Literature DB >> 31871767

Case Report: Ventilator weaning, tracheostomy decannulation and noninvasive ventilation in an adolescent with autism spectrum disorder and new onset spinal cord injury.

Suzanne Rybczynski1,2, Ximena Celedon Flanders3,4, Camara Murphy2,5, Dustin Hughes6, Paula Reber7.   

Abstract

Introduction: Spinal cord injury (SCI) is a cause of significant psychosocial stress not only to the individual with SCI but also to their family. This is compounded when an individual with a new SCI has premorbid behavioral and medical conditions. For individuals requiring long term positive pressure ventilation, transition to noninvasive ventilation (NIV) can improve the long term outcome and improve quality of life. Case presentation: This case report describes a teenage boy with premorbid autism spectrum disorder who incurred an acute SCI and developed chronic respiratory failure. He was admitted to acute inpatient rehabilitation with tracheostomy and ventilator dependence. Using an interdisciplinary team approach with in vivo desensitization behavioral interventions, he was successfully weaned off mechanical ventilation, his tracheostomy tube was removed, and he was transitioned to NIV. Discussion: This case describes a medically complex adolescent who was successfully transitioned to NIV through behavioral desensitization using a team approach. This is noteworthy given the magnitude of behaviors demonstrated prior to his desensitization protocol. This case demonstrates how serious behavioral barriers to NIV can be overcome using desensitization and strategic behavioral reinforcement techniques. © International Spinal Cord Society 2019.

Entities:  

Keywords:  Paediatrics; Respiratory signs and symptoms

Mesh:

Year:  2019        PMID: 31871767      PMCID: PMC6911082          DOI: 10.1038/s41394-019-0248-y

Source DB:  PubMed          Journal:  Spinal Cord Ser Cases        ISSN: 2058-6124


  12 in total

1.  Successful tracheostomy decannulation after complete or sensory incomplete cervical spinal cord injury.

Authors:  D H Kim; S W Kang; W A Choi; H J Oh
Journal:  Spinal Cord       Date:  2017-01-24       Impact factor: 2.772

2.  Behaviorally based adherence program for pediatric patients treated with positive airway pressure.

Authors:  Kelli-Lee Harford; Supriya Jambhekar; Gulnur Com; Kristi Pruss; Marianne Kabour; Kaitlin Jones; Wendy L Ward
Journal:  Clin Child Psychol Psychiatry       Date:  2012-09-30       Impact factor: 2.544

3.  An in-patient model for positive airway pressure desensitization: a report of 2 pediatric cases.

Authors:  Kelli-Lee Harford; Supriya Jambhekar; Gulnur Com; Lisa Bylander; Kristi Pruss; Jana Teagle; Wendy Ward
Journal:  Respir Care       Date:  2011-12-06       Impact factor: 2.258

4.  Tracheostomies and assisted ventilation in children with profound disabilities: navigating family and professional values.

Authors:  Benjamin S Wilfond
Journal:  Pediatrics       Date:  2014-02       Impact factor: 7.124

5.  Characterizing mortality in pediatric tracheostomy patients.

Authors:  Jamie L Funamura; Sonia Yuen; Kosuke Kawai; Ozgul Gergin; Eelam Adil; Reza Rahbar; Karen Watters
Journal:  Laryngoscope       Date:  2016-11-03       Impact factor: 3.325

6.  Early and long-term outcome after tracheostomy in children.

Authors:  Oguz Dursun; Deniz Ozel
Journal:  Pediatr Int       Date:  2011-04       Impact factor: 1.524

7.  Adherence to nasal positive airway pressure therapy among school-aged children and adolescents with obstructive sleep apnea syndrome.

Authors:  Elizabeth C Uong; Mary Epperson; Sharon A Bathon; Donna B Jeffe
Journal:  Pediatrics       Date:  2007-10-08       Impact factor: 7.124

8.  Improving pediatric compliance with positive airway pressure therapy: the impact of behavioral intervention.

Authors:  Kristine L Koontz; Keith J Slifer; Marilyn D Cataldo; Carole L Marcus
Journal:  Sleep       Date:  2003-12-15       Impact factor: 5.849

9.  Behavioral training for increasing preschool children's adherence with positive airway pressure: a preliminary study.

Authors:  Keith J Slifer; Deborah Kruglak; Ethan Benore; Kimberly Bellipanni; Lroi Falk; Ann C Halbower; Adrianna Amari; Melissa Beck
Journal:  Behav Sleep Med       Date:  2007       Impact factor: 2.964

10.  Management of obstructive sleep apnea in a developmentally delayed pediatric patient with aggressive behavior and Pierre Robin sequence.

Authors:  Holly J Skinner; Russell B Walther; M Franklin Dolwick; Richard B Berry; Mary H Wagner
Journal:  J Clin Sleep Med       Date:  2015-01-15       Impact factor: 4.062

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