:  Wellcome Open Res       Date:  2021-07-12

6.  Challenges and opportunities for using population health data to investigate cancer survivors' quality of life in Australia.

Authors:  Imogen Ramsey; Nadia Corsini; Amanda Hutchinson; Julie Marker; Marion Eckert
Journal:  Qual Life Res       Date:  2022-03-04       Impact factor: 3.440

Review 7.  Decoding human cancer with whole genome sequencing: a review of PCAWG Project studies published in February 2020.

Authors:  Simona Giunta
Journal:  Cancer Metastasis Rev       Date:  2021-06-07       Impact factor: 9.264

Review 8.  Strategies to Uplift Novel Mendelian Gene Discovery for Improved Clinical Outcomes.

Authors:  Eleanor G Seaby; Heidi L Rehm; Anne O'Donnell-Luria
Journal:  Front Genet       Date:  2021-06-17       Impact factor: 4.599

9.  Revolutionizing Medical Data Sharing Using Advanced Privacy-Enhancing Technologies: Technical, Legal, and Ethical Synthesis.

Authors:  James Scheibner; Jean Louis Raisaro; Juan Ramón Troncoso-Pastoriza; Marcello Ienca; Jacques Fellay; Effy Vayena; Jean-Pierre Hubaux
Journal:  J Med Internet Res       Date:  2021-02-25       Impact factor: 5.428

10.  Apropos Data Sharing: Abandon the Distrust and Embrace the Opportunity.

Authors:  Giorgia Brambilla Pisoni; Mariarosaria Taddeo
Journal:  DNA Cell Biol       Date:  2021-12-23       Impact factor: 3.311
  10 in total

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