Literature DB >> 31778077

Co-afflicted but invisible: A qualitative study of perceptions among informal caregivers in cancer care.

Mattias Tranberg1, Magdalena Andersson2, Mef Nilbert1,2,3,4, Birgit H Rasmussen1.   

Abstract

This article explores the lived experience of informal caregivers in cancer care, focusing on the perceived burden and needs of individuals seeking support from an informal group for next of kin. A total of 28 individuals who were closely related to a patient with cancer participated in focus group interviews. Three themes were identified: setting aside one's own needs, assuming the role of project manager, and losing one's sense of identity. Together they form the framing theme: being co-afflicted. The characteristics of informal caregivers are shown to be similar to those of people with codependency, motivating development of targeted interventions from this perspective.

Entities:  

Keywords:  cancer; codependency; family caregivers; oncology; spouse caregivers

Year:  2019        PMID: 31778077     DOI: 10.1177/1359105319890407

Source DB:  PubMed          Journal:  J Health Psychol        ISSN: 1359-1053


  6 in total

1.  Caring for the Family Caregiver: Development of a Caregiver Clinic at a Cancer Hospital as Standard of Care.

Authors:  Rinat S Nissim; Sarah Hales
Journal:  J Clin Psychol Med Settings       Date:  2022-06-14

2.  In-home conversations of couples with advanced cancer: Support has its costs.

Authors:  Maija Reblin; Amy K Otto; Dana Ketcher; Susan T Vadaparampil; Lee Ellington; Richard E Heyman
Journal:  Psychooncology       Date:  2020-06-08       Impact factor: 3.894

3.  Care for the Cancer Caregiver: a Qualitative Study of Facilitators and Barriers to Caregiver Integration and Support.

Authors:  Maija Reblin; Dana Ketcher; Susan T Vadaparampil
Journal:  J Cancer Educ       Date:  2021-03-30       Impact factor: 1.771

4.  Association between work status and depression in informal caregivers: a collaborative modelling approach.

Authors:  Aoife O'Neill; Stephen Gallagher; Ailish Hannigan; Katie Robinson
Journal:  Eur J Public Health       Date:  2022-02-01       Impact factor: 3.367

5.  Addressing a critical need for caregiver support in neuro-oncology: development of a caregiver navigation intervention using eSNAP social resource visualization.

Authors:  Maija Reblin; Kristen J Wells; Amy Otto; Rachael McCormick; Laura Rodriguez; Kerie Walters; Steven K Sutton; Bradley Zebrack; Peter Forsyth; Margaret M Byrne
Journal:  Support Care Cancer       Date:  2022-03-15       Impact factor: 3.359

6.  Experiences of being a family caregiver to a patient treated for oesophageal cancer-1 year after surgery.

Authors:  Cecilia H Ringborg; Anna Schandl; Yvonne Wengström; Pernilla Lagergren
Journal:  Support Care Cancer       Date:  2021-08-19       Impact factor: 3.603

  6 in total

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