Literature DB >> 31971432

Assessing vigilance in caregivers after traumatic brain injury: TBI-CareQOL Caregiver Vigilance.

Noelle E Carlozzi1, Rael T Lange2, Michael A Kallen3, Nicholas R Boileau1, Angelle M Sander4, Jill P Massengale5, Risa Nakase-Richardson5, David S Tulsky6, Louis M French2, Elizabeth A Hahn3, Phillip A Ianni7, Jennifer A Miner1, Robin Hanks8, Tracey A Brickell2.   

Abstract

OBJECTIVE: Caregivers of individuals with traumatic brain injury (TBI) frequently experience anxiety related to the caregiver role. Often this is due to a caregiver's perceived need to avoid people and situations that might upset or "trigger" the care recipient. There are currently no self-report measures that capture these feelings; thus, this article describes the development and preliminary validation efforts for the TBI-Caregiver Quality of Life (CareQOL) Caregiver Vigilance item bank.
DESIGN: A sample of 532 caregivers of civilians (n = 218) or service members/veterans (SMVs; n = 314) with TBI completed 32 caregiver vigilance items, other measures of health-related quality of life (RAND-12, Patient-Reported Outcomes Measurement Information System [PROMIS] Depression, PROMIS Social Isolation, Caregiver Appraisal Scale), and the Mayo-Portland Adaptability Inventory-4.
RESULTS: The final item bank contains 18 items, as supported by exploratory and confirmatory factor analysis, item response theory graded response modeling (GRM), and differential item functioning investigations. Expert review and GRM calibration data informed the selection of a 6-item short form and programming of a computer adaptive test. Internal consistency reliability for the different administration formats were excellent (reliability coefficients ≥ .90). Three-week test-retest stability was supported (i.e., r ≥ .78). Correlations between vigilance and other self-report measures supported convergent and discriminant validity (0.01 ≤ r ≤ .69). Known-groups validity was also supported.
CONCLUSIONS: The new TBI-CareQOL Caregiver Vigilance computer adaptive test and corresponding 6-item short form were developed using established rigorous measurement development standards, providing the first self-report measure to evaluate caregiver vigilance. This development work indicates that this measure exhibits strong psychometric properties. (PsycInfo Database Record (c) 2020 APA, all rights reserved).

Entities:  

Year:  2020        PMID: 31971432      PMCID: PMC7375946          DOI: 10.1037/rep0000302

Source DB:  PubMed          Journal:  Rehabil Psychol        ISSN: 0090-5550


  46 in total

1.  Secondary traumatization among wives of PTSD and post-concussion casualties: distress, caregiver burden and psychological separation.

Authors:  N Ben Arzi; Z Solomon; R Dekel
Journal:  Brain Inj       Date:  2000-08       Impact factor: 2.311

Review 2.  Personality disturbances associated with traumatic brain injury.

Authors:  G P Prigatano
Journal:  J Consult Clin Psychol       Date:  1992-06

3.  Psychological services for returning veterans and their families: evolving conceptualizations of the sequelae of war-zone experiences.

Authors:  Morgan T Sammons; Sonja V Batten
Journal:  J Clin Psychol       Date:  2008-08

4.  Caring for our wounded warriors: A qualitative examination of health-related quality of life in caregivers of individuals with military-related traumatic brain injury.

Authors:  Noelle E Carlozzi; Tracey A Brickell; Louis M French; Angelle Sander; Anna L Kratz; David S Tulsky; Nancy D Chiaravalloti; Elizabeth A Hahn; Michael Kallen; Amy M Austin; Jennifer A Miner; Rael T Lange
Journal:  J Rehabil Res Dev       Date:  2016

5.  A multidimensional measure of caregiving appraisal: validation of the Caregiver Appraisal Scale in traumatic brain injury.

Authors:  Margaret A Struchen; Timothy B Atchison; Tresa M Roebuck; Jerome S Caroselli; Angelle M Sander
Journal:  J Head Trauma Rehabil       Date:  2002-04       Impact factor: 2.710

6.  Posttraumatic amnesia and personality changes after severe traumatic brain injury: preliminary findings.

Authors:  Alexandre P Diaz; Marcelo L Schwarzbold; Ricardo Guarnieri; Maria Emília R de Oliveira Thais; Alexandre Hohl; Jean C Nunes; Marcelo N Linhares; Rui D Schroder Prediger; Roger Walz
Journal:  CNS Neurosci Ther       Date:  2014-03-31       Impact factor: 5.243

7.  Measuring caregiving appraisal.

Authors:  M P Lawton; M H Kleban; M Moss; M Rovine; A Glicksman
Journal:  J Gerontol       Date:  1989-05

8.  Association between traumatic brain injury and risk of posttraumatic stress disorder in active-duty Marines.

Authors:  Kate A Yurgil; Donald A Barkauskas; Jennifer J Vasterling; Caroline M Nievergelt; Gerald E Larson; Nicholas J Schork; Brett T Litz; William P Nash; Dewleen G Baker
Journal:  JAMA Psychiatry       Date:  2014-02       Impact factor: 21.596

9.  Caregiver burden at 6 months following severe traumatic brain injury.

Authors:  N V Marsh; D A Kersel; J H Havill; J W Sleigh
Journal:  Brain Inj       Date:  1998-03       Impact factor: 2.311

10.  Understanding Health-Related Quality of Life of Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Social Health Measures.

Authors:  Noelle E Carlozzi; Phillip A Ianni; Rael T Lange; Tracey A Brickell; Michael A Kallen; Elizabeth A Hahn; Louis M French; David Cella; Jennifer A Miner; David S Tulsky
Journal:  Arch Phys Med Rehabil       Date:  2018-07-31       Impact factor: 3.966

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  3 in total

1.  TBI-CareQOL military health care frustration in caregivers of service members/veterans with traumatic brain injury.

Authors:  Noelle E Carlozzi; Rael T Lange; Louis M French; Michael A Kallen; Nicholas R Boileau; Robin A Hanks; Risa Nakase-Richardson; Jill P Massengale; Angelle M Sander; Elizabeth A Hahn; Jennifer A Miner; Tracey A Brickell
Journal:  Rehabil Psychol       Date:  2020-01-09

2.  Reliability and validity data to support the clinical utility of the Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL).

Authors:  Noelle E Carlozzi; Nicholas R Boileau; Michael A Kallen; Risa Nakase-Richardson; Elizabeth A Hahn; David S Tulsky; Jennifer A Miner; Robin A Hanks; Jill P Massengale; Rael T Lange; Tracey A Brickell; Louis M French; Phillip A Ianni; Angelle M Sander
Journal:  Rehabil Psychol       Date:  2019-12-12

3.  Sleep impairment is related to health-related quality of life among caregivers of lower-functioning traumatic brain injury survivors.

Authors:  Noelle E Carlozzi; Nicholas R Boileau; Robin A Hanks; Angelle M Sander; Risa Nakase-Richardson; Jill P Massengale
Journal:  Rehabil Psychol       Date:  2020-08-10
  3 in total

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