Literature DB >> 31958978

A dementia-friendly church: How can the African American church support families affected by dementia?

Fayron Epps1, Virginia Heidbreder2, Karah Alexander2, Audrey Tomlinson2, Valencia Freeman3, Nancy Williams3.   

Abstract

Dementia, including Alzheimer's disease, is affecting the African American community at alarming rates, as African Americans have a greater risk of dementia than other races. The African American church has traditionally been a safe haven where families go for support and healing. However, many churches are not equipped to support families living with dementia. The purpose of this study was to explore ways African American churches can be dementia-friendly to support families affected by dementia. A qualitative descriptive design was used to collect data from 12 African American community stakeholders. Participants were inclusive of caregivers, church leaders, community members, and service providers. During the semi-structured interviews, participants were asked to share characteristics of a dementia-friendly church. Thematic analysis was performed using data from interviews, researcher's journal, and field notes. Responses described a dementia-friendly church as (a) resourceful; (b) welcoming and friendly; (c) inclusive and comfortable; (d) understanding and accepting; and (e) concerned about personal well-being. This study has wide implications not only for African American churches and families, but also for families living with dementia outside of African American faith communities. These findings allow for faith leaders and churches to begin the process of becoming dementia-friendly, thus enabling congregations, communities, and persons with dementia to continue living in meaningful ways. In conclusion, churches are a source of religious support and provide access to resources for families in difficult times. Thus, it is imperative for African American churches to explore ways to best support and meet the needs of families living with dementia.

Entities:  

Keywords:  Alzheimer’s disease; Black Church; caregiver support; clergy; religion

Mesh:

Year:  2020        PMID: 31958978     DOI: 10.1177/1471301219900416

Source DB:  PubMed          Journal:  Dementia (London)        ISSN: 1471-3012


  5 in total

1.  The Alter Program: A Nurse-Led, Dementia-Friendly Program for African American Faith Communities and Families Living With Dementia.

Authors:  Fayron Epps; Miranda Moore; Mia Chester; Janelle Gore; Mayra Sainz; Aisha Adkins; Carolyn Clevenger; Dawn Aycock
Journal:  Nurs Adm Q       Date:  2022 Jan-Mar 01

2.  Testing an Alzheimer's Disease Educational Approach in Two African American Neighborhoods in Florida.

Authors:  Caroline D Bergeron; Maisha T Robinson; Floyd B Willis; Monica L Albertie; Jolita D Wainwright; Michelle R Fudge; Francine C Parfitt; Julia E Crook; Colleen T Ball; John A Lucas
Journal:  J Racial Ethn Health Disparities       Date:  2021-10-13

3.  Using a Multiple-Case Study Design to Explore the Worship Experiences of Black Families Affected by Dementia.

Authors:  Janelle E Gore; Glenna Brewster; Mayra Sainz; Yiran Ge; Jane Xie; Taylor James; Fayron Epps
Journal:  Clin Gerontol       Date:  2021-12-28       Impact factor: 2.871

4.  Promoting dementia awareness in African-American faith communities.

Authors:  Fayron Epps; Karah Alexander; Glenna S Brewster; Lauren J Parker; Mia Chester; Audrey Tomlinson; Aisha Adkins; Sabrina Zingg; Jacque Thornton
Journal:  Public Health Nurs       Date:  2020-06-18       Impact factor: 1.462

5.  Trust of Nursing Home Staff Caring for Residents with Advanced Dementia: A Qualitative Descriptive Study of Family Caregivers' Perspectives.

Authors:  Anita Hendrix Rogers; Fayron Epps; Meghan Hendricksen; Ashley Roach; Harriet S Akunor; Ruth Palan Lopez
Journal:  Geriatr Nurs       Date:  2021-09-25       Impact factor: 2.361

  5 in total

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