Literature DB >> 31887365

Trapped in a disrupted normality: Survivors' and partners' experiences of life after a sudden cardiac arrest.

Laura Whitehead1, Stephanie Tierney2, Deborah Biggerstaff3, Gavin D Perkins1, Kirstie L Haywood4.   

Abstract

AIM OF THE STUDY: Advances in resuscitation science have resulted in a growing number of out-of-hospital cardiac arrest (OHCA) survivors. However, we know very little about the natural history of recovery and the unmet needs of survivors and their partners. This qualitative study sought to address this knowledge gap to improve understanding of the consequences of surviving cardiac arrest.
METHODS: In-depth qualitative interviews were undertaken separately with survivors and their partners between 3 and 12-months following the cardiac arrest. An interpretative phenomenological approach (IPA) to data analysis was adopted. Developing themes were discussed between members of the research team.
RESULTS: 8 survivors (41-79 years; 5 male; mean time 6.3 months post-hospital discharge) and 3 partners (1 male) were interviewed. The key (super-ordinate) theme of being 'trapped in a disrupted normality' was identified within the data. Five related subordinate themes included: existential impact, physical ramifications, emotional consequences, limiting participation in social activities and altered family roles.
CONCLUSION: Recovery for survivors is hindered by a wide range of physical, emotional, cognitive, social and spiritual challenges that disrupt perceptions of 'normality'. Survivors and their carers may benefit from focussing on establishing a 'new normal' rather than striving to achieve a pre-cardiac social and physical position. Survivor-centred assessment should support rather than undermine this goal.
Copyright © 2020 Elsevier B.V. All rights reserved.

Entities:  

Keywords:  Cardiac arrest; Carers; Experiences of survival; Survivors

Mesh:

Year:  2019        PMID: 31887365     DOI: 10.1016/j.resuscitation.2019.12.017

Source DB:  PubMed          Journal:  Resuscitation        ISSN: 0300-9572            Impact factor:   5.262


  5 in total

1.  Gaps in the Provision of Cognitive and Psychological Resources in Cardiac Arrest Survivors with Good Neurologic Recovery.

Authors:  Alex Presciutti; Mary M Newman; Kelly N Sawyer; Sachin Agarwal; Sarah M Perman
Journal:  Ther Hypothermia Temp Manag       Date:  2021-05-11       Impact factor: 1.369

2.  Health data research on sudden cardiac arrest: perspectives of survivors and their next-of-kin.

Authors:  Marieke A R Bak; Rens Veeken; Marieke T Blom; Hanno L Tan; Dick L Willems
Journal:  BMC Med Ethics       Date:  2021-01-28       Impact factor: 2.652

3.  Follow-up care after out-of-hospital cardiac arrest: A pilot study of survivors and families' experiences and recommendations.

Authors:  Marco Mion; Rosalind Case; Karen Smith; Gisela Lilja; Erik Blennow Nordström; Paul Swindell; Eleni Nikolopoulou; Jean Davis; Kelly Farrell; Ellie Gudde; Grigoris V Karamasis; John R Davies; William D Toff; Benjamin S Abella; Thomas R Keeble
Journal:  Resusc Plus       Date:  2021-07-29

4.  Moving from physical survival to psychologic recovery: a qualitative study of survivor perspectives on long-term outcome after sudden cardiac arrest.

Authors:  Katie N Dainty; M Bianca Seaton; P Richard Verbeek
Journal:  Resusc Plus       Date:  2020-12-31

5.  "We don't talk about his heart": Narrative sense-making and long-term readjustment among older out-of-hospital cardiac arrest survivors and their spouses.

Authors:  Andrea Nedergaard Jensen; Katrine Bruun Bonnén; Maria Kristiansen
Journal:  Resusc Plus       Date:  2020-09-16
  5 in total

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