Literature DB >> 31971479

Integrating Spinal Cord Injury - Quality of Life instruments into rehabilitation: Implementation science to guide adoption of patient-reported outcome measures.

Kristian P Nitsch1, Kelsey Stipp2, Kristen Gracz3, Linda Ehrlich-Jones4,5, Ian D Graham6,7, Allen W Heinemann5,8.   

Abstract

Context/objective: This study describes a development strategy for integrating the Spinal Cord Injury - Quality of Life (SCI-QOL) item banks into inpatient spinal cord injury (SCI) rehabilitation and recommendations for protocol implementation.Design: We adopted an implementation science approach to develop a strategy for adapting and contextualizing SCI-QOL use during SCI rehabilitation. We conducted focus groups and stakeholder meetings with clinical assessment champions to (1) identify barriers and supports to SCI-QOL adoption; (2) reduce barriers and emphasize supports; (3) evaluate and select relevant SCI-QOL domains and item banks; (4) develop administration and reporting guidelines; and (5) identify hospital roles to alert with SCI-QOL results.Setting: A regional inpatient rehabilitation hospital. This study focuses on clinicians providing inpatient rehabilitation to patients with SCI.Participants: Fifty-nine clinicians, including physicians, speech language pathologists, occupational and physical therapists, nurses, and social workers providing care to SCI inpatients.Interventions: N/A.Outcome measures: N/A.
Results: Clinicians identified the SCI-QOL domains that were most relevant to inpatient care; when SCI-QOL should be administered; what hospital roles were best suited for administering SCI-QOL; how results should be displayed in the electronic medical record; and which clinical roles needed notification of SCI-QOL results.Conclusions: Clinicians acknowledge the value of patient-reported outcome measures in inpatient SCI rehabilitation, but noted barriers to adoption. Engaging clinicians in the decision-making process for developing an implementation and administration protocol can inform strategies to overcome barriers and emphasize supports.

Entities:  

Keywords:  Assessment; Implementation science; Inpatient rehabilitation; Knowledge translation; Patient-reported outcomes measures; Quality of life; Spinal cord injury

Mesh:

Year:  2020        PMID: 31971479      PMCID: PMC8725717          DOI: 10.1080/10790268.2020.1712893

Source DB:  PubMed          Journal:  J Spinal Cord Med        ISSN: 1079-0268            Impact factor:   1.985


  30 in total

1.  The neurology quality-of-life measurement initiative.

Authors:  David Cella; Cindy Nowinski; Amy Peterman; David Victorson; Deborah Miller; Jin-Shei Lai; Claudia Moy
Journal:  Arch Phys Med Rehabil       Date:  2011-10       Impact factor: 3.966

2.  Lost in knowledge translation: time for a map?

Authors:  Ian D Graham; Jo Logan; Margaret B Harrison; Sharon E Straus; Jacqueline Tetroe; Wenda Caswell; Nicole Robinson
Journal:  J Contin Educ Health Prof       Date:  2006       Impact factor: 1.355

3.  The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008.

Authors:  David Cella; William Riley; Arthur Stone; Nan Rothrock; Bryce Reeve; Susan Yount; Dagmar Amtmann; Rita Bode; Daniel Buysse; Seung Choi; Karon Cook; Robert Devellis; Darren DeWalt; James F Fries; Richard Gershon; Elizabeth A Hahn; Jin-Shei Lai; Paul Pilkonis; Dennis Revicki; Matthias Rose; Kevin Weinfurt; Ron Hays
Journal:  J Clin Epidemiol       Date:  2010-08-04       Impact factor: 6.437

4.  Development and initial evaluation of the spinal cord injury-functional index.

Authors:  Alan M Jette; David S Tulsky; Pengsheng Ni; Pamela A Kisala; Mary D Slavin; Marcel P Dijkers; Allen W Heinemann; Denise G Tate; Gale Whiteneck; Susan Charlifue; Bethlyn Houlihan; Steve Williams; Steven Kirshblum; Trevor Dyson-Hudson; Jeanne Zanca; Denise Fyffe
Journal:  Arch Phys Med Rehabil       Date:  2012-05-17       Impact factor: 3.966

5.  Development and use of a knowledge translation tool: the rehabilitation measures database.

Authors:  Jennifer L Moore; Jason Raad; Linda Ehrlich-Jones; Allen W Heinemann
Journal:  Arch Phys Med Rehabil       Date:  2013-09-26       Impact factor: 3.966

6.  Patient-reported outcomes (PROs): putting the patient perspective in patient-centered outcomes research.

Authors:  Claire F Snyder; Roxanne E Jensen; Jodi B Segal; Albert W Wu
Journal:  Med Care       Date:  2013-08       Impact factor: 2.983

7.  Outcome measures in physiotherapy management of patients with stroke: a survey into self-reported use, and barriers to and facilitators for use.

Authors:  Roland P S Van Peppen; Francois J F Maissan; Frank R Van Genderen; Rob Van Dolder; Nico L U Van Meeteren
Journal:  Physiother Res Int       Date:  2008-12

8.  Guidelines for Inclusion of Patient-Reported Outcomes in Clinical Trial Protocols: The SPIRIT-PRO Extension.

Authors:  Melanie Calvert; Derek Kyte; Rebecca Mercieca-Bebber; Anita Slade; An-Wen Chan; Madeleine T King; Amanda Hunn; Andrew Bottomley; Antoine Regnault; An-Wen Chan; Carolyn Ells; Daniel O'Connor; Dennis Revicki; Donald Patrick; Doug Altman; Ethan Basch; Galina Velikova; Gary Price; Heather Draper; Jane Blazeby; Jane Scott; Joanna Coast; Josephine Norquist; Julia Brown; Kirstie Haywood; Laura Lee Johnson; Lisa Campbell; Lori Frank; Maria von Hildebrand; Michael Brundage; Michael Palmer; Paul Kluetz; Richard Stephens; Robert M Golub; Sandra Mitchell; Trish Groves
Journal:  JAMA       Date:  2018-02-06       Impact factor: 56.272

9.  Patient-reported outcomes: A new era in clinical research.

Authors:  Prasanna R Deshpande; Surulivel Rajan; B Lakshmi Sudeepthi; C P Abdul Nazir
Journal:  Perspect Clin Res       Date:  2011-10

10.  The Spinal Cord Injury--Quality of Life (SCI-QOL) measurement system: Development, psychometrics, and item bank calibration.

Authors:  David S Tulsky; Pamela A Kisala
Journal:  J Spinal Cord Med       Date:  2015-05       Impact factor: 1.985

View more
  1 in total

1.  Health-Related Perceptions of Older Adults/Patients with Degenerative Lumbar Diseases (ODLs) are associated with their Quality of Life: a Mixed-Methods Study.

Authors:  Yuhui Ruan; Weisin Chen; Chenyang Zhuang; Hong Lin
Journal:  Patient Prefer Adherence       Date:  2021-10-08       Impact factor: 2.711

  1 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.