Tamar B Rubinstein1, Ekemini A Ogbu2, Martha Rodriguez3, Lindsay Waqar4, Jennifer M P Woo5, Alaina M Davis6, William Blaine Lapin7, Lawrence Ng8, Erin Treemarcki9, Emily von Scheven10, Andrea M Knight. 1. T.B. Rubinstein, MD, MS, Assistant Professor, Albert Einstein College of Medicine, Department of Pediatrics, Division of Pediatric Rheumatology, and Children's Hospital at Montefiore, Department of Pediatrics, Division of Pediatric Rheumatology, Bronx, New York, USA; trubinst@montefiore.org. 2. E.A. Ogbu, MD, Fellow, Emory University School of Medicine, Department of Pediatrics, Division of Pediatric Rheumatology, and Children's Healthcare of Atlanta, Division of Pediatric Rheumatology, Atlanta, Georgia, USA. 3. M. Rodriguez, MD, Assistant Professor, Indiana University School of Medicine, Department of Pediatrics, Division of Pediatric Rheumatology, Indianapolis, Indiana, USA. 4. L. Waqar, MPH, Research Coordinator, The Children's Hospital of Philadelphia, Division of Pediatric Rheumatology, Philadelphia, Pennsylvania, USA. 5. J.M. Woo, MPH, Research Coordinator, University of California Los Angeles Mattel Children's Hospital, Division of Pediatric Rheumatology, Los Angeles, California, USA. 6. A.M. Davis, MD, MPH, Assistant Professor, Monroe Carell Junior Children's Hospital, Division of Pediatric Rheumatology, Vanderbilt University Medical Center, Nashville, Tennessee, USA. 7. W.B. Lapin, MD, Assistant Professor, University of Connecticut School of Medicine, Connecticut Children's, Department of Pediatrics, Division of Rheumatology, Hartford, Connecticut, and Baylor College of Medicine, Department of Pediatrics, Division of Pediatric Rheumatology, Houston, Texas, USA. 8. L. Ng, BSc, Research Coordinator, Hospital for Sick Children, Division of Pediatric Rheumatology, Toronto, Ontario, Canada. 9. E. Treemarcki, DO, Assistant Professor, University of Utah, Department of Pediatrics, Division of Pediatric Rheumatology, Salt Lake City, Utah, and Hospital for Special Surgery, Division of Pediatric Rheumatology, New York, New York, USA. 10. E. von Scheven, MD, MAS, Professor, University of California San Francisco, Department of Pediatrics, Division of Pediatric Rheumatology, San Francisco, California, USA.
Abstract
OBJECTIVE: Mental health problems are prevalent in youth with rheumatologic disease. Gaps in knowledge exist regarding their effect, as well as strategies for detection and effective treatment. To address these gaps, the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Mental Health Workgroup developed and prioritized an agenda of research topics. METHODS: We systematically reviewed the literature and identified 5 major research domains in further need of study: (A) mental health burden and relationship to pediatric rheumatologic disease, (B) effect of mental health disorders on outcomes, (C) mental health awareness and education, (D) mental health screening, and (E) mental health treatment. Research topics within these areas were developed by workgroup leaders and refined by the workgroup. Members were surveyed to prioritize the topics by importance, feasibility of study, and actionability. RESULTS: Fifty-nine members (57%) completed the survey. Among the proposed research topics, 31/33 were rated as highly important and 4/33 were rated highly for importance, feasibility, and actionability. Topics rated most important related to (A) mental health burden and relationship to rheumatologic disease, and (B) the effect of mental health on outcomes. Topics rated most feasible and actionable were related to (D) mental health screening. CONCLUSION: Addressing gaps in knowledge regarding mental health in youth with rheumatologic disease is essential for improving care. We have identified high priority research topics regarding mental health of pediatric rheumatology patients in need of further investigation that are feasible to study and believed to lead to actionable results in patient care.
OBJECTIVE: Mental health problems are prevalent in youth with rheumatologic disease. Gaps in knowledge exist regarding their effect, as well as strategies for detection and effective treatment. To address these gaps, the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Mental Health Workgroup developed and prioritized an agenda of research topics. METHODS: We systematically reviewed the literature and identified 5 major research domains in further need of study: (A) mental health burden and relationship to pediatric rheumatologic disease, (B) effect of mental health disorders on outcomes, (C) mental health awareness and education, (D) mental health screening, and (E) mental health treatment. Research topics within these areas were developed by workgroup leaders and refined by the workgroup. Members were surveyed to prioritize the topics by importance, feasibility of study, and actionability. RESULTS: Fifty-nine members (57%) completed the survey. Among the proposed research topics, 31/33 were rated as highly important and 4/33 were rated highly for importance, feasibility, and actionability. Topics rated most important related to (A) mental health burden and relationship to rheumatologic disease, and (B) the effect of mental health on outcomes. Topics rated most feasible and actionable were related to (D) mental health screening. CONCLUSION: Addressing gaps in knowledge regarding mental health in youth with rheumatologic disease is essential for improving care. We have identified high priority research topics regarding mental health of pediatric rheumatologypatients in need of further investigation that are feasible to study and believed to lead to actionable results in patient care.
Authors: Kaveh Ardalan; Oluwatosin Adeyemi; Dawn M Wahezi; Anne E Caliendo; Megan L Curran; Jessica Neely; Susan Kim; Colleen K Correll; Emily J Brunner; Andrea M Knight Journal: Arthritis Care Res (Hoboken) Date: 2020-11-27 Impact factor: 4.794