Charlene S Rae1, Jason D Pole2, Sumit Gupta3, Carol Digout4, David Szwajcer5, Annette Flanders6, Amirrtha Srikanthan7, Chad Hammond8, Brent Schacter5, Ronald D Barr9, Paul C Rogers10. 1. Department of Pediatrics, McMaster University, Hamilton, ON, Canada. 2. Pediatric Oncology Group of Ontario and Dalla Lana School of Public Health, Toronto, ON, Canada. 3. Division of Hematology/Oncology, Hospital for Sick Children and Faculty of Medicine, University of Toronto, Toronto, ON, Canada. 4. Atlantic Provinces Pediatric Hematology Oncology Network, IWK Health Centre, Halifax, NS, Canada. 5. CancerCare Manitoba, Winnipeg, MB, Canada. 6. IWK Health Centre, Halifax, NS, Canada. 7. Department of Medical Oncology, The Ottawa Hospital Cancer Centre, Ottawa, ON, Canada. 8. Canadian Hospice Palliative Care Association and School of Rehabilitation, University of Ottawa, Ottawa, ON, Canada. 9. Department of Pediatrics, McMaster University, Hamilton, ON, Canada. Electronic address: rbarr@mcmaster.ca. 10. Division of Hematology/Oncology/BMT, BC Children's Hospital, Vancouver, BC, Canada.
Abstract
OBJECTIVES: To develop an expert-group, consensus-based list of system performance indicators to be used for monitoring, evaluating, and benchmarking progress for cancer care and control in adolescents and young adults (AYAs) in Canada. METHODS: A national multidisciplinary panel of AYA oncology experts was convened; they prepared a literature review and undertook a brainstorming exercise to create a comprehensive list of indicators based on a previously defined framework for AYA cancer care and control in Canada. A modified Delphi process was then undertaken to cull the list based on 3 quick screen criteria. Three rounds of ranking were required. The fourth stage employed a face-to-face meeting, and the final stage utilized a survey to rank the indicators on the basis of importance and feasibility. RESULTS: Nineteen participants contributed to the 5-stage process. From an initial list of 114 indicators, 14 were ultimately endorsed, representing 5 themes: active care, survivorship, psychosocial issues, palliative care, and research. The 5 highest ranked indicators were assessed as very to moderately feasible, with only a single indicator (clinical trial enrollment) in the top 5 assigned a least feasible ranking. CONCLUSION: The 14 indicators provide a starting point for the development of a standard set of metrics for AYA cancer care and control in Canada and have potential for international utility.
OBJECTIVES: To develop an expert-group, consensus-based list of system performance indicators to be used for monitoring, evaluating, and benchmarking progress for cancer care and control in adolescents and young adults (AYAs) in Canada. METHODS: A national multidisciplinary panel of AYA oncology experts was convened; they prepared a literature review and undertook a brainstorming exercise to create a comprehensive list of indicators based on a previously defined framework for AYA cancer care and control in Canada. A modified Delphi process was then undertaken to cull the list based on 3 quick screen criteria. Three rounds of ranking were required. The fourth stage employed a face-to-face meeting, and the final stage utilized a survey to rank the indicators on the basis of importance and feasibility. RESULTS: Nineteen participants contributed to the 5-stage process. From an initial list of 114 indicators, 14 were ultimately endorsed, representing 5 themes: active care, survivorship, psychosocial issues, palliative care, and research. The 5 highest ranked indicators were assessed as very to moderately feasible, with only a single indicator (clinical trial enrollment) in the top 5 assigned a least feasible ranking. CONCLUSION: The 14 indicators provide a starting point for the development of a standard set of metrics for AYA cancer care and control in Canada and have potential for international utility.
Authors: Olga Husson; Bryce B Reeve; Anne-Sophie Darlington; Christabel K Cheung; Samantha Sodergren; Winette T A van der Graaf; John M Salsman Journal: J Natl Cancer Inst Date: 2022-04-11 Impact factor: 13.506
Authors: Lorna A Fern; Rachel M Taylor; Julie Barber; Javier Alvarez-Galvez; Richard Feltbower; Sarah Lea; Ana Martins; Stephen Morris; Louise Hooker; Faith Gibson; Rosalind Raine; Dan P Stark; Jeremy Whelan Journal: BMJ Open Date: 2021-04-07 Impact factor: 2.692
Authors: Aricca D Van Citters; Alice M Kennedy; Kathryn B Kirkland; Konstantin H Dragnev; Steven D Leach; Madge E Buus-Frank; Elissa F Malcolm; Megan M Holthoff; Anne B Holmes; Eugene C Nelson; Susan A Reeves; Anna N A Tosteson Journal: JNCI Cancer Spectr Date: 2022-05-02
Authors: Rachel M Taylor; Lorna A Fern; Julie Barber; Javier Alvarez-Galvez; Richard Feltbower; Sarah Lea; Ana Martins; Stephen Morris; Louise Hooker; Faith Gibson; Rosalind Raine; Dan P Stark; Jeremy Whelan Journal: BMJ Open Date: 2020-11-26 Impact factor: 2.692