Lynn Calman1, Eloise Radcliffe1, Richard Berman2, Sara Demain3, Susan Restorick-Banks4, Alison Richardson5, Richard Wagland6, Claire Foster1. 1. Macmillan Survivorship Research Group, Faculty of Health Sciences, University of Southampton, Southampton, UK. 2. The Christie NHS Foundation Trust, Manchester, UK. 3. Faculty of Health and Human Sciences, University of Plymouth, Plymouth, UK. 4. Patient representative. 5. University of Southampton and University Hospital Southampton, Southampton, UK. 6. Faculty of Health Sciences, University of Southampton, Southampton, UK.
Abstract
OBJECTIVE: Attention is turning to the needs of people living with treatable but incurable cancer, a group with complex needs, living with uncertainty over time. More research is needed to understand how this group self-manage the impact of cancer to strengthen the evidence base for interventions. This study aims to understand the value and outcomes of self-management support for people living with treatable but incurable cancer. METHODS: Qualitative longitudinal methods will examine how support needs change over time in relation to self-management and unpredictable disease trajectories. Thirty patients and 30 carers will be recruited from two hospitals, each participating in three interviews over 1 year. Patients will be purposively sampled according to age, gender, cancer type and anticipated survival. Carers will be recruited via nomination by patients but interviewed separately. One-off interviews will be conducted with 20 healthcare professionals, providing data from multiple perspectives. Based on interview findings, a modified Delphi process will map areas of consensus and disparity regarding conceptualisations and outcomes of self-management support. CONCLUSION: The key output will be practice recommendations in relation to self-management support, producing evidence to inform service innovation for those living with treatable but incurable cancer.
OBJECTIVE: Attention is turning to the needs of people living with treatable but incurable cancer, a group with complex needs, living with uncertainty over time. More research is needed to understand how this group self-manage the impact of cancer to strengthen the evidence base for interventions. This study aims to understand the value and outcomes of self-management support for people living with treatable but incurable cancer. METHODS: Qualitative longitudinal methods will examine how support needs change over time in relation to self-management and unpredictable disease trajectories. Thirty patients and 30 carers will be recruited from two hospitals, each participating in three interviews over 1 year. Patients will be purposively sampled according to age, gender, cancer type and anticipated survival. Carers will be recruited via nomination by patients but interviewed separately. One-off interviews will be conducted with 20 healthcare professionals, providing data from multiple perspectives. Based on interview findings, a modified Delphi process will map areas of consensus and disparity regarding conceptualisations and outcomes of self-management support. CONCLUSION: The key output will be practice recommendations in relation to self-management support, producing evidence to inform service innovation for those living with treatable but incurable cancer.
Authors: Eloise Radcliffe; Aysha Khan; David Wright; Richard Berman; Sara Demain; Claire Foster; Susan Restorick-Banks; Alison Richardson; Richard Wagland; Lynn Calman Journal: Palliat Med Date: 2021-10-19 Impact factor: 4.762