Literature DB >> 31896884

Commentary on: Parental care seeking pathway and challenges for autistic spectrum disorder.

Avni Gupta1, Sujata Sethi1, Hitesh Khurana1, Ashish Kumar Malik1.   

Abstract

Entities:  

Year:  2019        PMID: 31896884      PMCID: PMC6862997          DOI: 10.4103/psychiatry.IndianJPsychiatry_210_19

Source DB:  PubMed          Journal:  Indian J Psychiatry        ISSN: 0019-5545            Impact factor:   1.759


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Sir, We read the article – “Parental care-seeking pathway and challenges for autistic spectrum disorders (ASDs) children: A mixed-method study from Bhubaneswar, Odisha[1] and found it quite interesting. There is little emphasis on qualitative research in psychiatry. The authors need to be complimented for taking this initiative. The parallel mixed-method approach by experienced and trained researchers, coordination among researchers, supervision, and the use of qualitative analysis software are definite strengths of this study and ensure scientific rigor. Normal distribution pattern has also been taken care of where ever quantitative analyses were required. However, we would like to emphasize on few of the things that should be taken care of in subsequent studies. First, in the overall diagnostic process after an initial diagnosis of ASD, it is stated that the ASD was suspected or confirmed after the use of screening or standard diagnostic approaches. However, that results would have better generalizability, had the authors taken only confirmed cases of ASD. Further, treating suspected cases for ASD is not having sufficient scientific merit. In addition, the authors also state that – some interviews were conducted at home, besides planned facility-based assessments. The proportion of such assessments is not mentioned in the article, further limiting the scope for generalization. The mismatch between the figures in the table and text should be avoided. The description related to Table 1 states the proportion of first-order children as 58% contrary to figures in table, i.e., 58 (76.7%).
Table 1

Characteristics of parents and children with autism spectrum disorder n%

Sex of the children
 Male67 (88.2)
 Female9 (11.8)
Family setting
 Nuclear55 (72.4)
 Joint4 (5.3)
 Extended17 (22.4)
Order of child
 First child58 (76.7)
 Second or latter child18 (23.7)
Religion background
 Hindu71 (93.4)
 Muslim5 (6.6)
Education of parents of ASD
 Father
  Graduate36 (47.4)
  Post graduate40 (52.6)
 Mother
  Undergraduate10 (13.2)
  Graduate43 (56.6)
  Post graduate23 (30.3)
Occupation of parents of ASD
 Father
  Service27 (35.5)
  Government service19 (25)
  Business30 (39.5)
 Mother
  Service10 (10.6)
  Homemaker58 (76.3)
  Government service8 (13.1)

ASD - Autism spectrum disorder

Characteristics of parents and children with autism spectrum disorder n% ASD - Autism spectrum disorder The most surprising about the study is that it was planned as qualitative, and the authors intended to identify themes related to parents' perception about ASD. However, such a thematic analysis[2] is conspicuously missing from the description which is elemental in qualitative research. Sufficient care should be taken to overcome these discrepancies in subsequent research.

Financial support and sponsorship

Nil.

Conflicts of interest

There are no conflicts of interest.
  2 in total

1.  Parent-observed thematic data on quality of life in children with autism spectrum disorder.

Authors:  Amy Epstein; Andrew Whitehouse; Katrina Williams; Nada Murphy; Helen Leonard; Elise Davis; Dinah Reddihough; Jenny Downs
Journal:  Autism       Date:  2017-10-26

2.  Parental care-seeking pathway and challenges for autistic spectrum disorders children: A mixed method study from Bhubaneswar, Odisha.

Authors:  Pranab Mahapatra; Sanghamitra Pati; Rajeshwari Sinha; Abhimanyu Singn Chauhan; Rakesh Ranjan Nanda; Srinivas Nallala
Journal:  Indian J Psychiatry       Date:  2019 Jan-Feb       Impact factor: 1.759

  2 in total
  1 in total

1.  "I was Confused … and Still am" Barriers Impacting the Help-Seeking Pathway for an Autism Diagnosis in Urban North India: A Mixed Methods Study.

Authors:  Supriya Bhavnani; Georgia Lockwood Estrin; Rashi Arora; Divya Kumar; Minal Kakra; Vivek Vajaratkar; Monica Juneja; Sheffali Gulati; Vikram Patel; Jonathan Green; Gauri Divan
Journal:  J Autism Dev Disord       Date:  2021-05-20
  1 in total

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