Literature DB >> 31798922

Thriving, not just surviving, with motor neurone disease. The outcome of the first pre-emptive 'triple-ostomy'.

Thomas Russell1, Daniel Paul2, Peter Scott-Morgan3, Maree Wright2, Nick Kenefick4.   

Abstract

The following report details the multidisciplinary treatment of a patient with motor neurone disease. The patient, who requested publication of this case, is a highly intelligent and distinguished robotic scientist. He was diagnosed with amyotrophic lateral sclerosis in 2017 and his personal approach to his condition has been to use modern technology and all treatment options to maximise his quality and duration of life. After his research, the patient decided that his life would be significantly improved by formation of an elective 'triple-ostomy', this being an end colostomy and suprapubic catheter (for continence), and a percutaneous gastrostomy (for nutrition). We report the peri-operative multidisciplinary approach taken with this case, the surgical procedures, the potential risks and the outcome. The patient is delighted with the result and aims to raise awareness that this may be a treatment option in highly selected patients.
© The Author(s) 2019. Published by Oxford University Press.

Entities:  

Year:  2019        PMID: 31798922      PMCID: PMC6874861          DOI: 10.1093/omcr/omz109

Source DB:  PubMed          Journal:  Oxf Med Case Reports        ISSN: 2053-8855


  4 in total

1.  Medical research and the ethics of medical treatments: disability-free survival.

Authors:  P-A Lönnqvist
Journal:  Br J Anaesth       Date:  2017-03-01       Impact factor: 9.166

2.  Motor neurone disease.

Authors:  Saiji Nageshwaran; Lucy Medina Davies; Imran Rafi; Aleksandar Radunović
Journal:  BMJ       Date:  2014-07-09

Review 3.  Mechanical ventilation for amyotrophic lateral sclerosis/motor neuron disease.

Authors:  Aleksandar Radunovic; Djillali Annane; Muhammad K Rafiq; Naveed Mustfa
Journal:  Cochrane Database Syst Rev       Date:  2013-03-28

Review 4.  Riluzole for amyotrophic lateral sclerosis (ALS)/motor neuron disease (MND).

Authors:  Robert G Miller; J D Mitchell; Dan H Moore
Journal:  Cochrane Database Syst Rev       Date:  2012-03-14
  4 in total

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