Cynthia P Paidipati1, Janet A Deatrick2, Ricardo B Eiraldi3, Connie M Ulrich4, Bridgette M Brawner5. 1. Loyola University Chicago, Marcella Niehoff School of Nursing, Maywood, IL, USA. Electronic address: cpaidipati@luc.edu. 2. University of Pennsylvania, School of Nursing, Philadelphia, PA, USA. Electronic address: deatrick@upenn.edu. 3. University of Pennsylvania, Perelman School of Medicine, Clinical Psychology in Pediatrics, Philadelphia, PA, USA; Children's Hospital of Philadelphia, Robert's Center for Pediatric Research, Philadelphia, PA, USA. Electronic address: eiraldi@email.chop.edu. 4. University of Pennsylvania, School of Nursing, Philadelphia, PA, USA; University of Pennsylvania, Perelman School of Medicine, Bioethics, Philadelphia, PA, USA. Electronic address: culrich@upenn.edu. 5. University of Pennsylvania, School of Nursing, Philadelphia, PA, USA. Electronic address: brawnerb@upenn.edu.
Abstract
PURPOSE: The purpose of this study was to better understand how caregivers and families manage childhood Attention Deficit Hyperactivity Disorder (ADHD) in their everyday lives and explore family management factors most relevant to child outcomes, including the child's daily life, condition management effort, condition management ability, and view of condition impact. DESIGN AND METHODS: Cross-sectional data from caregivers (N = 50) of children with ADHD (ages 5-12 years) within a large northeastern city were collected, analyzed, and interpreted using directed content analysis and qualitative methods. This inquiry was part of a larger mixed method study which examined the impact of family management on childhood ADHD and how family management factors were related to children's level of impairment across a spectrum of child functioning. RESULTS: Thematic summaries based on qualitative descriptive methods highlighted four aspects of family management including: 1) how caregivers contextualized their child's condition in everyday family life, 2) the significant effort required by caregivers to manage their child's ADHD, 3) how caregivers perceived their ability to manage their child's condition, and 4) the impact of ADHD on their child and family's future. CONCLUSIONS: Family management is an important concept within pediatric literature and may be extended to further research and practice changes for children with ADHD and their caregivers. PRACTICE IMPLICATIONS: Pediatric nurses are at the forefront of working with children and families. Understanding caregiver perspectives in regard to family management is important for strengthening collaborative partnerships with families and improving the care of children with ADHD.
PURPOSE: The purpose of this study was to better understand how caregivers and families manage childhood Attention Deficit Hyperactivity Disorder (ADHD) in their everyday lives and explore family management factors most relevant to child outcomes, including the child's daily life, condition management effort, condition management ability, and view of condition impact. DESIGN AND METHODS: Cross-sectional data from caregivers (N = 50) of children with ADHD (ages 5-12 years) within a large northeastern city were collected, analyzed, and interpreted using directed content analysis and qualitative methods. This inquiry was part of a larger mixed method study which examined the impact of family management on childhood ADHD and how family management factors were related to children's level of impairment across a spectrum of child functioning. RESULTS: Thematic summaries based on qualitative descriptive methods highlighted four aspects of family management including: 1) how caregivers contextualized their child's condition in everyday family life, 2) the significant effort required by caregivers to manage their child's ADHD, 3) how caregivers perceived their ability to manage their child's condition, and 4) the impact of ADHD on their child and family's future. CONCLUSIONS: Family management is an important concept within pediatric literature and may be extended to further research and practice changes for children with ADHD and their caregivers. PRACTICE IMPLICATIONS: Pediatric nurses are at the forefront of working with children and families. Understanding caregiver perspectives in regard to family management is important for strengthening collaborative partnerships with families and improving the care of children with ADHD.
Authors: Henry Yin; Brendan Ibe; Tiffany L Parr; Seema Csukas; Bobby L Jones; Sandra Thompson Journal: Qual Manag Health Care Date: 2021-09-24 Impact factor: 1.147