Sarah J Iribarren1, Yvette Rodriguez2, Lorelei Lin3, Cristina Chirico4, Vilda Discacciati5, Rebecca Schnall6, George Demiris7. 1. Biobehavioral Nursing and Health Informatics, University of Washington, 1959 NE Pacific Street, Seattle, WA, 98195, USA. Electronic address: sjiribar@uw.edu. 2. University of Washington, School of Nursing, 1959 NE Pacific Street, Seattle, WA, 98195, USA. Electronic address: yvettemr@uw.edu. 3. University of Washington, School of Nursing, 1959 NE Pacific Street, Seattle, WA, 98195, USA. Electronic address: loreleil@google.com. 4. Tuberculosis Control Program of the 5th Health Region, Ministry of Health of the Province of Buenos Aires, Hospital Cetrangolo, Buenos Aires, Argentina. Electronic address: mchirino@intramed.net. 5. Division of Family and Community Medicine, Hospital Italiano de Buenos Aires, Juan D. Perón 4190, C1181ACH Buenos Aires, Argentina. Electronic address: vilda.discacciati@hospitalitaliano.org.ar. 6. Columbia University, School of Nursing, Columbia University, New York, NY, USA. Electronic address: rb897@columbia.edu. 7. University of Pennsylvania, School of Nursing, Claire Fagin Hall, Rm 324, 418 Curie Blvd, Philadelphia PA, 19104, USA. Electronic address: gdemiris@nursing.upenn.edu.
Abstract
BACKGROUND: Non-adherence to tuberculosis (TB) treatment jeopardizes the individual's health and contributes to disease transmission and drug resistance. New patient-centered strategies are needed to improve TB treatment outcomes. PURPOSE: To convert and expand a texting-based intervention into a mobile optimized application (app), evaluate the feasibility of an added self-administered paper-based drug metabolite test, and identify needs and preferences to inform their iterative design. METHODS: Qualitative methods using focus groups and field testing with patients in active TB treatment were used to gather initial input on the converted intervention design, content and issues using at home test strips to report medication adherence. Seven participants were recruited from an outpatient clinic within a regional public reference hospital specialized in respiratory diseases in Argentina. Thematic analyses were conducted on the transcripts and session notes. RESULTS: Participants considered interactive communication, access to answers to frequently asked questions, and tracking of progress in treatment as important. Participants reported having many questions and uncertainties at initiation of treatment and emphasized a need for reliable information, assurance and support from both providers and peers. Other suggestions included streamlining the graphical user interface for easier and shorter data entry times and usability. CONCLUSIONS: Overall feedback from the participants regarding the intervention was positive, reporting that it was useful and relevant, and they were eager to contribute their ideas for improvement and additional functionality. Valuable feedback to improve functionality and meet the needs of end-users were obtained to inform the generation of new design ideas for refinement and testing in a pilot study.
BACKGROUND: Non-adherence to tuberculosis (TB) treatment jeopardizes the individual's health and contributes to disease transmission and drug resistance. New patient-centered strategies are needed to improve TB treatment outcomes. PURPOSE: To convert and expand a texting-based intervention into a mobile optimized application (app), evaluate the feasibility of an added self-administered paper-based drug metabolite test, and identify needs and preferences to inform their iterative design. METHODS: Qualitative methods using focus groups and field testing with patients in active TB treatment were used to gather initial input on the converted intervention design, content and issues using at home test strips to report medication adherence. Seven participants were recruited from an outpatient clinic within a regional public reference hospital specialized in respiratory diseases in Argentina. Thematic analyses were conducted on the transcripts and session notes. RESULTS:Participants considered interactive communication, access to answers to frequently asked questions, and tracking of progress in treatment as important. Participants reported having many questions and uncertainties at initiation of treatment and emphasized a need for reliable information, assurance and support from both providers and peers. Other suggestions included streamlining the graphical user interface for easier and shorter data entry times and usability. CONCLUSIONS: Overall feedback from the participants regarding the intervention was positive, reporting that it was useful and relevant, and they were eager to contribute their ideas for improvement and additional functionality. Valuable feedback to improve functionality and meet the needs of end-users were obtained to inform the generation of new design ideas for refinement and testing in a pilot study.
Authors: Jodie M Dodd; Jennie Louise; Courtney Cramp; Rosalie M Grivell; Lisa J Moran; Andrea R Deussen Journal: Matern Child Nutr Date: 2017-08-24 Impact factor: 3.092
Authors: Sarah J Iribarren; Hannah Milligan; Cristina Chirico; Kyle Goodwin; Rebecca Schnall; Hugo Telles; Alejandra Iannizzotto; Myrian Sanjurjo; Barry R Lutz; Kenneth Pike; Fernando Rubinstein; Marcus Rhodehamel; Daniel Leon; Jesse Keyes; George Demiris Journal: Lancet Reg Health Am Date: 2022-06-10