Literature DB >> 31951475

Negligible Effects of the Survey Modes for Patient-Reported Outcomes: A Report From the Childhood Cancer Survivor Study.

Jin-Ah Sim1, Geehong Hyun1, Todd M Gibson1, Yutaka Yasui1, Wendy Leisenring2, Melissa M Hudson1,3, Leslie L Robison1, Gregory T Armstrong1, Kevin R Krull1,4, I-Chan Huang1.   

Abstract

PURPOSE: This study compared the measurement properties for multiple modes of survey administration, including postal mail, telephone interview, and Web-based completion of patient-reported outcomes (PROs) among survivors of childhood cancer.
METHODS: The population included 6,974 adult survivors of childhood cancer in the Childhood Cancer Survivor Study who completed the Brief Symptom Inventory-18 (BSI-18), which measured anxiety, depression, and somatization symptoms. Scale reliability, construct validity, and known-groups validity related to health status were tested for each mode of completion. The multiple indicators and multiple causes technique was used to identify differential item functioning (DIF) for the BSI-18 items that responded through a specific survey mode. The impact of the administration mode was tested by comparing differences in BSI-18 scores between the modes accounting for DIF effects.
RESULTS: Of the respondents, 58%, 27%, and 15% completed postal mail, Web-based, and telephone surveys, respectively. Survivors who were male; had lower education, lower household income, or poorer health status; or were treated with cranial radiotherapy were more likely to complete a telephone-based survey compared with either a postal mail or Web-based survey (all P < .05). Scale reliability and validity were equivalent across the 3 survey options. One, 2, and 5 items from the anxiety, depression, and somatization domains, respectively, were identified as having significant DIF among survivors who responded by telephone (P < .05). However, estimated BSI-18 domain scores, especially depression and anxiety, between modes did not differ after accounting for DIF effects.
CONCLUSION: Certain survivor characteristics were associated with choosing a specific mode for PRO survey completion. However, measurement properties among these modes were equivalent, and the impact of using a specific mode on scores was minimal.

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Year:  2020        PMID: 31951475      PMCID: PMC6995263          DOI: 10.1200/CCI.19.00135

Source DB:  PubMed          Journal:  JCO Clin Cancer Inform        ISSN: 2473-4276


  45 in total

1.  Dose reconstruction for therapeutic and diagnostic radiation exposures: use in epidemiological studies.

Authors:  Marilyn Stovall; Rita Weathers; Catherine Kasper; Susan A Smith; Lois Travis; Elaine Ron; Ruth Kleinerman
Journal:  Radiat Res       Date:  2006-07       Impact factor: 2.841

2.  Cancer statistics, 2019.

Authors:  Rebecca L Siegel; Kimberly D Miller; Ahmedin Jemal
Journal:  CA Cancer J Clin       Date:  2019-01-08       Impact factor: 508.702

3.  A comparison of web-based and paper-based survey methods: testing assumptions of survey mode and response cost.

Authors:  Corey Greenlaw; Sharon Brown-Welty
Journal:  Eval Rev       Date:  2009-07-15

4.  Association between the prevalence of symptoms and health-related quality of life in adult survivors of childhood cancer: a report from the St Jude Lifetime Cohort study.

Authors:  I-Chan Huang; Tara M Brinkman; Kelly Kenzik; James G Gurney; Kirsten K Ness; Jennifer Lanctot; Elizabeth Shenkman; Leslie L Robison; Melissa M Hudson; Kevin R Krull
Journal:  J Clin Oncol       Date:  2013-10-14       Impact factor: 44.544

Review 5.  Diagnostic and prognostic prediction models.

Authors:  J M T Hendriksen; G J Geersing; K G M Moons; J A H de Groot
Journal:  J Thromb Haemost       Date:  2013-06       Impact factor: 5.824

6.  PRO data collection in clinical trials using mixed modes: report of the ISPOR PRO mixed modes good research practices task force.

Authors:  Sonya Eremenco; Stephen Joel Coons; Jean Paty; Karin Coyne; Antonia V Bennett; Damian McEntegart
Journal:  Value Health       Date:  2014-07       Impact factor: 5.725

7.  Differential item functioning in quality of life measure between children with and without special health-care needs.

Authors:  I-Chan Huang; Walter L Leite; Patricia Shearer; Michael Seid; Dennis A Revicki; Elizabeth A Shenkman
Journal:  Value Health       Date:  2011 Sep-Oct       Impact factor: 5.725

Review 8.  Digital Health Interventions for Adolescent and Young Adult Cancer Survivors.

Authors:  Katie A Devine; Adrienne S Viola; Elliot J Coups; Yelena P Wu
Journal:  JCO Clin Cancer Inform       Date:  2018-12

9.  Difference in method of administration did not significantly impact item response: an IRT-based analysis from the Patient-Reported Outcomes Measurement Information System (PROMIS) initiative.

Authors:  Jakob B Bjorner; Matthias Rose; Barbara Gandek; Arthur A Stone; Doerte U Junghaenel; John E Ware
Journal:  Qual Life Res       Date:  2013-07-23       Impact factor: 4.147

Review 10.  Survivors of childhood and adolescent cancer: life-long risks and responsibilities.

Authors:  Leslie L Robison; Melissa M Hudson
Journal:  Nat Rev Cancer       Date:  2013-12-05       Impact factor: 60.716

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  2 in total

1.  Development of a new pregnancy informational and decisional needs survey for women with physical disabilities.

Authors:  Claire Z Kalpakjian; Heidi J Haapala; Susan D Ernst; Brittany R Orians; Melissa L Barber; Ashley L Wiseman; Lukonde Mulenga; Shannen Bolde; Sara Rosenblum; Gina M Jay
Journal:  Disabil Health J       Date:  2020-12-24       Impact factor: 4.615

2.  Psychological Distress and Protective Behaviors During the COVID-19 Pandemic Among Different Populations: Hong Kong General Population, Taiwan Healthcare Workers, and Taiwan Outpatients.

Authors:  Gary Ka-Ki Chung; Carol Strong; Yat-Hang Chan; Roger Yat-Nork Chung; Jung-Sheng Chen; Yi-Hsuan Lin; Ru-Yi Huang; Chung-Ying Lin; Nai-Ying Ko
Journal:  Front Med (Lausanne)       Date:  2022-02-15
  2 in total

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